Very nice place in Pennsylvania, Marty!!!! I am assuming the country club membership is over and above the cost of the house. Lovely lake. I'm praying you get that transplant!!!
Susan F. Zimmerman "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 -----Original Message----- From: Marty Gartenberg <[email protected]> To: cmlhope <[email protected]> Sent: Thu, Oct 9, 2014 8:49 am Subject: Re: [CMLHope] Re: Sprycel side effects marty And a very good morning to you Jeannie, I hope that your doing well. As you probably already know I also have a home in Pennsylvania, it is in a small town called Lackawaxen which is near Honesdale and Hawley. It is located in a rustic community called Masthope which is a skiing community on top of a 1,250 foot mountain. Unfortunately I was not able to go there this past summer because I must stay in Florida waiting for a call for a kidney transplant. We usually go up there every summer but I also miss being up there because of the beauty of the area. I am looking to sell it but if I do get the kidney transplant I think I will hold onto it to be able to enjoy our summers up there. Check it out, here is a virtual tour to look at. http://tours.tourfactory.com/tours/tour.asp?t=894374 Jeannie, if your ever up that way when we are there you are always invited. 18's, Marty On Thu, Oct 9, 2014 at 7:57 AM, ICANDOALLTTC via CMLHope <[email protected]> wrote: Good morning Marty and great one to you I hope! I will pray for your kidney, and hope the best results for you daily. I am still hanging in there, and know you miss PA. That is one beautiful state. Cooler weather in FL and it is much welcomed. Love, Jeanie<3 In a message dated 9/22/2014 4:27:49 P.M. Eastern Daylight Time, [email protected] writes: I want to thank everyone for their thoughts and prayers. Hopefully soon I will finally be able to get a kidney transplant. Until then I will just have to hold on. To answer a question that was asked of me. I still have my house in Pennsylvania but I couldn't go there this summer because I have to wait in Florida for a call for my kidney transplant. 18's Marty On Mon, Sep 22, 2014 at 8:19 AM, Myvety2k via CMLHope <[email protected]> wrote: > Marty, I hoping all goes well for you on the second surgery I know this > can't be the must fun thing that you want to go through at this point. I'll > be thinking of you. I have connections up above, I'm going to put a word in > for you so you can get that transplant soon. > > Take care, > greenie > > > > In a message dated 9/22/2014 7:00:16 A.M. Eastern Daylight Time, > [email protected] writes: > > Beth, I am very pleased to be hearing that your doing so well. May it > even get better fro you and everyone else. > > I just had another round of surgery on my arm to correct the narrowing > in my blood vessels for the fistula in order to get my dialysis. This > was done eleven days ago and it still isn't working right so I am now > scheduled for another round of surgery this tuesday. This will be the > tenth and it seems that this has been going on every two months so I > really need that kidney transplant as soon as possible but I still > haven't heard anything as when. > > I can really use everyones prayers on this, and I thank you for them. > > 18's, > > Marty > > On Sun, Sep 21, 2014 at 11:17 PM, bkbarney via CMLHope > <[email protected]> wrote: >> HI all. Just wanted to offer my experiece to the mix. I have been on >> sprycel >> for 4 years in November, with some breaks for back/neck surgeries >> unrelated. >> In the beginning, I did get very mild PE which showed up on a chest xray >> that was done as a pre-surgery clearance test. It was not major. My doc >> did >> but me on furosimide 20 mgs plus potassium daily..and stated I needed to >> stay ahead of any possible swelling side effects if possible. I eat a low >> sodium diet and take this med religiously in the a.m....sprycel before >> bedtime. I am blessed to have no further issues with any PE for the last >> 3.5 >> years. So, in my experience, I believe a daily diuretic with the sprycel >> has >> truly helped me. I am also on a low dose which maintains me at barely >> detectable to undetectable......40 mgs. I am truly blessed. Hope all is >> well >> with everyone. I miss you all. Still navigating back issues so not on >> line >> much at all these days...but keep everyone in my thoughts and prayers. My >> CML is in good control and I count my blessings....including all of >> you...take good care. warm regards, a 18 >> s.....to all of you.... ( marty still prayng for a transplant..for you..) >> Beth >> >> >> -----Original Message----- >> From: LearnToBallroomDanceOnline.com <[email protected]> >> To: cmlhope <[email protected]>; pkshaub <[email protected]> >> Sent: Fri, Sep 19, 2014 11:23 am >> Subject: Re: [CMLHope] Re: Sprycel side effects >> >> Hi Peter, >> >> While it is true that many develop PE while on Sprycel; the upside is that >> the PE often coincides with PCRU! >> >> And unfortunately diuretics do not reduce the fluid that actually is in >> the >> sac that surrounds your lungs. For me it usually takes a break from >> Sprycel; >> I know that many people avoid Sprycel because of this risk, but to me, the >> risk of pleural effusion is less of a risk that the ones that come with >> Tasigna's Black Box Warning. >> >> My PE's have been more of an inconvenience at this point and fortunately >> clear quickly. >> >> Best to you all, >> Michele >> >> On Fri, Sep 19, 2014 at 4:54 AM, Peter <[email protected]> wrote: >>> >>> From what I have read here and elsewhere, it seems to me that Sprycel >>> will >>> definitely cause PE, it is only a question of WHEN, not IF. >>> For this reason, I have avoided this drug like the plague. Currently, >>> Tasigna is keeping at a 3.2 log reduction, which is a sub-optimal >>> response. >>> My doctor keeps telling me, that PE is "easily controlled with >>> diuretics". >>> However, I have not heard this from anybody else. >>> Does anyone here know anything about the use of diuretics to control PE? >>> >>> Peter >>> >>> >>> On Monday, September 8, 2014 11:33:33 PM UTC-4, grammie wrote: >>>> >>>> Have been reading the reports of various CMLers having side effects >>>> from >>>> the various TKIs. Jut wanted to weigh in with my husband's latest >>>> experiences. He was short-winded and family doc ordered a chest X-ray >>>> which >>>> revealed some effusion. We reported this to Dr Talpaz (his CML >>>> specialist) >>>> and Dr T wanted him to have an echogram which we were able to do >>>> locally >>>> with his regular cardiologist. Dr T said to quit taking Sprycel >>>> immediately >>>> and not to continue until he and the cardio conferred. As of now, he >>>> will >>>> have another echo in a week to see if there is any change one way or the >>>> other. He has an appointment with Dr Talpaz in Michigan the middle of >>>> October and it sounds like they are going to have him stay off Sprycel >>>> until >>>> at least then. It's kind of scary being off the medication that you >>>> know is >>>> saving your life. But Dr T is not concerned. Don't know where this is >>>> going next. All part of the journey. Continue to pray for all the >>>> warriors >>>> out there. >>>> Thank you for your input. >>>> Joyce in IL >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> >> >> >> -- >> [email protected] >> www.LearntoBallroomDanceOnline.com >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
