Hi Jeanie, You know that I am praying for you.
18's times two for you. Marty On Thu, Jan 8, 2015 at 1:21 PM, 'Icandoallttc' via CMLHope < [email protected]> wrote: > Just got back from Moffitt. All counts were up and uremic acid was high. > Dr took me off sprycel and put me on Hydrea, and other drugs. Took > another blood test for mutant. Will know next week if mutant is problem. > Pray for me and all in need. > Jeanie[image: 🐟] > > Sent from my iPhone > > On Jan 8, 2015, at 11:07 AM, Marty Gartenberg <[email protected]> wrote: > > Hi again Sherri, > > Hopefully you will be able to be treated for this condition. It seems that > as most of us get older we start suffering from some very unusual things, > but that is the price we must pay to remain alive. We just have to do > whatever we can to keep on going because we have no other choice. > > My kidneys failed four years ago and I must be on dialysis because it is > keeping me alive until I can hopefully receive a kidney transplant. > > This happened because when I received a bone marrow transplant more then > 25 years all of the radiation and chemotherapy started to destroy my > kidneys, but i'm still alive today because of it. We all have our own > battles in life and that is just the way it is. > > I wish you much health and happiness in this New Year. > > 18's, > > Marty > > On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson < > [email protected]> wrote: > >> Hi Marty, >> >> Happy New Year. I hope you are well. Thanks for the research I enjoyed >> article. I could only wish it was as simple as being as side effect of my >> TKI. In my case, nothing is ever simple LOL. What I have is called >> Autonomic Neuropathy. Basically, my Autonomic Nervous System has >> malfunctioned. Here is a link for you to read if you would like to. >> >> http://en.wikipedia.org/wiki/Dysautonomia >> >> In a nutshell, Autonomic Neuropathy is a nerve disorder that affects >> involuntary body functions, including heart rate, blood pressure, >> perspiration and digestion. >> >> It isn't a specific disease. Autonomic Neuropathy refers to damage to the >> autonomic nerves. This damage disrupts signals between the brain and >> portions of the autonomic nervous system, such as the heart, blood vessels >> and sweat glands. This can cause decreased or abnormal performance of one >> or more involuntary body functions. >> >> Autonomic Neuropathy can be a complication of a number of diseases and >> conditions. And some medications can cause autonomic neuropathy as a side >> effect. Signs, symptoms and treatment of autonomic neuropathy vary >> depending on the cause, and on which nerves are affected. >> >> L'Chaim, >> >> Sherri >> >> >> >> >> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <[email protected]> >> wrote: >> >>> Hi Sherri, >>> >>> I did a little research on your no sweating problem, and it is probably >>> a side effect of your TKI treatment. >>> >>> I also ran across an article which you can read here. It does mention >>> something about the lack of sweating. It probably has nothing to do with >>> your problem but maybe you should read it anyway. >>> >>> http://en.wikipedia.org/wiki/Fabry_disease >>> >>> 18's, >>> >>> Marty >>> >>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson < >>> [email protected]> wrote: >>> >>>> Hello, >>>> >>>> I've had CML for 12 years and I've taken Gleevec for those 12 years. >>>> I've also experienced night sweats for many years. At first I was told >>>> that it was due to menopause because of my age at the time. Go figure. When >>>> that was no longer an option, the only thing left was the Gleevec. Since >>>> being dx'd with the CML in 2003, I've been dx'd with other chronic >>>> illnesses that are just as serious. >>>> >>>> With these new illnesses came a new problem. I no longer sweat at all. >>>> So now I have the complete opposite problem. No matter how hot it is, I >>>> never sweat. I a way, it's nice because I'm always cold and I long for very >>>> hot days so I can go out side in the heat. But my oncologist has warned me >>>> to not do it for very long as I have no way to control my body >>>> temperature. Unfortunately, it works the same way with the cold. My body >>>> temperature is a constant 95 degrees. >>>> >>>> So, in answer to your question, yes, the Gleevec does cause night >>>> sweats. It is one of its side effects. Unfortunately, I was not able to >>>> find a remedy for my night sweats other than going to the extreme which I >>>> do not recommend. <332.png> >>>> >>>> I hope everyone has a good New Year and is healthy. Keep my posted as >>>> to what you find out. Even thought I no long have this issue, I would still >>>> like to be kept in the loop. >>>> >>>> L'chaim >>>> >>>> Sherri >>>> >>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope < >>>> [email protected]> wrote: >>>> >>>>> Hello, Susan. Gosh, we are just sweating through this it seems. I will >>>>> see what may be available naturally, as I don't want hormones either. >>>>> Sorry >>>>> you are experiencing this same problem which I hope to solve. >>>>> >>>>> Best wishes to you, Roy and your beautiful family for a blessed New >>>>> Year. >>>>> >>>>> Marcie >>>>> >>>>> Sent from my iPad >>>>> >>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope" < >>>>> [email protected]> wrote: >>>>> >>>>> Dear Marcie, >>>>> >>>>> I have had night sweats for years, intensifying after my dx in 2005. >>>>> I have day sweats, too. When I stand up for more than five minutes to do >>>>> anything at all I start profusely sweating from weakness. I think part of >>>>> this is from the bosulif, but most is from the stroke weakness and need >>>>> for >>>>> hormones. I will not take artificial hormones and have not gotten the >>>>> good >>>>> kind that are specially made for each person. I totally sympathize with >>>>> you Marcie. You might want to go to a naturalist doctor about getting a >>>>> test for hormones and then they will make a compound for you of cream that >>>>> usually works. Regular md's only know to prescribe the synthetic or horse >>>>> hormones which do cause cancer. That's my take on it, hope you find some >>>>> relief!!! >>>>> >>>>> Thanks for your always uplifting posts! Happy New Year to you, too! >>>>> Susan F. Zimmerman >>>>> >>>>> >>>>> -----Original Message----- >>>>> From: 'Marcie Goodman' via CMLHope <[email protected]> >>>>> To: cmlhope <[email protected]> >>>>> Sent: Mon, Jan 5, 2015 8:41 am >>>>> Subject: [CMLHope] Night Sweats >>>>> >>>>> Happy New Year, dear friends. I'm wondering if any of you suffer with >>>>> night >>>>> sweats as a side effect of your TKI. I do, and have, over the years of my >>>>> treatment. I don't know that it is happening more frequently but the >>>>> sweats seem >>>>> to be more intense. Is there anything that you know of that will help? >>>>> >>>>> Many thanks for always being there to offer encouragement and assistance. >>>>> >>>>> Marcie >>>>> >>>>> Sent from my iPad >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email >>>>> to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] 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