Thanks Marty. Yes I see my specialist every six months and I am diebetic. Specialist likes me to log my fluids so my intake is about 90-100 oz per day. My wife has used cranberry juice for years. When I was diagnosised The Dr. listed age as secendory to the powerful heart and CML drug damage.
On Friday, May 9, 2014 7:24:54 AM UTC-5, wa2yyx wrote: > > Richard, > > Your kidney function is still doing relitively well, but you need to > keep an eye on it. Of course these TKI's do have an effect on your > kidney function but so do many other things. As you age your kidney > function decreasses. > > If you are not diabetic then start drinking Cranberry juice it really > helps clean your kidneys. > > Good luck, > > 18's, > > Marty > > On Thu, May 8, 2014 at 11:45 PM, Richard H > <[email protected]<javascript:>> > wrote: > > When I saw my Kidney Specialist about two months ago my creatinine level > was > > up to 1.81 up from 1.59. He was okay with that is still stage 3. I > have > > been told by most of my specialists that most of my issues are the heavy > > drugs I have/am taking is the major cause. 18's > > > > Richard H. > > > > On Thursday, May 8, 2014 6:56:43 AM UTC-5, greenie wrote: > >> > >> Hi Susan, I flew into Chicago yesterday to see Dr. Altman, she's going > to > >> have a baby. My test came back O.K. but my creatinine was on the high > side > >> again it's been they way for years.1.4,1.5,1.3,1.4,.143,1.4 and > yesterday > >> 1.51. I was going to tell that I know you but I forgot. When you see > her > >> tell her you know me next Wed. She want's me to get blood work down > here in > >> 6 month and send her the results. > >> > >> By son and daughter in law and grandson picked me up from Midway and > drove > >> downtown. Then he took me to lunch in Schaumburg, then stopped at the > mall > >> nearby. Well now it's starting to get close to take off time and we > are > >> more then a hour away from Midway. I kept telling him Derek we need to > get > >> going, Dad don't worry I'll get you their on time, sure. So we took off > and > >> of course the traffic was bumper to bumper so he gets out is GPSand we > took > >> every back road in Illinois. Got me to the airport 15 min before take > off. > >> They rushed me through the gate and they were boarding when I got > their, and > >> that was the last flight out to Fort Myers. It was one of Southwest > new > >> plane the guy that was setting next to me just just started as a flight > >> attendant and had one of their GPS and it show our speed of 529 mph and > our > >> altitude. We landed 25 min. early and touch down was 159 mph, hard > landing > >> but any landing is a good landing I used to fly many years ago. Was a > very > >> busy day for me. Grace and I are flying into Chicago on June 10th to > see > >> family and leaving July 1st. I will contact you so maybe we can get > >> together for lunch. > >> > >> Take care, > >> > >> greenie > >> > >> In a message dated 5/7/2014 9:50:52 P.M. Eastern Daylight Time, > >> [email protected] writes: > >> > >> Hey everyone, > >> > >> I started on bosutinib yesterday at 100 mg. Please keep me in your > >> prayers that this medicine will work and I can stay on it without any > stroke > >> symptoms, like has happened with all the rest of the drugs. I am going > to > >> Chicago (Northwestern) at least once a month now, next again for a > two-week > >> follow-up. It's a one hour and forty minute drive with no slow-downs. > I > >> make it a fun day. Last Wednesday my husband made it a business trip > and > >> took me along, dropped me off and met again later. It's easier on my > nerves > >> when driving downtown! Dr. Altman wants to check my reaction to the > lowest > >> dose in two weeks. I'm sure it will be fine...... > >> > >> They also did an EKG on me and it showed that I do have prolongation > >> between heartbeats, just a tad above normal. This could be why I'm so > >> devastatingly tired all the time! I do not want to develop anything > worse > >> from the prolongation, so they will give me an EKG each time I go for > >> awhile. Got to do some homework on this. Sure have loved and enjoyed > being > >> off all medication for 7 whole years. Dr. Altman says I'm really > "special" > >> to have lasted this long. Don't know by that if she means "crazy" or > >> idiotic, or what....it is what it is! > >> > >> Marty, I am standing with everyone to pray you will receive a new > kidney > >> soon...and Millie, keep pressing the docs about why all these pains are > >> gripping you and what can they do about it. We have to be pro-active, > >> although I know just getting through the day sometimes is all the > >> "pro-active" we can be!!! Beth, praying for you, too! > >> > >> 18's and hang in there, > >> Susan Zimmerman > >> > >> > >> -----Original Message----- > >> From: C.M. Houtz <[email protected]> > >> To: cmlhope <[email protected]> > >> Sent: Tue, May 6, 2014 11:54 pm > >> Subject: Re: [CMLHope] No Updates? > >> > >> Hi Richard, > >> > >> I've been thinking the same thing. I hope that it means all if okay. > I > >> have been having a lot of Arthritis problems and can hardly move my > arms. > >> It hurts to type a lot. from the elbow down I'm fine, but from the > elbow up > >> it's so painful to lift my arms or do anything that requires reaching, > >> lifting, etc. What a mess I am.. I try to cope with it, and do some > >> exercises that help, but if it hurts to do them, they tell me not to > force > >> it.. Say prayers for Marty, and Beth as I know they're having their > own set > >> of problems. If you have any left over, pray that my arms will start > >> working well enough for me to accomplish something. Marty has a weeks > worth > >> of tests, doctors, etc. to deal with, and Debbie has her back issues. > I > >> know that this is a CML site, but it seems like other things get in the > way > >> that we deal with. I do hope all is well with you. I'll keep watching > for > >> e-mails from the group, and hope that they will all be good news. > Jeanie > >> got kicked off of the Goggle site, and I can't remember why. She was > trying > >> to change things and it took her down. I don't think she knows how to > get > >> back on. I still e-mail her and we talk that way, but she was a huge > asset > >> to our group. I forward her messages to you guys, but she needs to get > >> hooked up directly. I sure don't want to loose touch with anyone. > >> > >> Talk to you soon. > >> Love, Hope, and Prayers, > >> Millie > >> > >> ----- Original Message ----- > >> From: Richard H > >> To: [email protected] > >> Sent: Tuesday, May 06, 2014 11:40 PM > >> Subject: [CMLHope] No Updates? > >> > >> I haven't seen any new or responses for almost a week. I hope everyone > is > >> okay and just busy with life. > >> > >> Richard H. > >> -- > >> -- > >> [CMLHope] > >> A support group of http://cmlhope.com > >> ------------------------------------------------- > >> > >> You received this message because you are subscribed to the Google > Groups > >> "CMLHope" group. > >> To post to this group, send email to [email protected] > >> To unsubscribe from this group, send email to > >> [email protected] > >> For more options, visit this group at > >> http://groups.google.com/group/CMLHope > >> --- > >> You received this message because you are subscribed to the Google > Groups > >> "CMLHope" group. > >> To unsubscribe from this group and stop receiving emails from it, send > an > >> email to [email protected]. > >> For more options, visit https://groups.google.com/d/optout. > >> > >> -- > >> -- > >> [CMLHope] > >> A support group of http://cmlhope.com > >> ------------------------------------------------- > >> > >> You received this message because you are subscribed to the Google > Groups > >> "CMLHope" group. > >> To post to this group, send email to [email protected] > >> To unsubscribe from this group, send email to > >> [email protected] > >> For more options, visit this group at > >> http://groups.google.com/group/CMLHope > >> --- > >> You received this message because you are subscribed to the Google > Groups > >> "CMLHope" group. > >> To unsubscribe from this group and stop receiving emails from it, send > an > >> email to [email protected]. > >> For more options, visit https://groups.google.com/d/optout. > >> > >> -- > >> -- > >> [CMLHope] > >> A support group of http://cmlhope.com > >> ------------------------------------------------- > >> > >> You received this message because you are subscribed to the Google > Groups > >> "CMLHope" group. > >> To post to this group, send email to [email protected] > >> To unsubscribe from this group, send email to > >> [email protected] > >> For more options, visit this group at > >> http://groups.google.com/group/CMLHope > >> --- > >> You received this message because you are subscribed to the Google > Groups > >> "CMLHope" group. > >> To unsubscribe from this group and stop receiving emails from it, send > an > >> email to [email protected]. > >> For more options, visit https://groups.google.com/d/optout. > > > > -- > > -- > > [CMLHope] > > A support group of http://cmlhope.com > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google > Groups > > "CMLHope" group. > > To post to this group, send email to [email protected]<javascript:> > > To unsubscribe from this group, send email to > > [email protected] <javascript:> > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > --- > > You received this message because you are subscribed to the Google > Groups > > "CMLHope" group. > > To unsubscribe from this group and stop receiving emails from it, send > an > > email to [email protected] <javascript:>. > > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
