Hi John What was your allergy to allopurinol ? My stomach and back have been hurting!!
Prayers & Blessings Jeanie 18's 🐠🐠 > On Feb 4, 2015, at 8:07 AM, Icandoallttc <icandoall...@aol.com> wrote: > > 11 years for me--still fighting !!! 9th day on ponatinib. Sure hope it > starts working. My onc says it's my last choice but there is one more tki I > haven't tried--bositinib--not sure if spelling. > Thanks for the uplift. > > Prayers & Blessings Jeanie 18's 🐠🐠 > >> On Feb 4, 2015, at 12:56 AM, bkbarney via CMLHope <cmlhope@googlegroups.com> >> wrote: >> >> Thanks Greenie. You too are my inspiration.Fifteen years!!! God bless Dr. >> Druker! Five years for me February 12th. I was diagnosed at 48. >> >> Take good care and enjoy the warmth! Beth >> >> >> -----Original Message----- >> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Tue, Feb 3, 2015 8:31 pm >> Subject: Re: [CMLHope] Ponatinib >> >> Beth, get out the heating pad make sure it's a big one they make different >> sizes. I go fishing under the bridge going over to Sanibel sometimes. If >> you do come down here we will get together that's for sure. Just get >> better. My son Derek's wife Ruby, she has a massage and yoga wellness >> studio 118 North Clinton St., Suite 102 in Chicago. It's called Massage >> Evolved. website (massageevolved.com). They started a little over a year >> ago and seem to be doing very good. He called me over the weekend and told >> me about the snow. You miss Florida and I'm sorry I don't miss North West >> Indiana because of that weather. Summer is just to short up their, Grace >> and my bones can't take it. Plus getting sick with a cold. But Grace >> want's so purchase a small house or condo up their for the summer so we >> would miss the real hot months down here. It would only be for 4 to 5 >> months. That way we could visit with our grand kids and our kids. >> >> I can remember when I first found out that I had CML, it was to weeks before >> xmas 1998. I asked the doctor at that time how much time I had and she said >> between 1 1/2 to 2 years. She put me on hydra then she sent me to >> Northwestern to see doctor Tallman and he put me in a study with interferon >> which almost killed me it was that bad. They stopped it after 3 months >> because I told him I couldn't take be that sick anymore. So they stopped the >> study early..I wanted to die, a short time he called me to put me in another >> study called STI571. Their was only 8 of us and I was the only one from >> Indiana plus the oldest of the 7. The study had 200 people from the US and >> this was the only country using STI571. And here I am after 15 years still >> driving everyone crazy. It's funny how things turn out, I call it faith. >> >> You just got to hang in their things will get better it won't happen over >> night. >> >> greenie >> >> >> >> >> >> In a message dated 2/3/2015 6:03:14 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> >> Greenie, >> >> It's snowing again here in Chicago land..hopefully only a couple of >> inches..to add to the 20 plus already on the ground. I have been down with a >> bad cold this week...but I watched my neighbors son--- 23 year old..trying >> to dig out people- including me! .snow drifts were waist high! It's >> crazy...and now..it also got very cold...below zero wind chills last >> night..so lots of ice...ah winter.... >> >> I was dreaming last night about the causeway between Fort Myers and >> Sanibel...watching the Osprey soar, seeing dolphin in the water...the >> pelicans sitting on wood stumps along the water...snowy egrets..and then I >> woke up!!! Must get back there soon one day...maybe at the end of this >> year...hope to meet you when I do. >> >> Will look to hear from you about your test results tomorrow. >> >> Take care, Beth >> >> -----Original Message----- >> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Tue, Feb 3, 2015 5:57 am >> Subject: Re: [CMLHope] Ponatinib >> >> Hi Beth, I received a call from my son Derek about the snow he lives in >> North Chicago. I hope I never have to move back north, can't handle the >> cold and snow. >> >> greenie >> >> In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> Dear Skip and Jeanie, Thinking of you both as you navigate new terrains. >> Hope the ponatinib works soon Jeanie and sorry you are struggling Skip. Do >> let us know if you what you decide regarding ponatinib. I think about it >> also. ... >> >> Greenie, hope you and your wife are feeling much better. >> >> Snow here in Chicago. 21 inches, drifts up to my waist when I opened my >> front door this morning. Now work today..have a cold so it was a good day to >> bunker down here. >> >> Blessings and love to all. Beth >> >> >> -----Original Message----- >> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Mon, Feb 2, 2015 3:45 pm >> Subject: Re: [CMLHope] Ponatinib >> >> Jeanie, it's a good thing we don't get snow or ice here in Florida because >> the way these people drive here the insurances companies would go out of >> business in one day. They can't drive here when the roads are dry. >> >> greenie >> >> In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> Thanks Skip-I've never had blood counts that low--always battling high ones. >> Wow! That storm sounds neat! >> We never get sleet and snow in Florida. I saw a sleet and snow storm in my >> visit to Switzerland. My kids loved it and were playing in it. I wasn't >> that brave--I went inside hehe. >> I hope you get your platelets soon. >> >> Prayers & Blessings Jeanie 18's >> >> On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope" >> <cmlhope@googlegroups.com> wrote: >> >>> I am so sorry you counts vary so much mine have been doing that now for a >>> few years, Fri my HGB was 79.. my wbc was 1.5, .. plts was 17 .. >>> neut 0.3... ANC 0.279 normally I would get somePLTS tomorrow but we have >>> another big storm going to hit tonight and will have freezing rain in >>> morning and all the snow will turn to ice.. so we will hold off until Wed. >>> I am sorry for not posting much but I find using the computer very makes me >>> very tired lately. still thinking about Ponatinib, this is my >>> fourth year without anything except blood and platelet infusions >>> Skip Duffie >>> >>> >>> My brother lives in Naples, I live in South Fort Myers min. from the beach. >>> The weather will be Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69 and Sat 68. >>> Below normal should be in the low 80's BUT better then SNOW> >>> >>> Greenie >>> >>> In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard Time, >>> jl...@rogers.com writes: >>> Hi I am OK I had my counts done last Wednesday and my platelets were 35 and >>> white blood cells 2.8 and neutrofils were 1.5. Hemoglobin 135. I am still >>> off the drug and have another check this coming Wednesday. I will go back >>> on the drug then and probably at 2 or three a week. My wife and I will be >>> coming to Naples Florida to visit friends for a week or so. I hope it will >>> be warm. Have your counts come down ? >>> >>> Sent from my iPad >>> >>> > On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope >>> > <cmlhope@googlegroups.com> wrote: >>> > >>> > Hi John >>> > I go to Moffitt cancer center. How are you? >>> > >>> > Prayers & Blessings Jeanie 18's >>> > >>> >> On Jan 31, 2015, at 10:47 AM, John Barrons <jl...@rogers.com> wrote: >>> >> >>> >> Hi Jeanie: Where are getting treated? John >>> >> >>> >> Sent from my iPad >>> >> >>> >> -- >>> >> -- >>> >> [CMLHope] >>> >> A support group of http://cmlhope.com >>> >> ------------------------------------------------- >>> >> >>> >> You received this message because you are subscribed to the Google >>> >> Groups "CMLHope" group. >>> >> To post to this group, send email to CMLHope@googlegroups.com >>> >> To unsubscribe from this group, send email to >>> >> cmlhope-unsubscr...@googlegroups.com >>> >> For more options, visit this group at >>> >> http://groups.google.com/group/CMLHope >>> >> --- >>> >> You received this message because you are subscribed to the Google >>> >> Groups "CMLHope" group. >>> >> To unsubscribe from this group and stop receiving emails from it, send >>> >> an email to cmlhope+unsubscr...@googlegroups.com. >>> >> For more options, visit https://groups.google.com/d/optout. >>> > >>> > -- >>> > -- >>> > [CMLHope] >>> > A support group of http://cmlhope.com >>> > 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