Also check this list, save it, it may become helpfull: http://www.cmleukemia.com/sites--english-and-other-languages.html
Maria On Sun, Feb 22, 2015 at 8:32 AM, Maria Cashion <[email protected]> wrote: > Please check out this other link when you have a chance. > > http://cml-iq.com/grapefruit-effect-need-know/ > > Love you all!!!!! > > Maria > > > > > > M > > > On Sun, Feb 22, 2015 at 8:28 AM, Maria Cashion <[email protected]> > wrote: > >> This is the link to the National CML Society directly to drug and food >> interactions: >> http://www.nationalcmlsociety.org/living-cml/drug-food-interactions >> >> LOVE YOU ALL!!!!! >> Maria >> >> On Sun, Feb 22, 2015 at 6:23 AM, <[email protected]> wrote: >> >>> [email protected] >>> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> >>> Google >>> Groups >>> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> >>> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> >>> Topic digest >>> View all topics >>> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> >>> >>> - ponatinib info >>> <#14bb145e92079af9_14bb142388125a7d_14bb0d02294a4d46_group_thread_0> >>> - 5 Updates >>> - Food that interacts with TKI's and other meds >>> <#14bb145e92079af9_14bb142388125a7d_14bb0d02294a4d46_group_thread_1> >>> - 2 Updates >>> >>> ponatinib info >>> <http://groups.google.com/group/cmlhope/t/5dfb95c0229110ae?utm_source=digest&utm_medium=email> >>> Icandoallttc <[email protected]>: Feb 21 10:18AM -0500 >>> >>> Hi John >>> Do you you remember how long the eye problem lasted! I have been having >>> them a few times daily now thanks. >>> >>> >>> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ]. 18,s >>> >>> John Barrons <[email protected]>: Feb 21 03:55PM >>> >>> Hi I had them quite a long time go. Each aura lasted about 3 to 5 >>> minutes. They occurred very intermittingly. Never found out why. I would >>> like to ask what does 18,s mean? >>> >>> On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope < >>> [email protected]> wrote: >>> >>> >>> Hi John Do you you remember how long the eye problem lasted! I have >>> been having them a few times daily now thanks. >>> >>> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ]. 18,s >>> On Feb 19, 2015, at 3:16 PM, Icandoallttc <[email protected]> wrote: >>> >>> >>> >>> Thanks John. That's what I having but with pain. I have suffered with >>> migraines most of my adult life but this is different. I hope it's a side >>> effect that will go away. Looks like the media working --yahoo! >>> >>> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ]. 18,s >>> On Feb 19, 2015, at 11:47 AM, "'John Barrons' via CMLHope" < >>> [email protected]> wrote: >>> >>> >>> I have a few auras which I understand they are migraine headaches >>> without the pain. I had an MRI to see if there was a problem and there >>> wasn't. Haven't them for a long time. No headaches or rashes. John b >>> >>> On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope < >>> [email protected]> wrote: >>> >>> >>> Hi John and thanks for walking me through this new med. Got a light >>> rash. Did you ever have an eye problem with headache?Thanks again. >>> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ]. 18,s >>> On Feb 19, 2015, at 11:01 AM, "'John Barrons' via CMLHope" < >>> [email protected]> wrote: >>> >>> >>> That's great your down to one pill a day. I am still on two a week. over >>> the last to weeks my counts have stayed the same except for wbc up from 5 >>> to 7. John B >>> >>> On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope < >>> [email protected]> wrote: >>> >>> >>> Thanks Marty. I will get some. Thank heavens it doesn't itch. My blood >>> counts were good today. Platelets 152. Doctor put me down to 1 pill >>> daily of ponatinib. Phosphatase is still high. Going to be a guessing >>> game till I get stable. You are right--still here fighting. Glad you >>> finally got some relief. >>> >>> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ]. 18,s >>> On Feb 18, 2015, at 7:43 PM, Marty Gartenberg <[email protected]> wrote: >>> >>> >>> Hi Jeanie and all of the rest, >>> I really feel badly for you having to go through all of this, but on the >>> bright side your all stil here to go through this. >>> As far as the rash and not being able to put anything on it, well that >>> really sucks. When will you be allowed to put something on your rash? >>> When I had my total body radiation my skin was burnt, my fingers, toes, >>> nose, ears feet, hands and other parts of my body were burned and looked >>> like I was in a fire. I was told that while I was having the radiation >>> treatments I could not put anything on any of these very severe burns, and >>> I really suffered through it. >>> As soon as my treatments were over they gave me Keri oil, then lotion. >>> Both of them did very little to help me. Then a friend of mine told me >>> about Bag Balm and I got it and started using it. Within two days my burns >>> were still there because they were from the radiation poisoning but after >>> putting that on it didn't hurt anymore. Everything healed up in less then a >>> week. >>> Then I had to start my immuno-suppression medication and the rashes >>> were severe. So, I remembered that Bag Balm and put that on and there was >>> instant relief. >>> I don't know if you have heard about Bag Balm but it is used for >>> livestock on their utters when all of the milking in cold weather makes >>> their utters chapped. >>> By the way, I bought the 8 oz tin more then 25 years ago and I still >>> have most of it left even though I use it all the time for skin >>> irritations. All you need is a very small amount. >>> 18's, >>> Marty >>> >>> Shop on Google >>> <image.jpeg>Bag Balm Protective Ointme...$3.89The Online >>> Drugs...<image.jpeg>Bag Balm Wound Treatment 8 oz$7.89<image.png>Valley Vet >>> Su...(9)<image.jpeg>Bag Balm โ 8 oz.$6.99California >>> Veterin...<image.jpeg>Dairy Association Co Inc Bag Balm...$7.49Drs. Foster >>> and S... >>> AdsWhy these ads? >>> >>> - >>> Where Can I Buy Bag Balmโ >>> wow.com/Where+Can+I+Buy+Bag+Balmโ >>> - >>> Search Where Can I Buy Bag Balm >>> Look Up Quick Results Now! >>> - >>> Huge Bag Balm Saleโ >>> www.luckyvitamin.com/BagBalmโ >>> - >>> 4.4 rating for luckyvitamin.comBuy Discount Bag Balm from Vermont >>> +35% Off - Free Shipping Available! >>> - >>> Bag Balm from Swansonยฎโ >>> www.swansonvitamins.com/BagBalmโ >>> - >>> Free Shipping on Any $50 Order. >>> Satisfaction GuaranteedโBuy Today! >>> - >>> Bag Balm For Dry Handsโ >>> www.vermontcountrystore.com/โ >>> - >>> 4.4 advertiser ratingBuy Items That Simplify Your Life. >>> Purveyors of Hard-to-Find Products. >>> - >>> Find super cheap Bag Balmโ >>> www.bag-balm.best-deal.com/โ >>> - >>> Get discount Bag Balm & save now. >>> BEST-DEAL.com - the search expert! >>> - >>> Bag Balm at Walmartโ >>> www.walmart.com/Lip_Careโ >>> - >>> 4.2 rating for walmart.comSave On Bag Balm At Walmart. >>> Free Shipping Site to Store. >>> - >>> Bag balm - 70% Offโ >>> bag-balm.stuccu.com/Dealโ >>> - >>> Lowest Price On Bag balm >>> Free shipping, in stock. Buy now! >>> - >>> Who Sells Bag Balm On Saleโ >>> bagbalm.entirelypets.com/โ >>> - >>> Low Price Guarantee On Bag Balm >>> Ointment. Up To 70% Off Pet Items! >>> - >>> >>> >>> >>> >>> On Wed, Feb 18, 2015 at 4:10 PM, ICANDOALLTTC via CMLHope < >>> [email protected]> wrote: >>> >>> Good evening to all,Below is some info on Ponatinib. The common side >>> effects are listed.The most common side effects reported in the clinical >>> trial include hypertension, rash, abdominal pain, fatigue, headache, dry >>> skin, constipation, fever, joint pain, and nausea.So far I have the rash, >>> headache, abdominal pain, dry skin, and nausea. Some of these I have had >>> before. The rash is quite bad, but they say don't put anything on >>> it.Blessings Jeanie<3Ponatinib >>> On December 14, 2012, the U. S. Food and Drug Administration granted >>> accelerated approval to ponatinib (Iclusig tablets, ARIAD Pharmaceuticals, >>> Inc.) for the treatment of adult patients with chronic phase, accelerated >>> phase, or blast phase chronic myeloid leukemia (CML) that is resistant or >>> intolerant to prior tyrosine kinase inhibitor therapy or Philadelphia >>> chromosome positive acute lymphoblastic leukemia (Ph+ALL) that is resistant >>> or intolerant to prior tyrosine kinase inhibitor therapy. The approval was >>> based on the results of the PACE trial, a multicenter, international, >>> single-arm clinical trial of 449 patients with disease that was resistant >>> or intolerant to prior tyrosine kinase inhibitor therapy. The primary >>> endpoints were Major Cytogenetic Response (MCyR) for patients with CP-CML >>> and Major Hematologic Response (MaHR) for patients with AP-CML, BP-CML or >>> Ph+ALL. FDA required that the sponsor commit to submit 24-month follow-up >>> data for all patients as a condition for the accelerated approval. The >>> efficacy results demonstrated a 54% MCyR rate in patients with CP-CML. >>> Seventy percent of patients with CP-CML with T315I mutation achieved MCyR. >>> The median duration of MCyR had not yet been reached at the time of >>> analysis. For patients with AP-CML, BP-CML and Ph+ ALL, the MaHR rates were >>> 52%, 31% and 41%, respectively. The median duration of MaHR in patients >>> with AP-CML, BP-CML and Ph+ ALL was 9.5 months, 4.7 months and 3.2 months >>> respectively. Iclusig is being approved with a Boxed Warning alerting >>> patients and healthcare professionals that arterial thrombosis and liver >>> toxicity have occurred in Iclusig-treated patients. The most common side >>> effects reported in the clinical trial include hypertension, rash, >>> abdominal pain, fatigue, headache, dry skin, constipation, fever, joint >>> pain, and nausea. The recommended dose and schedule for ponatinib is 45 mg >>> taken orally once daily with or without food. Full prescribing information >>> is available at: >>> http://www.accessdata.fda.gov/drugsatfda_docs/label/2012/203469lbl.pdf1 >>> Healthcare >>> professionals should report all serious adverse events suspected to be >>> associated with the use of any medicine and device to FDAโs MedWatch >>> Reporting System by completing a form online at >>> http://www.fda.gov/medwatch/report.htm2, by faxing (1-800-FDA-0178) or >>> mailing the postage-paid address form provided online, or by telephone >>> (1-800-FDA-1088). >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> Icandoallttc <[email protected]>: Feb 21 03:37PM -0500 >>> >>> I get real sensitive to light and then the auras and pain start. >>> >>> Here's what the pamphlet says >>> Effects on the eye: >>> Serious eye problems that can lead to blindness or blurred vision may >>> happen with Inclusig. Perceived flashes of light--light >>> sensitive_floaters__dry itchy eyes-- >>> >>> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >>> ๐ ]. 18,s >>> >>> John Barrons <[email protected]>: Feb 21 04:23PM -0500 >>> >>> Hi My eyes are more sensitive to light and I have dry eyes. I put drops >>> of Sustane Ultra in my eyes daily. My gp said to disregard the expiry date >>> on the bottle and discard the bottle every three after opening it. It is no >>> longer sterile. So don't buy a big bottle. John B >>> >>> Sent from my iPad >>> >>> Richard H <[email protected]>: Feb 21 08:50PM -0800 >>> >>> John, I'm also using Sustane Ultra for my eyes. I am supposed to be >>> using >>> Restasis but was allergic to it. I have secondary Sjorgrins Syndrome >>> from >>> a transfusion and Gleevec. The small samples or daily treatment are only >>> recommended for three times use. I have my eyes checked every six months >>> and am reminded not to touch my eye with the tip of the applicator. I >>> use >>> 1 drop 2 times in each eye every day and have had no problems for almost >>> 7 >>> years. So I guess its depends on the doctor or assistant that gives the >>> instructions. >>> >>> Richard H. >>> On Saturday, February 21, 2015 at 3:23:21 PM UTC-6, jb wrote: >>> >>> Back to top >>> <#14bb145e92079af9_14bb142388125a7d_14bb0d02294a4d46_digest_top> >>> Food that interacts with TKI's and other meds >>> <http://groups.google.com/group/cmlhope/t/6c581c51d2fd1ef3?utm_source=digest&utm_medium=email> >>> [email protected]: Feb 21 07:52AM -0800 >>> >>> HELLO!!! This is a very important topic and I believe that most of us >>> don't >>> consider it at all. I have known that there are juices and spices that >>> can >>> affect the way different medication interact with your body and even >>> between themselves. Medscape is a useful tool for drug interactions. >>> However, it is known tha grapefruit juice (which incidentaly I love) is >>> a >>> nono with almost all meds. It usually increases the effect of the meds. >>> I know, for example, that garlic is a nono for Sprycel, as well as teas >>> of >>> any kind....CMLIQ site has some recent information. Also, CML society. >>> >>> We must keep a watchfull eye on this type of information because it can >>> mean a lot in the performance of our medications and our lives!!!! >>> >>> >>> BE HAPPY and DO NOT WORRY!!!! GOD is always with us!!! >>> >>> Maria >>> Joyce Mesnarich <[email protected]>: Feb 21 12:21PM -0600 >>> >>> Thank you so much for sharing these information sources with us. We are >>> all wanting to know as much as possible about this ever-changing disease. >>> Joyce in IL >>> >>> >>> Back to top >>> <#14bb145e92079af9_14bb142388125a7d_14bb0d02294a4d46_digest_top> >>> You received this digest because you're subscribed to updates for >>> this group. You can change your settings on the group membership page >>> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/join> >>> . >>> To unsubscribe from this group and stop receiving emails from it send an >>> email to [email protected]. >>> >> >> > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
