Richard, this all proves one thing. We are still here!
18's my friend, Marty On Fri, May 9, 2014 at 11:46 PM, Richard H <[email protected]> wrote: > Thanks Marty. Yes I see my specialist every six months and I am diebetic. > Specialist likes me to log my fluids so my intake is about 90-100 oz per > day. My wife has used cranberry juice for years. When I was diagnosised > The Dr. listed age as secendory to the powerful heart and CML drug damage. > > On Friday, May 9, 2014 7:24:54 AM UTC-5, wa2yyx wrote: >> >> Richard, >> >> Your kidney function is still doing relitively well, but you need to >> keep an eye on it. Of course these TKI's do have an effect on your >> kidney function but so do many other things. As you age your kidney >> function decreasses. >> >> If you are not diabetic then start drinking Cranberry juice it really >> helps clean your kidneys. >> >> Good luck, >> >> 18's, >> >> Marty >> >> On Thu, May 8, 2014 at 11:45 PM, Richard H <[email protected]> wrote: >> > When I saw my Kidney Specialist about two months ago my creatinine level >> > was >> > up to 1.81 up from 1.59. He was okay with that is still stage 3. I >> > have >> > been told by most of my specialists that most of my issues are the heavy >> > drugs I have/am taking is the major cause. 18's >> > >> > Richard H. >> > >> > On Thursday, May 8, 2014 6:56:43 AM UTC-5, greenie wrote: >> >> >> >> Hi Susan, I flew into Chicago yesterday to see Dr. Altman, she's going >> >> to >> >> have a baby. My test came back O.K. but my creatinine was on the high >> >> side >> >> again it's been they way for years.1.4,1.5,1.3,1.4,.143,1.4 and >> >> yesterday >> >> 1.51. I was going to tell that I know you but I forgot. When you see >> >> her >> >> tell her you know me next Wed. She want's me to get blood work down >> >> here in >> >> 6 month and send her the results. >> >> >> >> By son and daughter in law and grandson picked me up from Midway and >> >> drove >> >> downtown. Then he took me to lunch in Schaumburg, then stopped at the >> >> mall >> >> nearby. Well now it's starting to get close to take off time and we >> >> are >> >> more then a hour away from Midway. I kept telling him Derek we need to >> >> get >> >> going, Dad don't worry I'll get you their on time, sure. So we took off >> >> and >> >> of course the traffic was bumper to bumper so he gets out is GPSand we >> >> took >> >> every back road in Illinois. Got me to the airport 15 min before take >> >> off. >> >> They rushed me through the gate and they were boarding when I got >> >> their, and >> >> that was the last flight out to Fort Myers. It was one of Southwest >> >> new >> >> plane the guy that was setting next to me just just started as a flight >> >> attendant and had one of their GPS and it show our speed of 529 mph and >> >> our >> >> altitude. We landed 25 min. early and touch down was 159 mph, hard >> >> landing >> >> but any landing is a good landing I used to fly many years ago. Was a >> >> very >> >> busy day for me. Grace and I are flying into Chicago on June 10th to >> >> see >> >> family and leaving July 1st. I will contact you so maybe we can get >> >> together for lunch. >> >> >> >> Take care, >> >> >> >> greenie >> >> >> >> In a message dated 5/7/2014 9:50:52 P.M. Eastern Daylight Time, >> >> [email protected] writes: >> >> >> >> Hey everyone, >> >> >> >> I started on bosutinib yesterday at 100 mg. Please keep me in your >> >> prayers that this medicine will work and I can stay on it without any >> >> stroke >> >> symptoms, like has happened with all the rest of the drugs. I am going >> >> to >> >> Chicago (Northwestern) at least once a month now, next again for a >> >> two-week >> >> follow-up. It's a one hour and forty minute drive with no slow-downs. >> >> I >> >> make it a fun day. Last Wednesday my husband made it a business trip >> >> and >> >> took me along, dropped me off and met again later. It's easier on my >> >> nerves >> >> when driving downtown! Dr. Altman wants to check my reaction to the >> >> lowest >> >> dose in two weeks. I'm sure it will be fine...... >> >> >> >> They also did an EKG on me and it showed that I do have prolongation >> >> between heartbeats, just a tad above normal. This could be why I'm so >> >> devastatingly tired all the time! I do not want to develop anything >> >> worse >> >> from the prolongation, so they will give me an EKG each time I go for >> >> awhile. Got to do some homework on this. Sure have loved and enjoyed >> >> being >> >> off all medication for 7 whole years. Dr. Altman says I'm really >> >> "special" >> >> to have lasted this long. Don't know by that if she means "crazy" or >> >> idiotic, or what....it is what it is! >> >> >> >> Marty, I am standing with everyone to pray you will receive a new >> >> kidney >> >> soon...and Millie, keep pressing the docs about why all these pains are >> >> gripping you and what can they do about it. We have to be pro-active, >> >> although I know just getting through the day sometimes is all the >> >> "pro-active" we can be!!! Beth, praying for you, too! >> >> >> >> 18's and hang in there, >> >> Susan Zimmerman >> >> >> >> >> >> -----Original Message----- >> >> From: C.M. Houtz <[email protected]> >> >> To: cmlhope <[email protected]> >> >> Sent: Tue, May 6, 2014 11:54 pm >> >> Subject: Re: [CMLHope] No Updates? >> >> >> >> Hi Richard, >> >> >> >> I've been thinking the same thing. I hope that it means all if okay. >> >> I >> >> have been having a lot of Arthritis problems and can hardly move my >> >> arms. >> >> It hurts to type a lot. from the elbow down I'm fine, but from the >> >> elbow up >> >> it's so painful to lift my arms or do anything that requires reaching, >> >> lifting, etc. What a mess I am.. I try to cope with it, and do some >> >> exercises that help, but if it hurts to do them, they tell me not to >> >> force >> >> it.. Say prayers for Marty, and Beth as I know they're having their >> >> own set >> >> of problems. If you have any left over, pray that my arms will start >> >> working well enough for me to accomplish something. Marty has a weeks >> >> worth >> >> of tests, doctors, etc. to deal with, and Debbie has her back issues. >> >> I >> >> know that this is a CML site, but it seems like other things get in the >> >> way >> >> that we deal with. I do hope all is well with you. I'll keep watching >> >> for >> >> e-mails from the group, and hope that they will all be good news. >> >> Jeanie >> >> got kicked off of the Goggle site, and I can't remember why. She was >> >> trying >> >> to change things and it took her down. I don't think she knows how to >> >> get >> >> back on. I still e-mail her and we talk that way, but she was a huge >> >> asset >> >> to our group. I forward her messages to you guys, but she needs to get >> >> hooked up directly. I sure don't want to loose touch with anyone. >> >> >> >> Talk to you soon. >> >> Love, Hope, and Prayers, >> >> Millie >> >> >> >> ----- Original Message ----- >> >> From: Richard H >> >> To: [email protected] >> >> Sent: Tuesday, May 06, 2014 11:40 PM >> >> Subject: [CMLHope] No Updates? >> >> >> >> I haven't seen any new or responses for almost a week. I hope everyone >> >> is >> >> okay and just busy with life. >> >> >> >> Richard H. >> >> -- >> >> -- >> >> [CMLHope] >> >> A support group of http://cmlhope.com >> >> ------------------------------------------------- >> >> >> >> You received this message because you are subscribed to the Google >> >> Groups >> >> "CMLHope" group. >> >> To post to this group, send email to [email protected] >> >> To unsubscribe from this group, send email to >> >> [email protected] >> >> For more options, visit this group at >> >> http://groups.google.com/group/CMLHope >> >> --- >> >> You received this message because you are subscribed to the Google >> >> Groups >> >> "CMLHope" group. >> >> To unsubscribe from this group and stop receiving emails from it, send >> >> an >> >> email to [email protected]. >> >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> -- >> >> -- >> >> [CMLHope] >> >> A support group of http://cmlhope.com >> >> ------------------------------------------------- >> >> >> >> You received this message because you are subscribed to the Google >> >> Groups >> >> "CMLHope" group. >> >> To post to this group, send email to [email protected] >> >> To unsubscribe from this group, send email to >> >> [email protected] >> >> For more options, visit this group at >> >> http://groups.google.com/group/CMLHope >> >> --- >> >> You received this message because you are subscribed to the Google >> >> Groups >> >> "CMLHope" group. >> >> To unsubscribe from this group and stop receiving emails from it, send >> >> an >> >> email to [email protected]. >> >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> -- >> >> -- >> >> [CMLHope] >> >> A support group of http://cmlhope.com >> >> ------------------------------------------------- >> >> >> >> You received this message because you are subscribed to the Google >> >> Groups >> >> "CMLHope" group. >> >> To post to this group, send email to [email protected] >> >> To unsubscribe from this group, send email to >> >> [email protected] >> >> For more options, visit this group at >> >> http://groups.google.com/group/CMLHope >> >> --- >> >> You received this message because you are subscribed to the Google >> >> Groups >> >> "CMLHope" group. >> >> To unsubscribe from this group and stop receiving emails from it, send >> >> an >> >> email to [email protected]. >> >> For more options, visit https://groups.google.com/d/optout. >> > >> > -- >> > -- >> > [CMLHope] >> > A support group of http://cmlhope.com >> > ------------------------------------------------- >> > >> > You received this message because you are subscribed to the Google >> > Groups >> > "CMLHope" group. >> > To post to this group, send email to [email protected] >> > To unsubscribe from this group, send email to >> > [email protected] >> > For more options, visit this group at >> > http://groups.google.com/group/CMLHope >> > --- >> > You received this message because you are subscribed to the Google >> > Groups >> > "CMLHope" group. >> > To unsubscribe from this group and stop receiving emails from it, send >> > an >> > email to [email protected]. >> > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
