Hi Carolyn: C-dif is tough stuff. My mom had it and one of my best friends. Glad that you are doing better and hope that each day brings more strength your way. Marcie -----Original Message----- From: jkuptz <[email protected]> To: CMLHope <[email protected]> Sent: Fri, May 16, 2014 8:45 am Subject: [CMLHope] plural enfulsion
greeings fellow cml warriors, Haven't updated for while. I just got out of the hospital aftr a nine day stay. Much to long eating hopsital food. No more broth and green jello for me!!!. What started out as a simple stomach ache quickly turned worse. I ended up calling 911 as I am alone and couldn't drive safely. I had something I never heard of c-dif from an antiobiotic. Takes all the good bacteria out of stomach and the bad takes over. NASTY stuff. I told drs all the iv liquid would go around my lungs. I wish drs would listen to someone when we know our bodies. Had to have lungs tapped three days in a row. They took out 3 1/2 liters. It is back within a week. Gets discouraging. Went to pulmonary dr on Tues. Water seems to be stable for now. I was surpirsed it was back that much as I feel better than I have felt in a long time. Am able to clean whole house without stopping to sit down. I can walk about 6 blocks at a pretty quick pace. Dr. is holding off changine drugs just yet which is fine with me. although this last blood work showed a .oo2 cml indication. Dr felt it was because of the c-dif that my body wasn't absorbing Sprycel. It is such a tiny amount but it just reminds me that I still have it. Hopefully next months blook check will be undectable. If not it is ok the Lord is in control. Carolyn Kuptz Diag. 11-05 remission since 07 Sprycel 20mg, bid -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
