Hi Jeanie, Allopurinal only comes in two doses, 100 mg and 300 mg. When someone has CML they produce a lot of uric acid and that is what Allopurinal is for. People that have the gout are often put onto Allopurinal, I know because I am one of them, and I have been taking Allopurinal for many years at 100 mg and I hardly ever get any gout attacks. I was actually started on both Allopurinal and Hydrea when I was first diagnosed with CML.
Don't worry I know that this new TKI will work well for you. How can it not? Remember I am praying for you and just about everyone else on here because what you do in your lifetime that comes from your heart always comes back to you. I would like you to watch this... A Beautiful Short Film https://www.youtube.com/embed/ovj5dzMxzmc?autoplay=1 18's, Marty On Sat, Jan 24, 2015 at 2:51 PM, 'Icandoallttc' via CMLHope < cmlhope@googlegroups.com> wrote: > Hi Marty, > I am finding that out for sure. > The allopurinol is 300 Mgs. Is that high? > I take it once a day. It keeps your kidneys working and cleaning. > These two procedures knocked me for a loop but I'm ok. > Back to doctor mon for blood draw and instructions for ponatinib. > Maybe this new tki will cute me hehe. > Praying for you to get your miracle call soon!! > > > > Blessings Jeanie 18's [image: 🐠][image: 🐠] > > On Jan 24, 2015, at 12:07 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > That is usually what happens with Hydrea. Your counts go down and it > usually takes about a week or so and then your doctor will adjust the > amount. This happened to me many times until I was able to get my bone > marrow transplant. > > Let me ask you a question: Along with the Hydrea are you also taking > Allopurinal? And if so how many mg's. It would be either 100 mg or 300 mg > > 18's, > > Marty > > On Sat, Jan 24, 2015 at 11:45 AM, 'Icandoallttc' via CMLHope < > cmlhope@googlegroups.com> wrote: > >> Thanks Marty. I will try and stay positive. >> I think the problem was that my counts were coming down and he cut back >> on hydrea. >> Looks like I will be one of the pioneers taking ponatinib. Not many >> patients on it. Only one at Moffitt I believe. They are very tiny pills >> but are very potent!!! They cause all the same problems as the other tki >> and you have to be monitored. >> One step for mankind!!!! >> Blessings oh great one❤️❤️ >> Jeanie >> >> >> Sent from my iPhone >> >> On Jan 24, 2015, at 8:41 AM, Marty Gartenberg <wa2...@gmail.com> wrote: >> >> Hi Jeanie, >> >> Don't worry everything will come out alright for you. Sometimes it takes >> a little "fine tuning" with finding the right amount of Hydrea. Remember >> what you take today will start to work in about a week or so. >> >> 18's, >> >> Marty >> >> On Sat, Jan 24, 2015 at 2:12 AM, Joyce Mesnarich <joy...@htc.net> wrote: >> >>> Jeanie, >>> Beth said it well. Wonder if the inflamed stomach was caused by the >>> hydrea. Sorry you have to take even more. This, too, shall pass. Is >>> ponatinib the same as iclusig? (Spelling may be wrong) >>> God bless and keep you. >>> Joyce in IL >>> >>> >>> On Jan 22, 2015, at 5:49 PM, bkbarney via CMLHope wrote: >>> >>> Thinking of you Jeannie, sending you lots of peaceful, warm thoughts, >>> prayers and hugs. You are a real trouper.. a true warrior. We all love >>> you...and admire you...Rest yourself. take good care..keep us posted. Beth >>> >>> >>> -----Original Message----- >>> From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> >>> To: cmlhope <cmlhope@googlegroups.com> >>> Sent: Thu, Jan 22, 2015 5:37 pm >>> Subject: Re: [CMLHope] Big test today >>> >>> Endoscopy was kk--put me to sleep --inflamed stomach. >>> Platelets had gone high again. Increased hydrea till mon. More test. >>> Got my ponatinib. Or it is coming in the mail. Wait and see right >>> now. >>> Tired blessings >>> Jeanie >>> >>> Sent from my iPhone >>> >>> On Jan 22, 2015, at 6:28 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>> >>> Hi Greenie, >>> >>> You have me beat hands down. I used to call them a real pain in my azz >>> >>> Glad I don't have to have them anymore. Now just waiting for another >>> "adventure" in my life to happen, a kidney transplant. I probably have more >>> of others parts in my body then most people do. >>> >>> Since they are human parts does this make me a bionic man? Hey if we >>> can't laugh then we cry and I am not a cry baby. >>> >>> 18's, >>> >>> Marty >>> >>> On Thu, Jan 22, 2015 at 12:42 PM, Myvety2k via CMLHope < >>> cmlhope@googlegroups.com> wrote: >>> >>>> Hi Marty, their may have been a few more in their I know I was >>>> getting one every 4 month for 7 to 8 years. Next time I'm in Chicago I'll >>>> have to check with them because before going into the study in Chicago I >>>> had 2 at the other Doctors office in Munster, IN. >>>> >>>> greenie >>>> >>>> In a message dated 1/22/2015 12:14:41 P.M. Eastern Standard Time, >>>> wa2...@gmail.com writes: >>>> >>>> Hi Greenie, >>>> >>>> Wow 27 of them! You got me beat, I only had 17. LOL >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> >>>> On Thu, Jan 22, 2015 at 7:24 AM, Myvety2k via CMLHope < >>>> cmlhope@googlegroups.com> wrote: >>>> >>>>> Hi Marty, I'm glad I don't have to get any more BMB, blood work >>>>> instead. I had 27 of them and their not a lot of fun. My back is like a >>>>> rocky road with all the bumps in it. >>>>> >>>>> greenie >>>>> >>>>> In a message dated 1/22/2015 7:15:00 A.M. Eastern Standard Time, >>>>> wa2...@gmail.com writes: >>>>> >>>>> Hi Sherri, >>>>> >>>>> I had one and let me tell you that it is no where close to having a >>>>> BMB which I had 17 of them. I wish you the very best of luck and I know >>>>> that your frightened and it's difficult to not worry but you go in there >>>>> as >>>>> a winner! >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>> >>>>> >>>>> On Thu, Jan 22, 2015 at 4:25 AM, sherri swanson < >>>>> swanson.sherri...@gmail.com> wrote: >>>>> >>>>>> Hi everyone! >>>>>> >>>>>> This morning I'm having an Ultrasound Guided Fine Needle Aspiration >>>>>> done on my thyroid. One of my doctors found a mass on my thyroid that is >>>>>> about half the size of my right lobe and sent me for a regular ultrasound >>>>>> with the hopes that he would be able to see something. Well, me being me, >>>>>> of course he couldn't and off to the ENT I went for even more test >>>>>> before I >>>>>> was told I would have to have this one this morning. >>>>>> >>>>>> This procedure takes 2 hours as it requires multiple insertions >>>>>> into my neck with this very fine needle. The only thing I could relate it >>>>>> to was my BMA and was wondering if anyone here has had one and could tell >>>>>> me if they are similar to the bone marrow aspiration? Gee, 2 hours of >>>>>> multiple insertions in the neck over insertions in the back side. Right >>>>>> now, the back side is sounding a whole lot better. I mean what's a few >>>>>> more >>>>>> holes in my bones there? LOL <338.png> >>>>>> >>>>>> Wish me luck. >>>>>> >>>>>> L'chaim >>>>>> >>>>>> Sherri >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>> To unsubscribe from this group, send email to >>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>> send an email to cmlhope+unsubscr...@googlegroups.com. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of 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