Jeanie, Hang in there! I'll say a prayer for you too.
L'chaim Sherri On Thu, Jan 8, 2015 at 10:33 PM, Marty Gartenberg <[email protected]> wrote: > Hi Jeanie, > > You know that I am praying for you. > > 18's times two for you. > > Marty > > On Thu, Jan 8, 2015 at 1:21 PM, 'Icandoallttc' via CMLHope < > [email protected]> wrote: > >> Just got back from Moffitt. All counts were up and uremic acid was high. >> Dr took me off sprycel and put me on Hydrea, and other drugs. Took >> another blood test for mutant. Will know next week if mutant is problem. >> Pray for me and all in need. >> Jeanie[image: 🐟] >> >> Sent from my iPhone >> >> On Jan 8, 2015, at 11:07 AM, Marty Gartenberg <[email protected]> wrote: >> >> Hi again Sherri, >> >> Hopefully you will be able to be treated for this condition. It seems >> that as most of us get older we start suffering from some very unusual >> things, but that is the price we must pay to remain alive. We just have to >> do whatever we can to keep on going because we have no other choice. >> >> My kidneys failed four years ago and I must be on dialysis because it is >> keeping me alive until I can hopefully receive a kidney transplant. >> >> This happened because when I received a bone marrow transplant more then >> 25 years all of the radiation and chemotherapy started to destroy my >> kidneys, but i'm still alive today because of it. We all have our own >> battles in life and that is just the way it is. >> >> I wish you much health and happiness in this New Year. >> >> 18's, >> >> Marty >> >> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson < >> [email protected]> wrote: >> >>> Hi Marty, >>> >>> Happy New Year. I hope you are well. Thanks for the research I enjoyed >>> article. I could only wish it was as simple as being as side effect of my >>> TKI. In my case, nothing is ever simple LOL. What I have is called >>> Autonomic Neuropathy. Basically, my Autonomic Nervous System has >>> malfunctioned. Here is a link for you to read if you would like to. >>> >>> http://en.wikipedia.org/wiki/Dysautonomia >>> >>> In a nutshell, Autonomic Neuropathy is a nerve disorder that affects >>> involuntary body functions, including heart rate, blood pressure, >>> perspiration and digestion. >>> >>> It isn't a specific disease. Autonomic Neuropathy refers to damage to >>> the autonomic nerves. This damage disrupts signals between the brain and >>> portions of the autonomic nervous system, such as the heart, blood vessels >>> and sweat glands. This can cause decreased or abnormal performance of one >>> or more involuntary body functions. >>> >>> Autonomic Neuropathy can be a complication of a number of diseases and >>> conditions. And some medications can cause autonomic neuropathy as a side >>> effect. Signs, symptoms and treatment of autonomic neuropathy vary >>> depending on the cause, and on which nerves are affected. >>> >>> L'Chaim, >>> >>> Sherri >>> >>> >>> >>> >>> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <[email protected]> >>> wrote: >>> >>>> Hi Sherri, >>>> >>>> I did a little research on your no sweating problem, and it is probably >>>> a side effect of your TKI treatment. >>>> >>>> I also ran across an article which you can read here. It does mention >>>> something about the lack of sweating. It probably has nothing to do with >>>> your problem but maybe you should read it anyway. >>>> >>>> http://en.wikipedia.org/wiki/Fabry_disease >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson < >>>> [email protected]> wrote: >>>> >>>>> Hello, >>>>> >>>>> I've had CML for 12 years and I've taken Gleevec for those 12 years. >>>>> I've also experienced night sweats for many years. At first I was told >>>>> that it was due to menopause because of my age at the time. Go figure. >>>>> When >>>>> that was no longer an option, the only thing left was the Gleevec. Since >>>>> being dx'd with the CML in 2003, I've been dx'd with other chronic >>>>> illnesses that are just as serious. >>>>> >>>>> With these new illnesses came a new problem. I no longer sweat at all. >>>>> So now I have the complete opposite problem. No matter how hot it is, I >>>>> never sweat. I a way, it's nice because I'm always cold and I long for >>>>> very >>>>> hot days so I can go out side in the heat. But my oncologist has warned me >>>>> to not do it for very long as I have no way to control my body >>>>> temperature. Unfortunately, it works the same way with the cold. My body >>>>> temperature is a constant 95 degrees. >>>>> >>>>> So, in answer to your question, yes, the Gleevec does cause night >>>>> sweats. It is one of its side effects. Unfortunately, I was not able to >>>>> find a remedy for my night sweats other than going to the extreme which I >>>>> do not recommend. <332.png> >>>>> >>>>> I hope everyone has a good New Year and is healthy. Keep my posted as >>>>> to what you find out. Even thought I no long have this issue, I would >>>>> still >>>>> like to be kept in the loop. >>>>> >>>>> L'chaim >>>>> >>>>> Sherri >>>>> >>>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope < >>>>> [email protected]> wrote: >>>>> >>>>>> Hello, Susan. Gosh, we are just sweating through this it seems. I >>>>>> will see what may be available naturally, as I don't want hormones >>>>>> either. >>>>>> Sorry you are experiencing this same problem which I hope to solve. >>>>>> >>>>>> Best wishes to you, Roy and your beautiful family for a blessed New >>>>>> Year. >>>>>> >>>>>> Marcie >>>>>> >>>>>> Sent from my iPad >>>>>> >>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope" < >>>>>> [email protected]> wrote: >>>>>> >>>>>> Dear Marcie, >>>>>> >>>>>> I have had night sweats for years, intensifying after my dx in >>>>>> 2005. I have day sweats, too. When I stand up for more than five >>>>>> minutes >>>>>> to do anything at all I start profusely sweating from weakness. I think >>>>>> part of this is from the bosulif, but most is from the stroke weakness >>>>>> and >>>>>> need for hormones. I will not take artificial hormones and have not >>>>>> gotten >>>>>> the good kind that are specially made for each person. I totally >>>>>> sympathize with you Marcie. You might want to go to a naturalist doctor >>>>>> about getting a test for hormones and then they will make a compound for >>>>>> you of cream that usually works. Regular md's only know to prescribe the >>>>>> synthetic or horse hormones which do cause cancer. That's my take on it, >>>>>> hope you find some relief!!! >>>>>> >>>>>> Thanks for your always uplifting posts! Happy New Year to you, too! >>>>>> Susan F. Zimmerman >>>>>> >>>>>> >>>>>> -----Original Message----- >>>>>> From: 'Marcie Goodman' via CMLHope <[email protected]> >>>>>> To: cmlhope <[email protected]> >>>>>> Sent: Mon, Jan 5, 2015 8:41 am >>>>>> Subject: [CMLHope] Night Sweats >>>>>> >>>>>> Happy New Year, dear friends. I'm wondering if any of you suffer with >>>>>> night >>>>>> sweats as a side effect of your TKI. I do, and have, over the years of >>>>>> my >>>>>> treatment. I don't know that it is happening more frequently but the >>>>>> sweats seem >>>>>> to be more intense. Is there anything that you know of that will help? >>>>>> >>>>>> Many thanks for always being there to offer encouragement and assistance. >>>>>> >>>>>> Marcie >>>>>> >>>>>> Sent from my iPad >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google Groups >>>>>> "CMLHope" group. >>>>>> To post to this group, send email to [email protected] >>>>>> To unsubscribe from this group, send email to >>>>>> [email protected] >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google Groups >>>>>> "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email >>>>>> to [email protected]. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> >>>>>> 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