Hi Joyce and good to hear from you. I think taking all these drugs probably cause it. I try to take them with food. The dr called and said they found h pylori but I think we all have that. They have ordered some meds for it but don't know if I can take them because I start the ponatinib mon. Yes ponatinib is the generic name. This makes my 4th tki. I pray that it will work. I received it in the mail yest. Good luck to you and all our cml warriors!!!! Jeanie❤️❤️
Sent from my iPhone > On Jan 24, 2015, at 2:12 AM, Joyce Mesnarich <joy...@htc.net> wrote: > > Jeanie, > Beth said it well. Wonder if the inflamed stomach was caused by the hydrea. > Sorry you have to take even more. This, too, shall pass. Is ponatinib the > same as iclusig? (Spelling may be wrong) > God bless and keep you. > Joyce in IL > > >> On Jan 22, 2015, at 5:49 PM, bkbarney via CMLHope wrote: >> >> Thinking of you Jeannie, sending you lots of peaceful, warm thoughts, >> prayers and hugs. You are a real trouper.. a true warrior. We all love >> you...and admire you...Rest yourself. take good care..keep us posted. Beth >> >> >> -----Original Message----- >> From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Thu, Jan 22, 2015 5:37 pm >> Subject: Re: [CMLHope] Big test today >> >> Endoscopy was kk--put me to sleep --inflamed stomach. >> Platelets had gone high again. Increased hydrea till mon. More test. >> Got my ponatinib. Or it is coming in the mail. Wait and see right now. >> Tired blessings >> Jeanie >> >> Sent from my iPhone >> >> On Jan 22, 2015, at 6:28 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >> >>> Hi Greenie, >>> >>> You have me beat hands down. I used to call them a real pain in my azz >>> >>> Glad I don't have to have them anymore. Now just waiting for another >>> "adventure" in my life to happen, a kidney transplant. I probably have more >>> of others parts in my body then most people do. >>> >>> Since they are human parts does this make me a bionic man? Hey if we can't >>> laugh then we cry and I am not a cry baby. >>> >>> 18's, >>> >>> Marty >>> >>>> On Thu, Jan 22, 2015 at 12:42 PM, Myvety2k via CMLHope >>>> <cmlhope@googlegroups.com> wrote: >>>> Hi Marty, their may have been a few more in their I know I was getting >>>> one every 4 month for 7 to 8 years. Next time I'm in Chicago I'll have to >>>> check with them because before going into the study in Chicago I had 2 at >>>> the other Doctors office in Munster, IN. >>>> >>>> greenie >>>> >>>> In a message dated 1/22/2015 12:14:41 P.M. Eastern Standard Time, >>>> wa2...@gmail.com writes: >>>> Hi Greenie, >>>> >>>> Wow 27 of them! You got me beat, I only had 17. LOL >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> >>>>> On Thu, Jan 22, 2015 at 7:24 AM, Myvety2k via CMLHope >>>>> <cmlhope@googlegroups.com> wrote: >>>>> Hi Marty, I'm glad I don't have to get any more BMB, blood work instead. >>>>> I had 27 of them and their not a lot of fun. My back is like a rocky >>>>> road with all the bumps in it. >>>>> >>>>> greenie >>>>> >>>>> In a message dated 1/22/2015 7:15:00 A.M. Eastern Standard Time, >>>>> wa2...@gmail.com writes: >>>>> Hi Sherri, >>>>> >>>>> I had one and let me tell you that it is no where close to having a BMB >>>>> which I had 17 of them. I wish you the very best of luck and I know that >>>>> your frightened and it's difficult to not worry but you go in there as a >>>>> winner! >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>> >>>>> >>>>>> On Thu, Jan 22, 2015 at 4:25 AM, sherri swanson >>>>>> <swanson.sherri...@gmail.com> wrote: >>>>>> Hi everyone! >>>>>> >>>>>> This morning I'm having an Ultrasound Guided Fine Needle Aspiration done >>>>>> on my thyroid. One of my doctors found a mass on my thyroid that is >>>>>> about half the size of my right lobe and sent me for a regular >>>>>> ultrasound with the hopes that he would be able to see something. Well, >>>>>> me being me, of course he couldn't and off to the ENT I went for even >>>>>> more test before I was told I would have to have this one this morning. >>>>>> >>>>>> This procedure takes 2 hours as it requires multiple insertions into my >>>>>> neck with this very fine needle. The only thing I could relate it to was >>>>>> my BMA and was wondering if anyone here has had one and could tell me if >>>>>> they are similar to the bone marrow aspiration? Gee, 2 hours of multiple >>>>>> insertions in the neck over insertions in the back side. Right now, the >>>>>> back side is sounding a whole lot better. I mean what's a few more holes >>>>>> in my bones there? LOL <338.png> >>>>>> >>>>>> Wish me luck. >>>>>> >>>>>> L'chaim >>>>>> >>>>>> Sherri >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>> To unsubscribe from this group, send email to >>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> 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