The old year is ebbing away quickly! Hope everyone had a happy holiday season
so far, with their families and friends. And Wayne and I wish you all a very
happy new year and enjoy the best health we can. Wayne is due to go to see Dr
Talpaz the middle of Jan to see what comes next for him. He was taken off
Sprycel about 3 months ago when he had an episode of plural effusion. They put
him on prednisone for about 3 weeks which totally messed up his diabetes and
blood pressure as well as the warfarin he is on for afib. The good thing is he
had no arthritis pain while on prednisone. He was to have an echo cardiogram
last Fri but we BOTH came down with the stomach flu and had to cancel. With
the holiday, I will have to call Monday and reschedule. Just an update from
southern Illinois.
Joyce in IL
On Dec 27, 2014, at 4:42 PM, 'Icandoallttc' via CMLHope wrote:
> Thanks for the update Beth.
> Thinking of you and good luck with everything.
> Blessing
> Jeanie
>
> Sent from my iPhone
>
> On Dec 27, 2014, at 5:28 PM, bkbarney via CMLHope <[email protected]>
> wrote:
>
>> Dear CML warriors, friends..my cml family here...too many names to list.
>> ...but I am wishing all of you a happy and healthy New Year.
>>
>> Jeannie,- I am not back on. Did BCR-ABL yesterday at U of C. Will get
>> results in ten days and then proceed. They want me to try ponatinib at 15
>> and see if I have the same how I feel on it and how it works for me. So, I
>> am thinking about swapping and trying.
>> In the mean time, i am going to the Mayo clinic on Monday...BRRRRRRRR very
>> cold there..but they had a cancellation and I got in. Hope to get help to
>> understand what auto immune/ neuro muscular issues I have, so we can treat
>> them. If I could treat them successfully and stay with sprycel. that would
>> be optimum since I know it works for me. but I also believe, over time it
>> has left me with these other issues which are getting worse month by
>> month...even if they could level off and just stay put..and not get any
>> worse. that would be such a blessing...
>>
>> in any case, I am thinking of everyone. please send a pray this week that
>> the good docs at May can figure it out.
>>
>> big hug,
>>
>> Beth.
>>
>> -----Original Message-----
>> From: 'Icandoallttc' via CMLHope <[email protected]>
>> To: cmlhope <[email protected]>
>> Sent: Sat, Dec 27, 2014 2:00 pm
>> Subject: [CMLHope] Beth are you back on sprycel?
>>
>>
>> Hi all
>> I hope everyone is good.
>> Beth, are you back on sprycel?? Just wondering how you are.
>> Richard, have you started your Gleevec and how are you?
>> Blessings
>> Jeanie
>> Sent from my iPhone
>>
>> On Dec 25, 2014, at 7:45 PM, Richard H <[email protected]> wrote:
>>
>>> Thank you, Marti.
>>>
>>> On Thursday, December 25, 2014 6:32:01 PM UTC-6, [email protected] wrote:
>>> Loved it, Marty!!!! Happy New Year to you as well and may all of you folks
>>> out there live every day to the fullest, enjoying the magnificence of this
>>> world God has made!
>>>
>>> 18's,
>>> Susan F. Zimmerman
>>>
>>>
>>> -----Original Message-----
>>> From: Marty Gartenberg <[email protected]>
>>> To: CMLHope <[email protected]>
>>> Sent: Thu, Dec 25, 2014 3:52 pm
>>> Subject: [CMLHope] The Daffodil Principal. You will need a pps viewer to
>>> see this.
>>>
>>> This New Year is just about upon us. Live like you have never lived before.
>>> Make sure to live each day and enjoy your life. That old saying goes don't
>>> put off what you can do today.
>>>
>>> I wish everyone that is reading this a very healthy and happy New Year.
>>>
>>> 18's,
>>>
>>> Marty
>>> --
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>
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