Hi John You give me hope. I'll be glad when I reach that point. Thanks.
Prayers & Blessings Jeanie 18's 🐠🐠 > On Feb 6, 2015, at 10:19 AM, John Barrons <jl...@rogers.com> wrote: > > Hi Jeanie good to hear the platelets are coming down. I am back on the > ponatinib now and taking two a week. > > Sent from my iPad > >> On Feb 6, 2015, at 10:03 AM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> Good morning everyone >> My blood results are in and my platelets came down a little--1050 >> million--WBC still at 14--still fighting. >> >> Prayers & Blessings Jeanie 18's 🐠🐠 >> >>> On Feb 4, 2015, at 4:35 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> >>> wrote: >>> >>> >>> Good you have a few options to work with...Hopefully this one will work for >>> you in a bit of time. I am championing your warrior spirit!! >>> >>> Take care, >>> 18's Beth >>> >>> -----Original Message----- >>> From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> >>> To: cmlhope <cmlhope@googlegroups.com> >>> Sent: Wed, Feb 4, 2015 7:07 am >>> Subject: Re: [CMLHope] Ponatinib >>> >>> 11 years for me--still fighting !!! 9th day on ponatinib. Sure hope it >>> starts working. My onc says it's my last choice but there is one more tki I >>> haven't tried--bositinib--not sure if spelling. >>> Thanks for the uplift. >>> >>> Prayers & Blessings Jeanie 18's >>> >>> On Feb 4, 2015, at 12:56 AM, bkbarney via CMLHope >>> <cmlhope@googlegroups.com> wrote: >>> >>>> Thanks Greenie. You too are my inspiration.Fifteen years!!! God bless Dr. >>>> Druker! Five years for me February 12th. I was diagnosed at 48. >>>> >>>> Take good care and enjoy the warmth! Beth >>>> >>>> >>>> -----Original Message----- >>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>>> To: cmlhope <cmlhope@googlegroups.com> >>>> Sent: Tue, Feb 3, 2015 8:31 pm >>>> Subject: Re: [CMLHope] Ponatinib >>>> >>>> Beth, get out the heating pad make sure it's a big one they make different >>>> sizes. I go fishing under the bridge going over to Sanibel sometimes. If >>>> you do come down here we will get together that's for sure. Just get >>>> better. My son Derek's wife Ruby, she has a massage and yoga wellness >>>> studio 118 North Clinton St., Suite 102 in Chicago. It's called Massage >>>> Evolved. website (massageevolved.com). They started a little over a >>>> year ago and seem to be doing very good. He called me over the weekend >>>> and told me about the snow. You miss Florida and I'm sorry I don't miss >>>> North West Indiana because of that weather. Summer is just to short up >>>> their, Grace and my bones can't take it. Plus getting sick with a cold. >>>> But Grace want's so purchase a small house or condo up their for the >>>> summer so we would miss the real hot months down here. It would only be >>>> for 4 to 5 months. That way we could visit with our grand kids and our >>>> kids. >>>> >>>> I can remember when I first found out that I had CML, it was to weeks >>>> before xmas 1998. I asked the doctor at that time how much time I had and >>>> she said between 1 1/2 to 2 years. She put me on hydra then she sent me >>>> to Northwestern to see doctor Tallman and he put me in a study with >>>> interferon which almost killed me it was that bad. They stopped it after >>>> 3 months because I told him I couldn't take be that sick anymore. So they >>>> stopped the study early..I wanted to die, a short time he called me to put >>>> me in another study called STI571. Their was only 8 of us and I was the >>>> only one from Indiana plus the oldest of the 7. The study had 200 people >>>> from the US and this was the only country using STI571. And here I am >>>> after 15 years still driving everyone crazy. It's funny how things turn >>>> out, I call it faith. >>>> >>>> You just got to hang in their things will get better it won't happen over >>>> night. >>>> >>>> greenie >>>> >>>> >>>> >>>> >>>> >>>> In a message dated 2/3/2015 6:03:14 P.M. Eastern Standard Time, >>>> cmlhope@googlegroups.com writes: >>>> >>>> Greenie, >>>> >>>> It's snowing again here in Chicago land..hopefully only a couple of >>>> inches..to add to the 20 plus already on the ground. I have been down with >>>> a bad cold this week...but I watched my neighbors son--- 23 year >>>> old..trying to dig out people- including me! .snow drifts were waist >>>> high! It's crazy...and now..it also got very cold...below zero wind chills >>>> last night..so lots of ice...ah winter.... >>>> >>>> I was dreaming last night about the causeway between Fort Myers and >>>> Sanibel...watching the Osprey soar, seeing dolphin in the water...the >>>> pelicans sitting on wood stumps along the water...snowy egrets..and then I >>>> woke up!!! Must get back there soon one day...maybe at the end of this >>>> year...hope to meet you when I do. >>>> >>>> Will look to hear from you about your test results tomorrow. >>>> >>>> Take care, Beth >>>> >>>> -----Original Message----- >>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>>> To: cmlhope <cmlhope@googlegroups.com> >>>> Sent: Tue, Feb 3, 2015 5:57 am >>>> Subject: Re: [CMLHope] Ponatinib >>>> >>>> Hi Beth, I received a call from my son Derek about the snow he lives in >>>> North Chicago. I hope I never have to move back north, can't handle the >>>> cold and snow. >>>> >>>> greenie >>>> >>>> In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time, >>>> cmlhope@googlegroups.com writes: >>>> Dear Skip and Jeanie, Thinking of you both as you navigate new terrains. >>>> Hope the ponatinib works soon Jeanie and sorry you are struggling Skip. Do >>>> let us know if you what you decide regarding ponatinib. I think about it >>>> also. ... >>>> >>>> Greenie, hope you and your wife are feeling much better. >>>> >>>> Snow here in Chicago. 21 inches, drifts up to my waist when I opened my >>>> front door this morning. Now work today..have a cold so it was a good day >>>> to bunker down here. >>>> >>>> Blessings and love to all. Beth >>>> >>>> >>>> -----Original Message----- >>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>>> To: cmlhope <cmlhope@googlegroups.com> >>>> Sent: Mon, Feb 2, 2015 3:45 pm >>>> Subject: Re: [CMLHope] Ponatinib >>>> >>>> Jeanie, it's a good thing we don't get snow or ice here in Florida because >>>> the way these people drive here the insurances companies would go out of >>>> business in one day. They can't drive here when the roads are dry. >>>> >>>> greenie >>>> >>>> In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time, >>>> cmlhope@googlegroups.com writes: >>>> Thanks Skip-I've never had blood counts that low--always battling high >>>> ones. >>>> Wow! That storm sounds neat! >>>> We never get sleet and snow in Florida. I saw a sleet and snow storm in >>>> my visit to Switzerland. My kids loved it and were playing in it. I >>>> wasn't that brave--I went inside hehe. >>>> I hope you get your platelets soon. >>>> >>>> Prayers & Blessings Jeanie 18's >>>> >>>> On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope" >>>> <cmlhope@googlegroups.com> wrote: >>>> >>>>> I am so sorry you counts vary so much mine have been doing that now for a >>>>> few years, Fri my HGB was 79.. my wbc was 1.5, .. plts was 17 .. neut >>>>> 0.3... ANC 0.279 normally I would get somePLTS tomorrow but we have >>>>> another big storm going to hit tonight and will have freezing rain in >>>>> morning and all the snow will turn to ice.. so we will hold off until >>>>> Wed. I am sorry for not posting much but I find using the computer very >>>>> makes me very tired lately. still thinking about Ponatinib, this is my >>>>> fourth year without anything except blood and platelet infusions >>>>> Skip Duffie >>>>> >>>>> >>>>> My brother lives in Naples, I live in South Fort Myers min. from the >>>>> beach. The weather will be Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69 and >>>>> Sat 68. Below normal should be in the low 80's BUT better then SNOW> >>>>> >>>>> Greenie >>>>> >>>>> In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard Time, >>>>> jl...@rogers.com writes: >>>>> Hi I am OK I had my counts done last Wednesday and my platelets were 35 >>>>> and white blood cells 2.8 and neutrofils were 1.5. Hemoglobin 135. I am >>>>> still off the drug and have another check this coming Wednesday. I will >>>>> go back on the drug then and probably at 2 or three a week. My wife and I >>>>> will be coming to Naples Florida to visit friends for a week or so. I >>>>> hope it will be warm. Have your counts come down ? >>>>> >>>>> Sent from my iPad >>>>> >>>>> > On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope >>>>> > <cmlhope@googlegroups.com> wrote: >>>>> > >>>>> > Hi John >>>>> > I go to Moffitt cancer center. How are you? >>>>> > >>>>> > Prayers & Blessings Jeanie 18's >>>>> > >>>>> >> On Jan 31, 2015, at 10:47 AM, John Barrons <jl...@rogers.com> wrote: >>>>> >> >>>>> >> Hi Jeanie: Where are getting treated? John >>>>> >> >>>>> >> Sent from my iPad >>>>> >> >>>>> >> -- >>>>> >> -- >>>>> >> [CMLHope] >>>>> >> A support group of http://cmlhope.com >>>>> >> ------------------------------------------------- >>>>> >> >>>>> >> You received this message because you are subscribed to the Google >>>>> >> Groups "CMLHope" group. >>>>> >> To post to this group, send email to CMLHope@googlegroups.com >>>>> >> To unsubscribe from this group, send email to >>>>> >> cmlhope-unsubscr...@googlegroups.com >>>>> >> For more options, visit this group at >>>>> >> http://groups.google.com/group/CMLHope >>>>> >> --- >>>>> >> You received this message because you are subscribed to the Google >>>>> >> Groups "CMLHope" group. >>>>> >> To unsubscribe from this group and stop receiving emails from it, send >>>>> >> an email to cmlhope+unsubscr...@googlegroups.com. >>>>> >> For more options, visit https://groups.google.com/d/optout. >>>>> > >>>>> > -- >>>>> > -- >>>>> > [CMLHope] >>>>> > A support group of 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