Hi Susan, Actually there is no country club there, just a nice rustic community with lots of space between the houses. The membership dues is also surprisingly very low.
I have the house for more then 26 years and did tons of improvements on it. Once I can hopefully get that kidney transplant, and heal I am going back there and spend some time relaxing. Thank you for your prayers. I am also praying for everyone that is suffering from CML. I keep on saying that a cure is coming soon. 18's, Marty On Thu, Oct 9, 2014 at 5:42 PM, 'Susan Zimmerman' via CMLHope < [email protected]> wrote: > Very nice place in Pennsylvania, Marty!!!! I am assuming the country club > membership is over and above the cost of the house. > Lovely lake. I'm praying you get that transplant!!! > > > Susan F. Zimmerman > "Look among the nations and watch; be utterly astounded! For I will work > a work in your days which you would not believe, though it were told you." > Hab. 1:5 > > > -----Original Message----- > From: Marty Gartenberg <[email protected]> > To: cmlhope <[email protected]> > Sent: Thu, Oct 9, 2014 8:49 am > Subject: Re: [CMLHope] Re: Sprycel side effects marty > > And a very good morning to you Jeannie, > > I hope that your doing well. > > As you probably already know I also have a home in Pennsylvania, it is > in a small town called Lackawaxen which is near Honesdale and Hawley. It is > located in a rustic community called Masthope which is a skiing community > on top of a 1,250 foot mountain. > > Unfortunately I was not able to go there this past summer because I must > stay in Florida waiting for a call for a kidney transplant. We usually go > up there every summer but I also miss being up there because of the beauty > of the area. > > I am looking to sell it but if I do get the kidney transplant I think I > will hold onto it to be able to enjoy our summers up there. > > Check it out, here is a virtual tour to look at. > > http://tours.tourfactory.com/tours/tour.asp?t=894374 > > > Jeannie, if your ever up that way when we are there you are always > invited. > > > 18's, > > Marty > > > > On Thu, Oct 9, 2014 at 7:57 AM, ICANDOALLTTC via CMLHope < > [email protected]> wrote: > >> Good morning Marty and great one to you I hope! >> I will pray for your kidney, and hope the best results for you daily. >> I am still hanging in there, and know you miss PA. >> That is one beautiful state. >> Cooler weather in FL and it is much welcomed. >> Love, >> Jeanie<3 >> >> In a message dated 9/22/2014 4:27:49 P.M. Eastern Daylight Time, >> [email protected] writes: >> >> I want to thank everyone for their thoughts and prayers. Hopefully >> soon I will finally be able to get a kidney transplant. Until then I >> will just have to hold on. >> >> To answer a question that was asked of me. >> >> I still have my house in Pennsylvania but I couldn't go there this >> summer because I have to wait in Florida for a call for my kidney >> transplant. >> >> 18's >> >> Marty >> >> On Mon, Sep 22, 2014 at 8:19 AM, Myvety2k via CMLHope >> <[email protected]> wrote: >> > Marty, I hoping all goes well for you on the second surgery I know this >> > can't be the must fun thing that you want to go through at this point. >> I'll >> > be thinking of you. I have connections up above, I'm going to put a >> word in >> > for you so you can get that transplant soon. >> > >> > Take care, >> > greenie >> > >> > >> > >> > In a message dated 9/22/2014 7:00:16 A.M. Eastern Daylight Time, >> > [email protected] writes: >> > >> > Beth, I am very pleased to be hearing that your doing so well. May it >> > even get better fro you and everyone else. >> > >> > I just had another round of surgery on my arm to correct the narrowing >> > in my blood vessels for the fistula in order to get my dialysis. This >> > was done eleven days ago and it still isn't working right so I am now >> > scheduled for another round of surgery this tuesday. This will be the >> > tenth and it seems that this has been going on every two months so I >> > really need that kidney transplant as soon as possible but I still >> > haven't heard anything as when. >> > >> > I can really use everyones prayers on this, and I thank you for them. >> > >> > 18's, >> > >> > Marty >> > >> > On Sun, Sep 21, 2014 at 11:17 PM, bkbarney via CMLHope >> > <[email protected]> wrote: >> >> HI all. Just wanted to offer my experiece to the mix. I have been on >> >> sprycel >> >> for 4 years in November, with some breaks for back/neck surgeries >> >> unrelated. >> >> In the beginning, I did get very mild PE which showed up on a chest >> xray >> >> that was done as a pre-surgery clearance test. It was not major. My doc >> >> did >> >> but me on furosimide 20 mgs plus potassium daily..and stated I needed >> to >> >> stay ahead of any possible swelling side effects if possible. I eat a >> low >> >> sodium diet and take this med religiously in the a.m....sprycel before >> >> bedtime. I am blessed to have no further issues with any PE for the >> last >> >> 3.5 >> >> years. So, in my experience, I believe a daily diuretic with the >> sprycel >> >> has >> >> truly helped me. I am also on a low dose which maintains me at barely >> >> detectable to undetectable......40 mgs. I am truly blessed. Hope all is >> >> well >> >> with everyone. I miss you all. Still navigating back issues so not on >> line >> >> much at all these days...but keep everyone in my thoughts and prayers. >> My >> >> CML is in good control and I count my blessings....including all of >> >> you...take good care. warm regards, a 18 >> >> s.....to all of you.... ( marty still prayng for a transplant..for >> you..) >> >> Beth >> >> >> >> >> >> -----Original Message----- >> >> From: LearnToBallroomDanceOnline.com <[email protected]> >> >> To: cmlhope <[email protected]>; pkshaub <[email protected]> >> >> Sent: Fri, Sep 19, 2014 11:23 am >> >> Subject: Re: [CMLHope] Re: Sprycel side effects >> >> >> >> Hi Peter, >> >> >> >> While it is true that many develop PE while on Sprycel; the upside is >> that >> >> the PE often coincides with PCRU! >> >> >> >> And unfortunately diuretics do not reduce the fluid that actually is in >> >> the >> >> sac that surrounds your lungs. For me it usually takes a break from >> >> Sprycel; >> >> I know that many people avoid Sprycel because of this risk, but to me, >> the >> >> risk of pleural effusion is less of a risk that the ones that come with >> >> Tasigna's Black Box Warning. >> >> >> >> My PE's have been more of an inconvenience at this point and >> fortunately >> >> clear quickly. >> >> >> >> Best to you all, >> >> Michele >> >> >> >> On Fri, Sep 19, 2014 at 4:54 AM, Peter <[email protected]> wrote: >> >>> >> >>> From what I have read here and elsewhere, it seems to me that Sprycel >> >>> will >> >>> definitely cause PE, it is only a question of WHEN, not IF. >> >>> For this reason, I have avoided this drug like the plague. Currently, >> >>> Tasigna is keeping at a 3.2 log reduction, which is a sub-optimal >> >>> response. >> >>> My doctor keeps telling me, that PE is "easily controlled with >> >>> diuretics". >> >>> However, I have not heard this from anybody else. >> >>> Does anyone here know anything about the use of diuretics to control >> PE? >> >>> >> >>> Peter >> >>> >> >>> >> >>> On Monday, September 8, 2014 11:33:33 PM UTC-4, grammie wrote: >> >>>> >> >>>> Have been reading the reports of various CMLers having side effects >> from >> >>>> the various TKIs. Jut wanted to weigh in with my husband's latest >> >>>> experiences. He was short-winded and family doc ordered a chest >> X-ray >> >>>> which >> >>>> revealed some effusion. We reported this to Dr Talpaz (his CML >> >>>> specialist) >> >>>> and Dr T wanted him to have an echogram which we were able to do >> locally >> >>>> with his regular cardiologist. Dr T said to quit taking Sprycel >> >>>> immediately >> >>>> and not to continue until he and the cardio conferred. As of now, he >> >>>> will >> >>>> have another echo in a week to see if there is any change one way or >> the >> >>>> other. He has an appointment with Dr Talpaz in Michigan the middle >> of >> >>>> October and it sounds like they are going to have him stay off >> Sprycel >> >>>> until >> >>>> at least then. It's kind of scary being off the medication that you >> >>>> know is >> >>>> saving your life. But Dr T is not concerned. Don't know where this >> is >> >>>> going next. All part of the journey. Continue to pray for all the >> >>>> warriors >> >>>> out there. >> >>>> Thank you for your input. >> >>>> Joyce in IL >> >>> >> >>> -- >> >>> -- >> >>> [CMLHope] >> >>> A support group of http://cmlhope.com >> >>> ------------------------------------------------- >> >>> >> >>> You received this message because you are subscribed to the Google >> Groups >> >>> "CMLHope" group. >> >>> To post to this group, send email to [email protected] >> >>> To unsubscribe from this group, send email to >> >>> [email protected] >> >>> For more options, visit this group at >> >>> http://groups.google.com/group/CMLHope >> >>> --- >> >>> You received this message because you are subscribed to the Google >> Groups >> >>> "CMLHope" group. >> >>> To unsubscribe from this group and stop receiving emails from it, >> send an >> >>> email to [email protected]. >> >>> For more options, visit https://groups.google.com/d/optout. >> >> >> >> >> >> >> >> >> >> -- >> >> [email protected] >> >> 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