Thank you Richard for clarifying! I will keep you in my thoughts for Monday...thinking and praying for good numbers!!!
Got my results back...BCR was up 1 log...in 6 weeks off sprycel. so it was wise to go back on. I am hoping that if I can get into complete remission and stay there for two years. ( my personal goal) that I might try to titrate off and see what happens. With being on and off the meds for four surgeries in two years, it's not been possible to have a stable remission. In my case, without the meds, I do have the condition get worse very quickly....for a slow growing cancer.... My back is just plain bad, post surgery,much worse than before surgery...don't know what to say except that I am disabled from the surgery and praying that my back will heal over a longer period of time...we all need to try and live the best lives we can. I did the surgery because I had daily sciatic pain that kept me from living fully. Had I thought that this surgery could make things much worse, I would have stuck with what I had......it's fully how we don't hold on to certain facts, like I just went through two surgeries to correct a botched hysterectomy..so of course, things can go wrong.... I am staying positive, and strong...and saying Marty's prayer to get me through... Looking forward to your results on Monday Richard. Hello to all my CML buddies out there...that's my update!! Take good care, Beth -----Original Message----- From: Richard H <[email protected]> To: cmlhope <[email protected]> Sent: Tue, Mar 18, 2014 11:13 pm Subject: Re: [CMLHope] Aniversery 13 Sorry Beth, but I won't have the results until Momday the 24th. I will definately post the results when I get them. Richard H On Monday, March 17, 2014 5:25:41 PM UTC-5, Beth wrote: HI Richard, How did your BCR come out? Thinking of you today. ...and thanks to everyone who are long term CML survivors for sharing their years and their stories....it's very very helpful and inspiring....so many thanks... Fondly, Beth -----Original Message----- From: Vivi <[email protected]> To: cmlhope <[email protected]> Cc: DAWN RODEGHIER <[email protected]> Sent: Mon, Mar 17, 2014 12:02 pm Subject: Re: [CMLHope] Aniversery 13 It's been fourteen years for me after a long, long year on PegIntron. I started STI571 on February 1st of 2000 and was up and about by mid- August. With all the usual, difficult side-effects, most of which became attenuated over time except for periorbital edema, leg cramps and weight gain around my middle. Just great to be here all this time after being told that I was a goner. Courage to all of us. On Wednesday, March 12, 2014 11:02:53 PM UTC-4, rod wrote: 17 for me, been on Gleevec since it was approved in the US, I also go Monday to my Onc. I still get the cramps in different parts of the body but that's better than the alternative. From: Richard H <[email protected]> To: [email protected] Sent: Tuesday, March 11, 2014 11:13 PM Subject: [CMLHope] Aniversery 13 I have passed my 13th year with CML. Monday I will meet with my ONC for the results on my blood tests. My CBC was eactly where it should be so I am praying for good results. About a month ago I noticed a spring in my steps to coffee club and increased energy. I will report the findings after I get them. I am praying for all, and so glad Marty is feeling better and able to join on line. Richard H. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
