Me too, Marty. Are you going to run next time? It's been a bad day and perhaps I'm looking at negative things. I haven't slept in 3 days as I have caught something and am fighting it now. The nurse came this morning and said she heard a rasping in my one lung, so we'll keep check on that and perhaps it will just go away. I called my Oncologist about what medicine I can take with the Tasigna, and he said that I could take anything but anti-fungal meds. I'm not certain what they are, but don't have to worry about any of the other types of antibiotics out there. I am worn out from it all and all I do is cough. I do hope that you're right about finding a cure, Marty. I know that it's needed. Gleevec didn't do much for me and I never went into remission with it and ended up on 800mg before being switched to Tasigna. It has been good to me.
Talk to you all soon. Hugs, Millie ----- Original Message ----- From: [email protected] To: [email protected] Sent: Tuesday, April 15, 2014 5:22 PM Subject: Re: [CMLHope] Check out Novartis Cannibalizes Gleevec to Boost New Cancer Dru... Marty, you should run for President, I'll vote for you..... greenie In a message dated 4/15/2014 5:17:50 P.M. Eastern Daylight Time, [email protected] writes: Millie, you wrote "I know you have hopes of it being found in our lifetime, but I am finding out that it wouldn't benefit the drug companies to find anything. How could they stay in business if they found cures for it all?" Your wrong Millie, they will find a cure for CML and it will be in our lifetime, this I am sure of. Just look at what has happened in the last ten years concerning CML. My bone marrow transplant was almost twenty four years ago and just look at all of the progress that has been made in all of these years. As far as putting them out of business, well, did the Salk Vaccine or going way back, penicillin and many other drugs do that? All that will happen is they will simply find new drugs for other diseases. It is a circle just as I said about a dog chasing it's tail. Once a patent runs out they just find something else to make money on. That is why I said this will benefit anyone that may be suffering from CML. And this will just keep on going on. Maybe next will be AML or breast cancer, or colon cancer or many other types of cancer. Eventually all of these cancers will be cured but for the moment it is CML because of what there is now with all of these TKI"S It is just a matter of research, and it will come! Millie there are doctors out there like Dr. Druker and many others that do this not mainly for the money but to help save people from various diseases. 18's, Marty On Tue, Apr 15, 2014 at 4:03 PM, C.M. Houtz <[email protected]> wrote: The drug companies don't care if we live or die, it's all about money, but then, today, what isn't? Our own congress doesn't take care of us any more as it's turned into a money making thing too, creating millionaires in the process and we don't matter at all. What a world it has turned in to. I'm sure they've made their money, and want to make more. I am in total agreement with that. Also, if they find a cure, it wouldn't be profitable. That's the way I look at Cancer as a whole. I know you have hopes of it being found in our lifetime, but I am finding out that it wouldn't benefit the drug companies to find anything. How could they stay in business if they found cures for it all? Hope that you're doing well. You take good care of yourself. Many hugs, and 18's, Millie ----- Original Message ----- From: Marty Gartenberg To: [email protected] Sent: Tuesday, April 15, 2014 3:45 PM Subject: Re: [CMLHope] Check out Novartis Cannibalizes Gleevec to Boost New Cancer Drug - Bloomberg Millie, I agree with what your son said about the company's costs in starting a new drug. However since Novartis has already made billions of dollars because of Gleevec then their start up costs probably have been satisfied many times over. Also if CML is such an "isolated" disease and Novartis doesn't think that it is worth producing because in the scheme of things CML is not a prevelant disease considering all of the other types of cancer and has to keep the price of their older TKI's (Gleevec) for one still high and now your mentioning even higher then Novartis has to realise that STI-571 now called Gleevec has netted them billions of dollars for Gleevec alone. It really put them on the "map" from a fledgeling company to what it is now. But, as I previously mentioned, cancer is a very profitable entity for drug companys. One thing that everyone including these drug companys has to realise is that if a drug is priced so that no one can afford it then they can't sell enough to keep their company in business so they now must charge huge prices for it. Like a dog chasing it's tail... 18's, Marty On Tue, Apr 15, 2014 at 1:03 PM, houtz <[email protected]> wrote: My son, Rick, works for a Danish Pharmaceutical company at present and they aren't into any cancer meds, mainly drugs for diabetes. At any rate, he explained this all to me when I was on Gleevec. The costs of creating the drugs is the reason that they cost so much and if they didn't have that kind of money, it wouldn't make it cost effective to even create these meds. Percentage wise, there aren't enough people in the world with CML and other Leukemia that would make it worth their while to even try to make Gleevec or any of the other drugs that are keeping us alive. At any rate, I thank God for the drugs and what they do to keep us alive. I know how very expensive they are and it does seem ridiculous, but it is what it is. After he explained it all to me, then I could understand the costs etc. much better. Hope this helps a little. Millie ----- Original Message ----- From: Marty Gartenberg <[email protected]> To: [email protected] Sent: Tue, 15 Apr 2014 11:30:15 -0400 (EDT) Subject: Re: [CMLHope] Check out Novartis Cannibalizes Gleevec to Boost New Cancer Drug - Bloomberg Hi Greenie and everyone else, As you know I have never been on any of these TKI's because I had a bone marrow transplant. However I can say that whatever TKI you are presently taking and it is working for you then you are still alive because of it. What researchers may find out in the future will only make this disease finally become crued and then none of you will have to take anything for this disease. I keep on telling you that there will be a cure for CML and maybe Gleevec losing it's patent rights is it first step to this process. Unfortunately everything today involves money and cancer treatment seems to be on or near the top. Sometimes some competition may be toward all of our advantages. What I really don't like is that when STI-571 (now Gleevec) first came out my friend Zavie Miler and myself had asked many people to invest in Novartis to help support the company. Now I realise that any of these drug companys have a huge outlay in start up costs but when these costs are paid off then why not support those that need this drug to survive? Now that there are more and newer TKI's out there and the cost is another consideration for the company's to bare and hopefully they will have a lot of consideration cost wise to those that have to use it in order to stay alive. Staying alive is a basic human right and I really wish that these drug company's realise that. By the way I happen to hold many shares in Novartis and I would never think about selling them because I support the company. Now why won't the company support all of you that need any of these TKI's? I also know that Novartis has several programs that are compassionate so at least that is a big start. That is why I said sometimes a little competition may be able to help those that need these TKI's to survive. Are you getting why I always end any of my messages with 18's. It is because we are still alive. 18's, Marty On Tue, Apr 15, 2014 at 9:06 AM, <[email protected]> wrote: > Novartis Cannibalizes Gleevec to Boost New Cancer Drug - Bloomberg<http://www.bloomberg.com/news/2012-10-25/novartis-cannibalizes-gleevec-to-boost-new-cancer-drug.html> Hi > gang, This message was on AOL which is the web-site that I use. Check it > out and let me know what you think about it. Maybe you have already see it. > > greenie > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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