Marty, Susan, Angie and Jeanie, thank you for your input. It is greatly appreciated.
I will wait until I meet with my Hematologist in January and pass this question by him. I'll let you know what he says. Thanks, Peter On Wednesday, December 10, 2014 4:03:15 PM UTC-5, wa2yyx wrote: > > Hi Peter, > > Just for your information. I recently had that vaccine and it had to be > done in order for me to be on the kidney transplant list. I am listed at > three different transplant hospitals in Florida, and only one had asked > that I get it. > > Since I had a bone marrow transplant more then 25 years ago I lo longer > have CML and my tests are always PCRU. I know that I have a depressed > immune system and that shingles vaccine had no adverse effects on me except > for general swelling and some pain at the injection site that lasted for > several days.. > > By the way that shot is very expensive and it not covered by my Medicare > but my secondary was able to pick a small amount up which surprised me > because they usually won't pay anything unless Medicare picks it up at 80% > first which I already mentioned that they did not. > > I think that you may want to run it by your ONC because if you do get the > Shingles you will be in some horrible pain. > > Good luck. > > 18's, > > Marty > > On Wed, Dec 10, 2014 at 11:06 AM, Peter <[email protected] <javascript:>> > wrote: > >> Hi everybody. >> Has anyone here received the shingles vaccine Zostavax? >> The question is whether it is safe for CML patients. The info I have >> found is not 100% clear. The answers range from "should not" to "not >> recommended" to "may be given..". (See below) >> >> *Manufacturer (Merck)* >> http://www.merck.com/product/usa/pi_circulars/z/zostavax/zostavax_ppi.pdf >> You should not get ZOSTAVAX if you have a weakened immune system (for >> example, >> an immune deficiency, leukemia, lymphoma, or HIV/AIDS). >> >> *Public Health Canada* >> http://www.phac-aspc.gc.ca/publicat/cig-gci/p04-herp-zona-eng.php >> HZ vaccine is contraindicated in people with immunodeficiency due to >> acute or chronic leukemia. However, persons with leukemia in remission and >> who have not received immunosuppressive chemotherapy or radiation for at >> least 3 months and who do not have defects in T cell function can receive >> HZ vaccine; consultation with an immunologist may be required. >> >> *Centers for Desease Control* >> http://www.cdc.gov/vaccines/hcp/vis/vis-statements/shingles.pdf >> A person should not get shingles vaccine who cancer affecting the bone >> marrow or lymphatic >> system, such as leukemia or lymphoma. >> >> *Mayo Clinic* >> >> http://www.mayoclinic.org/diseases-conditions/shingles/expert-answers/shingles-vaccine/faq-20057859 >> The shingles vaccine isn't recommended if you have cancer that affects >> the bone marrow or lymphatic system, such as leukemia or lymphoma. >> >> *National CML Society* >> http://www.nationalcmlsociety.org/faq/immunizations >> Using the most current infectious disease guidelines, Zostavax (shingles >> vaccine) may be given to CML patients who are stable and not experiencing >> any evidence of relapse or progression, and who do not have other immune >> suppressive issues such as recent requirements for high dose >> corticosteroids. >> Individuals with CML who have restored and stable immune systems are >> eligible to receive the shingles vaccine if APPROVED BY THEIR CML >> SPECIALIST, since it contains elements of live virus. It is safe, however, >> for family members or those in close contact with CML patients to receive >> the vaccination. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> <javascript:> >> To unsubscribe from this group, send email to >> [email protected] <javascript:> >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected] <javascript:>. >> For more options, visit https://groups.google.com/d/optout. >> > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
