Thanks Tracy I has been so tired lately. I knew something was wrong. Blessings Jeanie🐟
Sent from my iPhone > On Jan 8, 2015, at 1:23 PM, Tracie Camlin <[email protected]> wrote: > > Sending you prayers! > >> On Jan 8, 2015 12:21 PM, "'Icandoallttc' via CMLHope" >> <[email protected]> wrote: >> Just got back from Moffitt. All counts were up and uremic acid was high. >> Dr took me off sprycel and put me on Hydrea, and other drugs. Took another >> blood test for mutant. Will know next week if mutant is problem. >> Pray for me and all in need. >> Jeanie🐟 >> >> Sent from my iPhone >> >>> On Jan 8, 2015, at 11:07 AM, Marty Gartenberg <[email protected]> wrote: >>> >>> Hi again Sherri, >>> >>> Hopefully you will be able to be treated for this condition. It seems that >>> as most of us get older we start suffering from some very unusual things, >>> but that is the price we must pay to remain alive. We just have to do >>> whatever we can to keep on going because we have no other choice. >>> >>> My kidneys failed four years ago and I must be on dialysis because it is >>> keeping me alive until I can hopefully receive a kidney transplant. >>> >>> This happened because when I received a bone marrow transplant more then 25 >>> years all of the radiation and chemotherapy started to destroy my kidneys, >>> but i'm still alive today because of it. We all have our own battles in >>> life and that is just the way it is. >>> >>> I wish you much health and happiness in this New Year. >>> >>> 18's, >>> >>> Marty >>> >>>> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson >>>> <[email protected]> wrote: >>>> Hi Marty, >>>> >>>> Happy New Year. I hope you are well. Thanks for the research I enjoyed >>>> article. I could only wish it was as simple as being as side effect of my >>>> TKI. In my case, nothing is ever simple LOL. What I have is called >>>> Autonomic Neuropathy. Basically, my Autonomic Nervous System has >>>> malfunctioned. Here is a link for you to read if you would like to. >>>> >>>> http://en.wikipedia.org/wiki/Dysautonomia >>>> >>>> In a nutshell, Autonomic Neuropathy is a nerve disorder that affects >>>> involuntary body functions, including heart rate, blood pressure, >>>> perspiration and digestion. >>>> It isn't a specific disease. Autonomic Neuropathy refers to damage to the >>>> autonomic nerves. This damage disrupts signals between the brain and >>>> portions of the autonomic nervous system, such as the heart, blood vessels >>>> and sweat glands. This can cause decreased or abnormal performance of one >>>> or more involuntary body functions. >>>> >>>> Autonomic Neuropathy can be a complication of a number of diseases and >>>> conditions. And some medications can cause autonomic neuropathy as a side >>>> effect. Signs, symptoms and treatment of autonomic neuropathy vary >>>> depending on the cause, and on which nerves are affected. >>>> >>>> L'Chaim, >>>> >>>> Sherri >>>> >>>> >>>> >>>> >>>> >>>> >>>>> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <[email protected]> wrote: >>>>> Hi Sherri, >>>>> >>>>> I did a little research on your no sweating problem, and it is probably a >>>>> side effect of your TKI treatment. >>>>> >>>>> I also ran across an article which you can read here. It does mention >>>>> something about the lack of sweating. It probably has nothing to do with >>>>> your problem but maybe you should read it anyway. >>>>> >>>>> http://en.wikipedia.org/wiki/Fabry_disease >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson >>>>>> <[email protected]> wrote: >>>>>> Hello, >>>>>> >>>>>> I've had CML for 12 years and I've taken Gleevec for those 12 years. >>>>>> I've also experienced night sweats for many years. At first I was told >>>>>> that it was due to menopause because of my age at the time. Go figure. >>>>>> When that was no longer an option, the only thing left was the Gleevec. >>>>>> Since being dx'd with the CML in 2003, I've been dx'd with other chronic >>>>>> illnesses that are just as serious. >>>>>> >>>>>> With these new illnesses came a new problem. I no longer sweat at all. >>>>>> So now I have the complete opposite problem. No matter how hot it is, I >>>>>> never sweat. I a way, it's nice because I'm always cold and I long for >>>>>> very hot days so I can go out side in the heat. But my oncologist has >>>>>> warned me to not do it for very long as I have no way to control my body >>>>>> temperature. Unfortunately, it works the same way with the cold. My >>>>>> body temperature is a constant 95 degrees. >>>>>> >>>>>> So, in answer to your question, yes, the Gleevec does cause night >>>>>> sweats. It is one of its side effects. Unfortunately, I was not able to >>>>>> find a remedy for my night sweats other than going to the extreme which >>>>>> I do not recommend. <332.png> >>>>>> >>>>>> I hope everyone has a good New Year and is healthy. Keep my posted as >>>>>> to what you find out. Even thought I no long have this issue, I would >>>>>> still like to be kept in the loop. >>>>>> >>>>>> L'chaim >>>>>> >>>>>> Sherri >>>>>> >>>>>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope >>>>>>> <[email protected]> wrote: >>>>>>> Hello, Susan. Gosh, we are just sweating through this it seems. I will >>>>>>> see what may be available naturally, as I don't want hormones either. >>>>>>> Sorry you are experiencing this same problem which I hope to solve. >>>>>>> >>>>>>> Best wishes to you, Roy and your beautiful family for a blessed New >>>>>>> Year. >>>>>>> >>>>>>> Marcie >>>>>>> >>>>>>> Sent from my iPad >>>>>>> >>>>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope" >>>>>>>> <[email protected]> wrote: >>>>>>>> >>>>>>>> Dear Marcie, >>>>>>>> >>>>>>>> I have had night sweats for years, intensifying after my dx in 2005. >>>>>>>> I have day sweats, too. When I stand up for more than five minutes to >>>>>>>> do anything at all I start profusely sweating from weakness. I think >>>>>>>> part of this is from the bosulif, but most is from the stroke weakness >>>>>>>> and need for hormones. I will not take artificial hormones and have >>>>>>>> not gotten the good kind that are specially made for each person. I >>>>>>>> totally sympathize with you Marcie. You might want to go to a >>>>>>>> naturalist doctor about getting a test for hormones and then they will >>>>>>>> make a compound for you of cream that usually works. Regular md's >>>>>>>> only know to prescribe the synthetic or horse hormones which do cause >>>>>>>> cancer. That's my take on it, hope you find some relief!!! >>>>>>>> >>>>>>>> Thanks for your always uplifting posts! Happy New Year to you, too! >>>>>>>> Susan F. Zimmerman >>>>>>>> >>>>>>>> >>>>>>>> -----Original Message----- >>>>>>>> From: 'Marcie Goodman' via CMLHope <[email protected]> >>>>>>>> To: cmlhope <[email protected]> >>>>>>>> Sent: Mon, Jan 5, 2015 8:41 am >>>>>>>> Subject: [CMLHope] Night Sweats >>>>>>>> >>>>>>>> Happy New Year, dear friends. I'm wondering if any of you suffer with >>>>>>>> night >>>>>>>> sweats as a side effect of your TKI. I do, and have, over the years >>>>>>>> of my >>>>>>>> treatment. I don't know that it is happening more frequently but the >>>>>>>> sweats seem >>>>>>>> to be more intense. Is there anything that you know of that will help? >>>>>>>> >>>>>>>> Many thanks for always being there to offer encouragement and >>>>>>>> assistance. >>>>>>>> >>>>>>>> Marcie >>>>>>>> >>>>>>>> Sent from my iPad >>>>>>>> >>>>>>>> -- >>>>>>>> -- >>>>>>>> [CMLHope] >>>>>>>> A support group of http://cmlhope.com >>>>>>>> ------------------------------------------------- >>>>>>>> >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups >>>>>>>> "CMLHope" group. >>>>>>>> To post to this group, send email to [email protected] >>>>>>>> To unsubscribe from this group, send email to >>>>>>>> [email protected] >>>>>>>> For more options, visit this group at >>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups >>>>>>>> "CMLHope" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>>> an email >>>>>>>> to [email protected]. >>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>> -- >>>>>>>> -- >>>>>>>> [CMLHope] >>>>>>>> A support group of http://cmlhope.com >>>>>>>> ------------------------------------------------- >>>>>>>> >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To post to this group, send email to [email protected] >>>>>>>> To unsubscribe from this group, send email to >>>>>>>> [email protected] >>>>>>>> For more options, visit this group at >>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>>> an email to [email protected]. >>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>> >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> 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