And a very good morning to you Jeannie, I hope that your doing well.
As you probably already know I also have a home in Pennsylvania, it is in a small town called Lackawaxen which is near Honesdale and Hawley. It is located in a rustic community called Masthope which is a skiing community on top of a 1,250 foot mountain. Unfortunately I was not able to go there this past summer because I must stay in Florida waiting for a call for a kidney transplant. We usually go up there every summer but I also miss being up there because of the beauty of the area. I am looking to sell it but if I do get the kidney transplant I think I will hold onto it to be able to enjoy our summers up there. Check it out, here is a virtual tour to look at. http://tours.tourfactory.com/tours/tour.asp?t=894374 Jeannie, if your ever up that way when we are there you are always invited. 18's, Marty On Thu, Oct 9, 2014 at 7:57 AM, ICANDOALLTTC via CMLHope < [email protected]> wrote: > Good morning Marty and great one to you I hope! > I will pray for your kidney, and hope the best results for you daily. > I am still hanging in there, and know you miss PA. > That is one beautiful state. > Cooler weather in FL and it is much welcomed. > Love, > Jeanie<3 > > In a message dated 9/22/2014 4:27:49 P.M. Eastern Daylight Time, > [email protected] writes: > > I want to thank everyone for their thoughts and prayers. Hopefully > soon I will finally be able to get a kidney transplant. Until then I > will just have to hold on. > > To answer a question that was asked of me. > > I still have my house in Pennsylvania but I couldn't go there this > summer because I have to wait in Florida for a call for my kidney > transplant. > > 18's > > Marty > > On Mon, Sep 22, 2014 at 8:19 AM, Myvety2k via CMLHope > <[email protected]> wrote: > > Marty, I hoping all goes well for you on the second surgery I know this > > can't be the must fun thing that you want to go through at this point. > I'll > > be thinking of you. I have connections up above, I'm going to put a > word in > > for you so you can get that transplant soon. > > > > Take care, > > greenie > > > > > > > > In a message dated 9/22/2014 7:00:16 A.M. Eastern Daylight Time, > > [email protected] writes: > > > > Beth, I am very pleased to be hearing that your doing so well. May it > > even get better fro you and everyone else. > > > > I just had another round of surgery on my arm to correct the narrowing > > in my blood vessels for the fistula in order to get my dialysis. This > > was done eleven days ago and it still isn't working right so I am now > > scheduled for another round of surgery this tuesday. This will be the > > tenth and it seems that this has been going on every two months so I > > really need that kidney transplant as soon as possible but I still > > haven't heard anything as when. > > > > I can really use everyones prayers on this, and I thank you for them. > > > > 18's, > > > > Marty > > > > On Sun, Sep 21, 2014 at 11:17 PM, bkbarney via CMLHope > > <[email protected]> wrote: > >> HI all. Just wanted to offer my experiece to the mix. I have been on > >> sprycel > >> for 4 years in November, with some breaks for back/neck surgeries > >> unrelated. > >> In the beginning, I did get very mild PE which showed up on a chest xray > >> that was done as a pre-surgery clearance test. It was not major. My doc > >> did > >> but me on furosimide 20 mgs plus potassium daily..and stated I needed to > >> stay ahead of any possible swelling side effects if possible. I eat a > low > >> sodium diet and take this med religiously in the a.m....sprycel before > >> bedtime. I am blessed to have no further issues with any PE for the last > >> 3.5 > >> years. So, in my experience, I believe a daily diuretic with the sprycel > >> has > >> truly helped me. I am also on a low dose which maintains me at barely > >> detectable to undetectable......40 mgs. I am truly blessed. Hope all is > >> well > >> with everyone. I miss you all. Still navigating back issues so not on > line > >> much at all these days...but keep everyone in my thoughts and prayers. > My > >> CML is in good control and I count my blessings....including all of > >> you...take good care. warm regards, a 18 > >> s.....to all of you.... ( marty still prayng for a transplant..for > you..) > >> Beth > >> > >> > >> -----Original Message----- > >> From: LearnToBallroomDanceOnline.com <[email protected]> > >> To: cmlhope <[email protected]>; pkshaub <[email protected]> > >> Sent: Fri, Sep 19, 2014 11:23 am > >> Subject: Re: [CMLHope] Re: Sprycel side effects > >> > >> Hi Peter, > >> > >> While it is true that many develop PE while on Sprycel; the upside is > that > >> the PE often coincides with PCRU! > >> > >> And unfortunately diuretics do not reduce the fluid that actually is in > >> the > >> sac that surrounds your lungs. For me it usually takes a break from > >> Sprycel; > >> I know that many people avoid Sprycel because of this risk, but to me, > the > >> risk of pleural effusion is less of a risk that the ones that come with > >> Tasigna's Black Box Warning. > >> > >> My PE's have been more of an inconvenience at this point and fortunately > >> clear quickly. > >> > >> Best to you all, > >> Michele > >> > >> On Fri, Sep 19, 2014 at 4:54 AM, Peter <[email protected]> wrote: > >>> > >>> From what I have read here and elsewhere, it seems to me that Sprycel > >>> will > >>> definitely cause PE, it is only a question of WHEN, not IF. > >>> For this reason, I have avoided this drug like the plague. Currently, > >>> Tasigna is keeping at a 3.2 log reduction, which is a sub-optimal > >>> response. > >>> My doctor keeps telling me, that PE is "easily controlled with > >>> diuretics". > >>> However, I have not heard this from anybody else. > >>> Does anyone here know anything about the use of diuretics to control > PE? > >>> > >>> Peter > >>> > >>> > >>> On Monday, September 8, 2014 11:33:33 PM UTC-4, grammie wrote: > >>>> > >>>> Have been reading the reports of various CMLers having side effects > from > >>>> the various TKIs. Jut wanted to weigh in with my husband's latest > >>>> experiences. He was short-winded and family doc ordered a chest X-ray > >>>> which > >>>> revealed some effusion. We reported this to Dr Talpaz (his CML > >>>> specialist) > >>>> and Dr T wanted him to have an echogram which we were able to do > locally > >>>> with his regular cardiologist. Dr T said to quit taking Sprycel > >>>> immediately > >>>> and not to continue until he and the cardio conferred. As of now, he > >>>> will > >>>> have another echo in a week to see if there is any change one way or > the > >>>> other. He has an appointment with Dr Talpaz in Michigan the middle of > >>>> October and it sounds like they are going to have him stay off Sprycel > >>>> until > >>>> at least then. It's kind of scary being off the medication that you > >>>> know is > >>>> saving your life. But Dr T is not concerned. Don't know where this > is > >>>> going next. All part of the journey. Continue to pray for all the > >>>> warriors > >>>> out there. > >>>> Thank you for your input. > >>>> Joyce in IL > >>> > >>> -- > >>> -- > >>> [CMLHope] > >>> A support group of http://cmlhope.com > >>> ------------------------------------------------- > >>> > >>> You received this message because you are subscribed to the Google > Groups > >>> "CMLHope" group. > >>> To post to this group, send email to [email protected] > >>> To unsubscribe from this group, send email to > >>> [email protected] > >>> For more options, visit this group at > >>> http://groups.google.com/group/CMLHope > >>> --- > >>> You received this message because you are subscribed to the Google > Groups > >>> "CMLHope" group. > >>> To unsubscribe from this group and stop receiving emails from it, send > an > >>> email to [email protected]. > >>> For more options, visit https://groups.google.com/d/optout. > >> > >> > >> > >> > >> -- > >> [email protected] > >> www.LearntoBallroomDanceOnline.com > >> -- > >> -- > >> [CMLHope] > >> A support group of http://cmlhope.com > >> ------------------------------------------------- > >> > >> You received this message because you are subscribed to the Google > Groups > >> "CMLHope" group. > >> To post to this group, send email to [email protected] > >> To unsubscribe from this group, send email to > >> [email protected] > >> For more options, visit this group at > >> http://groups.google.com/group/CMLHope > >> --- > >> You received this message because you are subscribed to the Google > Groups > >> "CMLHope" group. > >> To unsubscribe from this group and stop receiving emails from it, send > an > >> email to [email protected]. > >> For more options, visit https://groups.google.com/d/optout. > >> > >> -- > >> -- > >> [CMLHope] > >> A support group of http://cmlhope.com > >> ------------------------------------------------- > >> > >> You received this message because you are subscribed to the Google > Groups > >> "CMLHope" group. > >> To post to this group, 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