This is the link to the National CML Society directly to drug and food interactions: http://www.nationalcmlsociety.org/living-cml/drug-food-interactions
LOVE YOU ALL!!!!! Maria On Sun, Feb 22, 2015 at 6:23 AM, <cmlhope@googlegroups.com> wrote: > cmlhope@googlegroups.com > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> > Google > Groups > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > Topic digest > View all topics > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> > > - ponatinib info <#14bb0d02294a4d46_group_thread_0> - 5 Updates > - Food that interacts with TKI's and other meds > <#14bb0d02294a4d46_group_thread_1> - 2 Updates > > ponatinib info > <http://groups.google.com/group/cmlhope/t/5dfb95c0229110ae?utm_source=digest&utm_medium=email> > Icandoallttc <icandoall...@aol.com>: Feb 21 10:18AM -0500 > > Hi John > Do you you remember how long the eye problem lasted! I have been having > them a few times daily now thanks. > > > Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ]. 18,s > > John Barrons <jlbca2...@yahoo.ca>: Feb 21 03:55PM > > Hi I had them quite a long time go. Each aura lasted about 3 to 5 > minutes. They occurred very intermittingly. Never found out why. I would > like to ask what does 18,s mean? > > On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope < > cmlhope@googlegroups.com> wrote: > > > Hi John Do you you remember how long the eye problem lasted! I have been > having them a few times daily now thanks. > > Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ]. 18,s > On Feb 19, 2015, at 3:16 PM, Icandoallttc <icandoall...@aol.com> wrote: > > > > Thanks John. That's what I having but with pain. I have suffered with > migraines most of my adult life but this is different. I hope it's a side > effect that will go away. Looks like the media working --yahoo! > > Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ]. 18,s > On Feb 19, 2015, at 11:47 AM, "'John Barrons' via CMLHope" < > cmlhope@googlegroups.com> wrote: > > > I have a few auras which I understand they are migraine headaches without > the pain. I had an MRI to see if there was a problem and there wasn't. > Haven't them for a long time. No headaches or rashes. John b > > On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope < > cmlhope@googlegroups.com> wrote: > > > Hi John and thanks for walking me through this new med. Got a light > rash. Did you ever have an eye problem with headache?Thanks again. > Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ]. 18,s > On Feb 19, 2015, at 11:01 AM, "'John Barrons' via CMLHope" < > cmlhope@googlegroups.com> wrote: > > > That's great your down to one pill a day. I am still on two a week. over > the last to weeks my counts have stayed the same except for wbc up from 5 > to 7. John B > > On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope < > cmlhope@googlegroups.com> wrote: > > > Thanks Marty. I will get some. Thank heavens it doesn't itch. My blood > counts were good today. Platelets 152. Doctor put me down to 1 pill > daily of ponatinib. Phosphatase is still high. Going to be a guessing > game till I get stable. You are right--still here fighting. Glad you > finally got some relief. > > Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ]. 18,s > On Feb 18, 2015, at 7:43 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > > Hi Jeanie and all of the rest, > I really feel badly for you having to go through all of this, but on the > bright side your all stil here to go through this. > As far as the rash and not being able to put anything on it, well that > really sucks. When will you be allowed to put something on your rash? > When I had my total body radiation my skin was burnt, my fingers, toes, > nose, ears feet, hands and other parts of my body were burned and looked > like I was in a fire. I was told that while I was having the radiation > treatments I could not put anything on any of these very severe burns, and > I really suffered through it. > As soon as my treatments were over they gave me Keri oil, then lotion. > Both of them did very little to help me. Then a friend of mine told me > about Bag Balm and I got it and started using it. Within two days my burns > were still there because they were from the radiation poisoning but after > putting that on it didn't hurt anymore. Everything healed up in less then a > week. > Then I had to start my immuno-suppression medication and the rashes were > severe. So, I remembered that Bag Balm and put that on and there was > instant relief. > I don't know if you have heard about Bag Balm but it is used for livestock > on their utters when all of the milking in cold weather makes their utters > chapped. > By the way, I bought the 8 oz tin more then 25 years ago and I still have > most of it left even though I use it all the time for skin irritations. All > you need is a very small amount. > 18's, > Marty > > Shop on Google > <image.jpeg>Bag Balm Protective Ointme...$3.89The Online > Drugs...<image.jpeg>Bag Balm Wound Treatment 8 oz$7.89<image.png>Valley Vet > Su...(9)<image.jpeg>Bag Balm โ 8 oz.$6.99California > Veterin...<image.jpeg>Dairy Association Co Inc Bag Balm...$7.49Drs. Foster > and S... > AdsWhy these ads? > > - > Where Can I Buy Bag Balmโ > wow.com/Where+Can+I+Buy+Bag+Balmโ > - > Search Where Can I Buy Bag Balm > Look Up Quick Results Now! > - > Huge Bag Balm Saleโ > www.luckyvitamin.com/BagBalmโ > - > 4.4 rating for luckyvitamin.comBuy Discount Bag Balm from Vermont > +35% Off - Free Shipping Available! > - > Bag Balm from Swansonยฎโ > www.swansonvitamins.com/BagBalmโ > - > Free Shipping on Any $50 Order. > Satisfaction GuaranteedโBuy Today! > - > Bag Balm For Dry Handsโ > www.vermontcountrystore.com/โ > - > 4.4 advertiser ratingBuy Items That Simplify Your Life. > Purveyors of Hard-to-Find Products. > - > Find super cheap Bag Balmโ > www.bag-balm.best-deal.com/โ > - > Get discount Bag Balm & save now. > BEST-DEAL.com - the search expert! > - > Bag Balm at Walmartโ > www.walmart.com/Lip_Careโ > - > 4.2 rating for walmart.comSave On Bag Balm At Walmart. > Free Shipping Site to Store. > - > Bag balm - 70% Offโ > bag-balm.stuccu.com/Dealโ > - > Lowest Price On Bag balm > Free shipping, in stock. Buy now! > - > Who Sells Bag Balm On Saleโ > bagbalm.entirelypets.com/โ > - > Low Price Guarantee On Bag Balm > Ointment. Up To 70% Off Pet Items! > - > > > > > On Wed, Feb 18, 2015 at 4:10 PM, ICANDOALLTTC via CMLHope < > cmlhope@googlegroups.com> wrote: > > Good evening to all,Below is some info on Ponatinib. The common side > effects are listed.The most common side effects reported in the clinical > trial include hypertension, rash, abdominal pain, fatigue, headache, dry > skin, constipation, fever, joint pain, and nausea.So far I have the rash, > headache, abdominal pain, dry skin, and nausea. Some of these I have had > before. The rash is quite bad, but they say don't put anything on > it.Blessings Jeanie<3Ponatinib > On December 14, 2012, the U. S. Food and Drug Administration granted > accelerated approval to ponatinib (Iclusig tablets, ARIAD Pharmaceuticals, > Inc.) for the treatment of adult patients with chronic phase, accelerated > phase, or blast phase chronic myeloid leukemia (CML) that is resistant or > intolerant to prior tyrosine kinase inhibitor therapy or Philadelphia > chromosome positive acute lymphoblastic leukemia (Ph+ALL) that is resistant > or intolerant to prior tyrosine kinase inhibitor therapy. The approval was > based on the results of the PACE trial, a multicenter, international, > single-arm clinical trial of 449 patients with disease that was resistant > or intolerant to prior tyrosine kinase inhibitor therapy. The primary > endpoints were Major Cytogenetic Response (MCyR) for patients with CP-CML > and Major Hematologic Response (MaHR) for patients with AP-CML, BP-CML or > Ph+ALL. FDA required that the sponsor commit to submit 24-month follow-up > data for all patients as a condition for the accelerated approval. The > efficacy results demonstrated a 54% MCyR rate in patients with CP-CML. > Seventy percent of patients with CP-CML with T315I mutation achieved MCyR. > The median duration of MCyR had not yet been reached at the time of > analysis. For patients with AP-CML, BP-CML and Ph+ ALL, the MaHR rates were > 52%, 31% and 41%, respectively. The median duration of MaHR in patients > with AP-CML, BP-CML and Ph+ ALL was 9.5 months, 4.7 months and 3.2 months > respectively. Iclusig is being approved with a Boxed Warning alerting > patients and healthcare professionals that arterial thrombosis and liver > toxicity have occurred in Iclusig-treated patients. The most common side > effects reported in the clinical trial include hypertension, rash, > abdominal pain, fatigue, headache, dry skin, constipation, fever, joint > pain, and nausea. The recommended dose and schedule for ponatinib is 45 mg > taken orally once daily with or without food. Full prescribing information > is available at: > http://www.accessdata.fda.gov/drugsatfda_docs/label/2012/203469lbl.pdf1 > Healthcare > professionals should report all serious adverse events suspected to be > associated with the use of any medicine and device to FDAโs MedWatch > Reporting System by completing a form online at > http://www.fda.gov/medwatch/report.htm2, by faxing (1-800-FDA-0178) or > mailing the postage-paid address form provided online, or by telephone > (1-800-FDA-1088). > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > Icandoallttc <icandoall...@aol.com>: Feb 21 03:37PM -0500 > > I get real sensitive to light and then the auras and pain start. > > Here's what the pamphlet says > Effects on the eye: > Serious eye problems that can lead to blindness or blurred vision may > happen with Inclusig. Perceived flashes of light--light > sensitive_floaters__dry itchy eyes-- > > Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: > ๐ ]. 18,s > > John Barrons <jl...@rogers.com>: Feb 21 04:23PM -0500 > > Hi My eyes are more sensitive to light and I have dry eyes. I put drops of > Sustane Ultra in my eyes daily. My gp said to disregard the expiry date on > the bottle and discard the bottle every three after opening it. It is no > longer sterile. So don't buy a big bottle. John B > > Sent from my iPad > > Richard H <rbhuffm...@gmail.com>: Feb 21 08:50PM -0800 > > John, I'm also using Sustane Ultra for my eyes. I am supposed to be using > Restasis but was allergic to it. I have secondary Sjorgrins Syndrome from > a transfusion and Gleevec. The small samples or daily treatment are only > recommended for three times use. I have my eyes checked every six months > and am reminded not to touch my eye with the tip of the applicator. I use > 1 drop 2 times in each eye every day and have had no problems for almost 7 > years. So I guess its depends on the doctor or assistant that gives the > instructions. > > Richard H. > On Saturday, February 21, 2015 at 3:23:21 PM UTC-6, jb wrote: > > Back to top <#14bb0d02294a4d46_digest_top> > Food that interacts with TKI's and other meds > <http://groups.google.com/group/cmlhope/t/6c581c51d2fd1ef3?utm_source=digest&utm_medium=email> > mariacash...@gmail.com: Feb 21 07:52AM -0800 > > HELLO!!! This is a very important topic and I believe that most of us > don't > consider it at all. I have known that there are juices and spices that can > affect the way different medication interact with your body and even > between themselves. Medscape is a useful tool for drug interactions. > However, it is known tha grapefruit juice (which incidentaly I love) is a > nono with almost all meds. It usually increases the effect of the meds. > I know, for example, that garlic is a nono for Sprycel, as well as teas of > any kind....CMLIQ site has some recent information. Also, CML society. > > We must keep a watchfull eye on this type of information because it can > mean a lot in the performance of our medications and our lives!!!! > > > BE HAPPY and DO NOT WORRY!!!! GOD is always with us!!! > > Maria > Joyce Mesnarich <joy...@htc.net>: Feb 21 12:21PM -0600 > > Thank you so much for sharing these information sources with us. We are > all wanting to know as much as possible about this ever-changing disease. > Joyce in IL > > > Back to top <#14bb0d02294a4d46_digest_top> > You received this digest because you're subscribed to updates for this > group. You can change your settings on the group membership page > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/join> > . > To unsubscribe from this group and stop receiving emails from it send an > email to cmlhope+unsubscr...@googlegroups.com. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
