Prayers & Blessings Jeanie 18's 🐠🐠

> On Feb 4, 2015, at 1:17 AM, bkbarney via CMLHope <[email protected]> 
> wrote:
> 
> Jeanie,
> Thanks for the definition..definitely the flu then because I couldn't get out 
> of bed/ couch for several days...slowly on the mend...gosh Jeanie, you are 
> going through so much......can I just say it's miserable, crappy, horrible  
> yucky, scary.... while we need to stay positive, and support our bodies to 
> heal in all the ways we can...sometimes it's important to acknowledge how 
> hard the path can sometimes be..yours right now feels mighty up hill.....but 
> I really believe in you and your spirit. Along with these meds and good docs 
> at Moffit. Dr. Fernandez and his team saved my best friend's life a year and 
> a half ago with a bone marrow transplant. I got to meet him when I was down 
> there helping to take care of her. Nice man...
> 
> Anyway...the point I am trying to make is that it's O.K. for us to 
> acknowledge that we are scared ...really scared sometimes.....us warriors are 
> human too :)  I think sometimes it helps to say those things too.   Those 
> emotions are welcome here too. I know I am more scared these days...I try to 
> let fear be my companion and not my guide. 
> 
> Sorry you have to go to Moffit every three days...
> 
> While you are there, do you ever stop in at their center for healing 
> arts/spiritual place..it's a beautiful room, with lots of oregami..books, art 
> stuff to paint or create things you can take home with you...I painted a 
> piece of paper and they showed me how to make it into an oregami heart and I 
> attached a special paper healing bead to it...I am looking at it right 
> now....would you enjoy a visit to that room? as long as you are there???
> 
> Now, let us raise you up...stay strong, stay full of hope that all that is 
> going on can be resolved with time and proper care. Feel the love of all of 
> us as you navigate the next several weeks. I like Marty's hugging you 
> smileys.. .......
> 
> 18's Beth
> 
> -----Original Message-----
> From: 'Icandoallttc' via CMLHope <[email protected]>
> To: cmlhope <[email protected]>
> Sent: Tue, Feb 3, 2015 6:34 pm
> Subject: Re: [CMLHope] My twelfth surgery on my fistula
> 
> Hi Beth and thanks so much for thinking of me. 
> I watched a show on the difference between flu and colds.  If you have the 
> flu you can't get out of bed. You have fever, chills, aching bones and ect.  
> With a cold you can get out if bed with much less pain.  I have had both but 
> I get my flu shot so haven't had flu for a long time.  
> I know how you feel --I haven't felt like going to Moffitt but having to go 
> every three days now.   I pray you will have a great trip!!'
> Going to have pet scan next thur--it will be all day at Moffitt.  
> 
> Prayers & Blessings Jeanie 18's
> 
> On Feb 3, 2015, at 6:15 PM, bkbarney via CMLHope <[email protected]> 
> wrote:
> 
>> 
>> Doing O.K.  Just a bad cold/virus that has knocked me down since last 
>> week...in my jammies..I rarely get colds anymore, so when I do get 
>> something..it usually knocks me down for a week..but this is dragging 
>> on...Going to Mayo next Thursday..must be in good shape to go..and I am 
>> driving with a friend so praying the weather will be good enough on both 
>> ends to drive from Rochester to Chicago there and back......won't knjow 
>> anyting about BCr until I do another one on March 19th...two months post 
>> restarting sprycel..unless they want to do one sooner...
>> 
>> Take good care Jeanie,
>> 
>> I know you feel crappy...but I really trust ponatinib will do it's job..it 
>> does take time though...I know it's hard to have patience when you are 
>> feeling so bad and your worried...I will send prayers that you can do 
>> something...old fully tv reruns..anything to get your mind off things and 
>> distract for a little while..we all need respite from our anxiety when 
>> things aren't going as we had hoped...
>> 
>> will keep in touch...you too..
>> 
>> 
>>  
>> Beth
>> 
>> -----Original Message-----
>> From: 'Icandoallttc' via CMLHope <[email protected]>
>> To: cmlhope <[email protected]>
>> Sent: Tue, Feb 3, 2015 5:07 pm
>> Subject: Re: [CMLHope] My twelfth surgery on my fistula
>> 
>> Thanks Beth 
>> How are you?
>> 
>> Prayers & Blessings Jeanie 18's
>> 
>> On Feb 3, 2015, at 5:40 PM, bkbarney via CMLHope <[email protected]> 
>> wrote:
>> 
>>> Thinking of you Jeanie..Hang in there...Beth
>>> 
>>> 
>>> -----Original Message-----
>>> From: 'Icandoallttc' via CMLHope <[email protected]>
>>> To: cmlhope <[email protected]>
>>> Sent: Tue, Feb 3, 2015 4:39 pm
>>> Subject: Re: [CMLHope] My twelfth surgery on my fistula
>>> 
>>> Dear Marty 
>>> I'm sorry you are going through through all this but happy you came out ok. 
>>> I am in bad shape also but I feel everyone on this list praying and sending 
>>> their love.  
>>> My sister put me on the church's pray list and sang a song for me.  The 
>>> best part of surgery is the good sleep you get. I have a sleep problem. 
>>> Hang in there warriors and check in to let us know how you are. 
>>> I am on my 9th day of ponatinib.  
>>> 
>>> 
>>> Prayers & Blessings Jeanie 18's
>>> 
>>> On Feb 3, 2015, at 5:20 PM, Marty Gartenberg <[email protected]> wrote:
>>> 
>>>> I got up this morning and went to the hospital to have some corrective 
>>>> surgery to the fistula in my arm. This operation was a little different 
>>>> from all of the others because I had to be intabated and general Anastasia 
>>>> was used. 
>>>> 
>>>> The operation lasted more then three hours, hopefully this one will work 
>>>> for a while. This is the twelfth in a year, hopefully a kidney transplant 
>>>> will come soon. I have been waiting for almost four years.
>>>>  
>>>> I would like to thank everyone for their prayers and good wishes, it means 
>>>> a lot to me.
>>>> 
>>>> We are all fighters and we must do what ever we have to, and I really know 
>>>> what all of you are going through, and no matter what we do go through we 
>>>> are all here for each other. We are just like a close knit family. GOD 
>>>> bless you all.
>>>> 
>>>> 18's,
>>>> 
>>>> Marty
>>>> -- 
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