Hi, Peter. I had a shingles shot 2 years go and have had no problems. I was and still am off TKI's. I am I the process of getting approved the prescription approved, but that has turned into a circus. Reading the posts every day.
Richard H. Marty, Susan, Angie and Jeanie, thank you for your input. It is greatly > appreciated. > > I will wait until I meet with my Hematologist in January and pass this > question by him. > I'll let you know what he says. > > Thanks, > Peter > > > On Wednesday, December 10, 2014 4:03:15 PM UTC-5, wa2yyx wrote: >> >> Hi Peter, >> >> Just for your information. I recently had that vaccine and it had to be >> done in order for me to be on the kidney transplant list. I am listed at >> three different transplant hospitals in Florida, and only one had asked >> that I get it. >> >> Since I had a bone marrow transplant more then 25 years ago I lo longer >> have CML and my tests are always PCRU. I know that I have a depressed >> immune system and that shingles vaccine had no adverse effects on me except >> for general swelling and some pain at the injection site that lasted for >> several days.. >> >> By the way that shot is very expensive and it not covered by my Medicare >> but my secondary was able to pick a small amount up which surprised me >> because they usually won't pay anything unless Medicare picks it up at 80% >> first which I already mentioned that they did not. >> >> I think that you may want to run it by your ONC because if you do get the >> Shingles you will be in some horrible pain. >> >> Good luck. >> >> 18's, >> >> Marty >> >> On Wed, Dec 10, 2014 at 11:06 AM, Peter <[email protected]> wrote: >> >>> Hi everybody. >>> Has anyone here received the shingles vaccine Zostavax? >>> The question is whether it is safe for CML patients. The info I have >>> found is not 100% clear. The answers range from "should not" to "not >>> recommended" to "may be given..". (See below) >>> >>> *Manufacturer (Merck)* >>> http://www.merck.com/product/usa/pi_circulars/z/zostavax/zostavax_ppi.pdf >>> You should not get ZOSTAVAX if you have a weakened immune system (for >>> example, >>> an immune deficiency, leukemia, lymphoma, or HIV/AIDS). >>> >>> *Public Health Canada* >>> http://www.phac-aspc.gc.ca/publicat/cig-gci/p04-herp-zona-eng.php >>> HZ vaccine is contraindicated in people with immunodeficiency due to >>> acute or chronic leukemia. However, persons with leukemia in remission and >>> who have not received immunosuppressive chemotherapy or radiation for at >>> least 3 months and who do not have defects in T cell function can receive >>> HZ vaccine; consultation with an immunologist may be required. >>> >>> *Centers for Desease Control* >>> http://www.cdc.gov/vaccines/hcp/vis/vis-statements/shingles.pdf >>> A person should not get shingles vaccine who cancer affecting the bone >>> marrow or lymphatic >>> system, such as leukemia or lymphoma. >>> >>> *Mayo Clinic* >>> >>> http://www.mayoclinic.org/diseases-conditions/shingles/expert-answers/shingles-vaccine/faq-20057859 >>> The shingles vaccine isn't recommended if you have cancer that affects >>> the bone marrow or lymphatic system, such as leukemia or lymphoma. >>> >>> *National CML Society* >>> http://www.nationalcmlsociety.org/faq/immunizations >>> Using the most current infectious disease guidelines, Zostavax (shingles >>> vaccine) may be given to CML patients who are stable and not experiencing >>> any evidence of relapse or progression, and who do not have other immune >>> suppressive issues such as recent requirements for high dose >>> corticosteroids. >>> Individuals with CML who have restored and stable immune systems are >>> eligible to receive the shingles vaccine if APPROVED BY THEIR CML >>> SPECIALIST, since it contains elements of live virus. It is safe, however, >>> for family members or those in close contact with CML patients to receive >>> the vaccination. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
