For anyone who is interested, here's the info on the CD..I think I posted this
a while back but here goes: Belleruth Naparstek from Healthjourneys A
Meditation to Help You Fight Cancer. Resources for MInd , Body and Spirit.
If anyone else has anything they listen to that works for them, please share, I
' would like to add more options to my daily meditations.
Thanks, Beth
-----Original Message-----
From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Sat, Feb 7, 2015 2:00 pm
Subject: Re: [CMLHope] Ponatinib
Thanks so much. I do have CDs for meditation but send the site to me. I have
done everything in my fight. I love the Psalms and have read the book of the
Bible, Job several times.
If you guys haven't read Job, I would encourage you to read it. It's long but
well worth the time. Thanks again sweet Beth.
Prayers & Blessings Jeanie 18's
On Feb 6, 2015, at 5:35 PM, bkbarney via CMLHope <cmlhope@googlegroups.com>
wrote:
jeanie,
Hang in there...slow and steady. Good the platelets are down a bit...I know
this may sound corny, but it's just a thought..in addition to prayer, maybe try
a visualization visualizing the ponatinib killing off those cancer cells and
feel your platelets coming down and normalizing. there is a great guided
imagery CD that I love that I listen to every night all most. It's Beautiful
guided imagery with music in the background specifically to fight cancer. I
will email you the name when I get home. it might be helpful during the next
several weeks/months...as you are transitioning to the new meds etc...
Take good care, thinking of you.
18's
Beth
-----Original Message-----
From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Fri, Feb 6, 2015 3:43 pm
Subject: Re: [CMLHope] Ponatinib
Hi John
You give me hope.
I'll be glad when I reach that point. Thanks.
Prayers & Blessings Jeanie 18's
On Feb 6, 2015, at 10:19 AM, John Barrons <jl...@rogers.com> wrote:
Hi Jeanie good to hear the platelets are coming down. I am back on the
ponatinib now and taking two a week.
Sent from my iPad
On Feb 6, 2015, at 10:03 AM, 'Icandoallttc' via CMLHope
<cmlhope@googlegroups.com> wrote:
Good morning everyone
My blood results are in and my platelets came down a little--1050 million--WBC
still at 14--still fighting.
Prayers & Blessings Jeanie 18's
On Feb 4, 2015, at 4:35 PM, bkbarney via CMLHope <cmlhope@googlegroups.com>
wrote:
Good you have a few options to work with...Hopefully this one will work for you
in a bit of time. I am championing your warrior spirit!!
Take care,
18's Beth
-----Original Message-----
From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Feb 4, 2015 7:07 am
Subject: Re: [CMLHope] Ponatinib
11 years for me--still fighting !!! 9th day on ponatinib. Sure hope it starts
working. My onc says it's my last choice but there is one more tki I haven't
tried--bositinib--not sure if spelling.
Thanks for the uplift.
Prayers & Blessings Jeanie 18's
On Feb 4, 2015, at 12:56 AM, bkbarney via CMLHope <cmlhope@googlegroups.com>
wrote:
Thanks Greenie. You too are my inspiration.Fifteen years!!! God bless Dr.
Druker! Five years for me February 12th. I was diagnosed at 48.
Take good care and enjoy the warmth! Beth
-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, Feb 3, 2015 8:31 pm
Subject: Re: [CMLHope] Ponatinib
Beth, get out the heating pad make sure it's a big one they make different
sizes. I go fishing under the bridge going over to Sanibel sometimes. If you
do come down here we will get together that's for sure. Just get better. My
son Derek's wife Ruby, she has a massage and yoga wellness studio 118 North
Clinton St., Suite 102 in Chicago. It's called Massage Evolved. website
(massageevolved.com). They started a little over a year ago and seem to be
doing very good. He called me over the weekend and told me about the snow.
You miss Florida and I'm sorry I don't miss North West Indiana because of that
weather. Summer is just to short up their, Grace and my bones can't take it.
Plus getting sick with a cold. But Grace want's so purchase a small house or
condo up their for the summer so we would miss the real hot months down here.
It would only be for 4 to 5 months. That way we could visit with our grand
kids and our kids.
I can remember when I first found out that I had CML, it was to weeks before
xmas 1998. I asked the doctor at that time how much time I had and she said
between 1 1/2 to 2 years. She put me on hydra then she sent me to Northwestern
to see doctor Tallman and he put me in a study with interferon which almost
killed me it was that bad. They stopped it after 3 months because I told him I
couldn't take be that sick anymore. So they stopped the study early..I wanted
to die, a short time he called me to put me in another study called STI571.
Their was only 8 of us and I was the only one from Indiana plus the oldest of
the 7. The study had 200 people from the US and this was the only country
using STI571. And here I am after 15 years still driving everyone crazy. It's
funny how things turn out, I call it faith.
You just got to hang in their things will get better it won't happen over night.
greenie
In a message dated 2/3/2015 6:03:14 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Greenie,
It's snowing again here in Chicago land..hopefully only a couple of
inches..to add to the 20 plus already on the ground. I have been down with a
bad cold this week...but I watched my neighbors son--- 23 year old..trying to
dig out people- including me! .snow drifts were waist high! It's
crazy...and now..it also got very cold...below zero wind chills last night..so
lots of ice...ah winter....
I was dreaming last night about the causeway between Fort Myers and
Sanibel...watching the Osprey soar, seeing dolphin in the water...the pelicans
sitting on wood stumps along the water...snowy egrets..and then I woke up!!!
Must get back there soon one day...maybe at the end of this year...hope to
meet you when I do.
Will look to hear from you about your test results tomorrow.
Take care, Beth
-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, Feb 3, 2015 5:57 am
Subject: Re: [CMLHope] Ponatinib
Hi Beth, I received a call from my son Derek about the snow he lives in North
Chicago. I hope I never have to move back north, can't handle the cold and
snow.
greenie
In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Dear Skip and Jeanie, Thinking of you both as you navigate new terrains.
Hope the ponatinib works soon Jeanie and sorry you are struggling Skip. Do
let us know if you what you decide regarding ponatinib. I think about it
also. ...
Greenie, hope you and your wife are feeling much better.
Snow here in Chicago. 21 inches, drifts up to my waist when I opened my
front door this morning. Now work today..have a cold so it was a good day to
bunker down here.
Blessings and love to all. Beth
-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Mon, Feb 2, 2015 3:45 pm
Subject: Re: [CMLHope] Ponatinib
Jeanie, it's a good thing we don't get snow or ice here in Florida because
the way these people drive here the insurances companies would go out of
business in one day. They can't drive here when the roads are dry.
greenie
In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Thanks Skip-I've never had blood counts that low--always battling high
ones.
Wow! That storm sounds neat!
We never get sleet and snow in Florida. I saw a sleet and snow storm in
my visit to Switzerland. My kids loved it and were playing in it. I
wasn't that brave--I went inside hehe.
I hope you get your platelets soon.
Prayers & Blessings Jeanie 18's
On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope"
<cmlhope@googlegroups.com> wrote:
I am so sorry you counts vary so much mine have been doing that now for
a few years, Fri my HGB was 79.. my wbc was 1.5, .. plts was 17
.. neut 0.3... ANC 0.279 normally I would get somePLTS tomorrow but we
have another big storm going to hit tonight and will have freezing rain
in morning and all the snow will turn to ice.. so we will hold off
until Wed. I am sorry for not posting much but I find using the
computer very makes me very tired lately. still thinking about
Ponatinib, this is my fourth year without anything except blood and
platelet infusions
Skip Duffie
My brother lives in Naples, I live in South Fort Myers min. from the
beach. The weather will be Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69
and Sat 68. Below normal should be in the low 80's BUT better then SNOW>
Greenie
In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard Time,
jl...@rogers.com writes:
Hi I am OK I had my counts done last Wednesday and my platelets were
35 and white blood cells 2.8 and neutrofils were 1.5. Hemoglobin 135.
I am still off the drug and have another check this coming Wednesday.
I will go back on the drug then and probably at 2 or three a week. My
wife and I will be coming to Naples Florida to visit friends for a
week or so. I hope it will be warm. Have your counts come down ?
Sent from my iPad
> On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope
> <cmlhope@googlegroups.com> wrote:
>
> Hi John
> I go to Moffitt cancer center. How are you?
>
> Prayers & Blessings Jeanie 18's
>
>> On Jan 31, 2015, at 10:47 AM, John Barrons <jl...@rogers.com>
>> wrote:
>>
>> Hi Jeanie: Where are getting treated? John
>>
>> Sent from my iPad
>>
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