Hi Carolyn, and good to hear from you but sorry you had to stay in the hospital. I know what you mean about green jello and broth; how about microwave tough chicken. I can't believe that what we know of nutrition these days they are still serving those awful dishes of food. They told me I had to eat artificially sweetened food at that! I told them I was allergic to it, but they kept bringing it. It seems the doctor had me on a heart patients diet. That PE worries me, but my onc tells me that's the last thing I need to be worried about. I am on 100mgs of Sprycel daily. I just read an article that said PE was especially found in patients that took Sprycel for a lont time, so go figure. I've been on it for almost 5 years now. Glad you got everything back to good order. Blessings, Jeanie<3 In a message dated 5/16/2014 8:45:22 A.M. Eastern Daylight Time, [email protected] writes:
greeings fellow cml warriors, Haven't updated for while. I just got out of the hospital aftr a nine day stay. Much to long eating hopsital food. No more broth and green jello for me!!!. What started out as a simple stomach ache quickly turned worse. I ended up calling 911 as I am alone and couldn't drive safely. I had something I never heard of c-dif from an antiobiotic. Takes all the good bacteria out of stomach and the bad takes over. NASTY stuff. I told drs all the iv liquid would go around my lungs. I wish drs would listen to someone when we know our bodies. Had to have lungs tapped three days in a row. They took out 3 1/2 liters. It is back within a week. Gets discouraging. Went to pulmonary dr on Tues. Water seems to be stable for now. I was surpirsed it was back that much as I feel better than I have felt in a long time. Am able to clean whole house without stopping to sit down. I can walk about 6 blocks at a pretty quick pace. Dr. is holding off changine drugs just yet which is fine with me. although this last blood work showed a .oo2 cml indication. Dr felt it was because of the c-dif that my body wasn't absorbing Sprycel. It is such a tiny amount but it just reminds me that I still have it. Hopefully next months blook check will be undectable. If not it is ok the Lord is in control. Carolyn Kuptz Diag. 11-05 remission since 07 Sprycel 20mg, bid -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
