Good luck Joyce; hope he gets well soon.
Blessings,
Jeanie<3
In a message dated 9/19/2014 2:54:51 A.M. Eastern Daylight Time,
[email protected] writes:
Thanks, Michelle, for your post and the link to your site. The effusion
seems to be around his heart but is not causing a lot of problems....like
you, shortness of breath. His doctors have done all the blood tests and
echocardiograms and find no other cause than the Sprycel. His last echo
showed the effusion was lessening. That was good news. He will go see his
CML
specialist a month from now and at that time they will decide what to do
next. I hope they put him back on Sprycel. It has put him in PCRU for close
to 2 years now. He is feeling very well since being off Sprycel, as most
patients report when being off TKIs.
Hope your current PE and bronchitis are short lived.
Joyce in IL
On Sep 18, 2014, at 6:19 PM, _LearnToBallroomDanceOnline.com_
(http://learntoballroomdanceonline.com/) wrote:
Joyce,
I have had to go off of Sprycel several times due to pleural effusion,
which typically clears up for me within a week or so of being off of meds.
I am currently fighting one again now with bronchitis! lol
I do not know whether you husband has an effusion around his lungs or his
heart, but here is some info on pleural effusion:
_What is Pleural Effusion and What Does it Feel Like?_
(http://www.leukemiasurvivor.co/2013/09/what-is-pleural-effusion-and-what-does.html)
Hope this helps!
Michele
On Mon, Sep 8, 2014 at 9:33 PM, Joyce Mesnarich <[email protected]_
(mailto:[email protected]) > wrote:
Have been reading the reports of various CMLers having side effects from
the various TKIs. Jut wanted to weigh in with my husband's latest
experiences. He was short-winded and family doc ordered a chest X-ray which
revealed some effusion. We reported this to Dr Talpaz (his CML specialist)
and
Dr T wanted him to have an echogram which we were able to do locally with
his regular cardiologist. Dr T said to quit taking Sprycel immediately and
not to continue until he and the cardio conferred. As of now, he will have
another echo in a week to see if there is any change one way or the other.
He has an appointment with Dr Talpaz in Michigan the middle of October and
it sounds like they are going to have him stay off Sprycel until at least
then. It's kind of scary being off the medication that you know is saving
your life. But Dr T is not concerned. Don't know where this is going
next. All part of the journey. Continue to pray for all the warriors out
there.
Thank you for your input.
Joyce in IL
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