When I saw my Kidney Specialist about two months ago my creatinine level was up to 1.81 up from 1.59. He was okay with that is still stage 3. I have been told by most of my specialists that most of my issues are the heavy drugs I have/am taking is the major cause. 18's
Richard H. On Thursday, May 8, 2014 6:56:43 AM UTC-5, greenie wrote: > > Hi Susan, I flew into Chicago yesterday to see Dr. Altman, she's going > to have a baby. My test came back O.K. but my creatinine was on the high > side again it's been they way for years.1.4,1.5,1.3,1.4,.143,1.4 and > yesterday 1.51. I was going to tell that I know you but I forgot. When > you see her tell her you know me next Wed. She want's me to get blood work > down here in 6 month and send her the results. > > By son and daughter in law and grandson picked me up from Midway and drove > downtown. Then he took me to lunch in Schaumburg, then stopped at the mall > nearby. Well now it's starting to get close to take off time and we are > more then a hour away from Midway. I kept telling him Derek we need to get > going, Dad don't worry I'll get you their on time, sure. So we took off and > of course the traffic was bumper to bumper so he gets out is GPSand we took > every back road in Illinois. Got me to the airport 15 min before take off. > They rushed me through the gate and they were boarding when I got their, > and that was the last flight out to Fort Myers. It was one of Southwest > new plane the guy that was setting next to me just just started as a > flight attendant and had one of their GPS and it show our speed of 529 > mph and our altitude. We landed 25 min. early and touch down was 159 mph, > hard landing but any landing is a good landing I used to fly many years > ago. Was a very busy day for me. Grace and I are flying into Chicago on > June 10th to see family and leaving July 1st. I will contact you so maybe > we can get together for lunch. > > Take care, > > greenie > > In a message dated 5/7/2014 9:50:52 P.M. Eastern Daylight Time, > [email protected] <javascript:> writes: > > Hey everyone, > > I started on bosutinib yesterday at 100 mg. Please keep me in your > prayers that this medicine will work and I can stay on it without any > stroke symptoms, like has happened with all the rest of the drugs. I am > going to Chicago (Northwestern) at least once a month now, next again for a > two-week follow-up. It's a one hour and forty minute drive with no > slow-downs. I make it a fun day. Last Wednesday my husband made it a > business trip and took me along, dropped me off and met again later. It's > easier on my nerves when driving downtown! Dr. Altman wants to check my > reaction to the lowest dose in two weeks. I'm sure it will be fine...... > > They also did an EKG on me and it showed that I do have prolongation > between heartbeats, just a tad above normal. This could be why I'm so > devastatingly tired all the time! I do not want to develop anything worse > from the prolongation, so they will give me an EKG each time I go for > awhile. Got to do some homework on this. Sure have loved and enjoyed > being off all medication for 7 whole years. Dr. Altman says I'm really > "special" to have lasted this long. Don't know by that if she means > "crazy" or idiotic, or what....it is what it is! > > Marty, I am standing with everyone to pray you will receive a new kidney > soon...and Millie, keep pressing the docs about why all these pains are > gripping you and what can they do about it. We have to be pro-active, > although I know just getting through the day sometimes is all the > "pro-active" we can be!!! Beth, praying for you, too! > > 18's and hang in there, > Susan Zimmerman > > > -----Original Message----- > From: C.M. Houtz <[email protected] <javascript:>> > To: cmlhope <[email protected] <javascript:>> > Sent: Tue, May 6, 2014 11:54 pm > Subject: Re: [CMLHope] No Updates? > > Hi Richard, > > I've been thinking the same thing. I hope that it means all if okay. I > have been having a lot of Arthritis problems and can hardly move my arms. > It hurts to type a lot. from the elbow down I'm fine, but from the elbow > up it's so painful to lift my arms or do anything that requires reaching, > lifting, etc. What a mess I am.. I try to cope with it, and do some > exercises that help, but if it hurts to do them, they tell me not to force > it.. Say prayers for Marty, and Beth as I know they're having their own > set of problems. If you have any left over, pray that my arms will start > working well enough for me to accomplish something. Marty has a weeks > worth of tests, doctors, etc. to deal with, and Debbie has her back > issues. I know that this is a CML site, but it seems like other things get > in the way that we deal with. I do hope all is well with you. I'll keep > watching for e-mails from the group, and hope that they will all be good > news. Jeanie got kicked off of the Goggle site, and I can't remember why. > She was trying to change things and it took her down. I don't think she > knows how to get back on. I still e-mail her and we talk that way, but she > was a huge asset to our group. I forward her messages to you guys, but she > needs to get hooked up directly. I sure don't want to loose touch with > anyone. > > Talk to you soon. > Love, Hope, and Prayers, > Millie > > ----- Original Message ----- > *From:* Richard H <javascript:> > *To:* [email protected] <javascript:> > *Sent:* Tuesday, May 06, 2014 11:40 PM > *Subject:* [CMLHope] No Updates? > > I haven't seen any new or responses for almost a week. I hope everyone is > okay and just busy with life. > > Richard H. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
