Please check out this other link when you have a chance. http://cml-iq.com/grapefruit-effect-need-know/
Love you all!!!!! Maria M On Sun, Feb 22, 2015 at 8:28 AM, Maria Cashion <[email protected]> wrote: > This is the link to the National CML Society directly to drug and food > interactions: > http://www.nationalcmlsociety.org/living-cml/drug-food-interactions > > LOVE YOU ALL!!!!! > Maria > > On Sun, Feb 22, 2015 at 6:23 AM, <[email protected]> wrote: > >> [email protected] >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> >> Google >> Groups >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> >> Topic digest >> View all topics >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> >> >> - ponatinib info <#14bb142388125a7d_14bb0d02294a4d46_group_thread_0> >> - 5 Updates >> - Food that interacts with TKI's and other meds >> <#14bb142388125a7d_14bb0d02294a4d46_group_thread_1> - 2 Updates >> >> ponatinib info >> <http://groups.google.com/group/cmlhope/t/5dfb95c0229110ae?utm_source=digest&utm_medium=email> >> Icandoallttc <[email protected]>: Feb 21 10:18AM -0500 >> >> Hi John >> Do you you remember how long the eye problem lasted! I have been having >> them a few times daily now thanks. >> >> >> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ]. 18,s >> >> John Barrons <[email protected]>: Feb 21 03:55PM >> >> Hi I had them quite a long time go. Each aura lasted about 3 to 5 >> minutes. They occurred very intermittingly. Never found out why. I would >> like to ask what does 18,s mean? >> >> On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope < >> [email protected]> wrote: >> >> >> Hi John Do you you remember how long the eye problem lasted! I have been >> having them a few times daily now thanks. >> >> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ]. 18,s >> On Feb 19, 2015, at 3:16 PM, Icandoallttc <[email protected]> wrote: >> >> >> >> Thanks John. That's what I having but with pain. I have suffered with >> migraines most of my adult life but this is different. I hope it's a side >> effect that will go away. Looks like the media working --yahoo! >> >> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ]. 18,s >> On Feb 19, 2015, at 11:47 AM, "'John Barrons' via CMLHope" < >> [email protected]> wrote: >> >> >> I have a few auras which I understand they are migraine headaches without >> the pain. I had an MRI to see if there was a problem and there wasn't. >> Haven't them for a long time. No headaches or rashes. John b >> >> On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope < >> [email protected]> wrote: >> >> >> Hi John and thanks for walking me through this new med. Got a light >> rash. Did you ever have an eye problem with headache?Thanks again. >> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ]. 18,s >> On Feb 19, 2015, at 11:01 AM, "'John Barrons' via CMLHope" < >> [email protected]> wrote: >> >> >> That's great your down to one pill a day. I am still on two a week. over >> the last to weeks my counts have stayed the same except for wbc up from 5 >> to 7. John B >> >> On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope < >> [email protected]> wrote: >> >> >> Thanks Marty. I will get some. Thank heavens it doesn't itch. My blood >> counts were good today. Platelets 152. Doctor put me down to 1 pill >> daily of ponatinib. Phosphatase is still high. Going to be a guessing >> game till I get stable. You are right--still here fighting. Glad you >> finally got some relief. >> >> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ]. 18,s >> On Feb 18, 2015, at 7:43 PM, Marty Gartenberg <[email protected]> wrote: >> >> >> Hi Jeanie and all of the rest, >> I really feel badly for you having to go through all of this, but on the >> bright side your all stil here to go through this. >> As far as the rash and not being able to put anything on it, well that >> really sucks. When will you be allowed to put something on your rash? >> When I had my total body radiation my skin was burnt, my fingers, toes, >> nose, ears feet, hands and other parts of my body were burned and looked >> like I was in a fire. I was told that while I was having the radiation >> treatments I could not put anything on any of these very severe burns, and >> I really suffered through it. >> As soon as my treatments were over they gave me Keri oil, then lotion. >> Both of them did very little to help me. Then a friend of mine told me >> about Bag Balm and I got it and started using it. Within two days my burns >> were still there because they were from the radiation poisoning but after >> putting that on it didn't hurt anymore. Everything healed up in less then a >> week. >> Then I had to start my immuno-suppression medication and the rashes were >> severe. So, I remembered that Bag Balm and put that on and there was >> instant relief. >> I don't know if you have heard about Bag Balm but it is used for >> livestock on their utters when all of the milking in cold weather makes >> their utters chapped. >> By the way, I bought the 8 oz tin more then 25 years ago and I still have >> most of it left even though I use it all the time for skin irritations. All >> you need is a very small amount. >> 18's, >> Marty >> >> Shop on Google >> <image.jpeg>Bag Balm Protective Ointme...$3.89The Online >> Drugs...<image.jpeg>Bag Balm Wound Treatment 8 oz$7.89<image.png>Valley Vet >> Su...(9)<image.jpeg>Bag Balm โ 8 oz.$6.99California >> Veterin...<image.jpeg>Dairy Association Co Inc Bag Balm...$7.49Drs. Foster >> and S... >> AdsWhy these ads? >> >> - >> Where Can I Buy Bag Balmโ >> wow.com/Where+Can+I+Buy+Bag+Balmโ >> - >> Search Where Can I Buy Bag Balm >> Look Up Quick Results Now! >> - >> Huge Bag Balm Saleโ >> www.luckyvitamin.com/BagBalmโ >> - >> 4.4 rating for luckyvitamin.comBuy Discount Bag Balm from Vermont >> +35% Off - Free Shipping Available! >> - >> Bag Balm from Swansonยฎโ >> www.swansonvitamins.com/BagBalmโ >> - >> Free Shipping on Any $50 Order. >> Satisfaction GuaranteedโBuy Today! >> - >> Bag Balm For Dry Handsโ >> www.vermontcountrystore.com/โ >> - >> 4.4 advertiser ratingBuy Items That Simplify Your Life. >> Purveyors of Hard-to-Find Products. >> - >> Find super cheap Bag Balmโ >> www.bag-balm.best-deal.com/โ >> - >> Get discount Bag Balm & save now. >> BEST-DEAL.com - the search expert! >> - >> Bag Balm at Walmartโ >> www.walmart.com/Lip_Careโ >> - >> 4.2 rating for walmart.comSave On Bag Balm At Walmart. >> Free Shipping Site to Store. >> - >> Bag balm - 70% Offโ >> bag-balm.stuccu.com/Dealโ >> - >> Lowest Price On Bag balm >> Free shipping, in stock. Buy now! >> - >> Who Sells Bag Balm On Saleโ >> bagbalm.entirelypets.com/โ >> - >> Low Price Guarantee On Bag Balm >> Ointment. Up To 70% Off Pet Items! >> - >> >> >> >> >> On Wed, Feb 18, 2015 at 4:10 PM, ICANDOALLTTC via CMLHope < >> [email protected]> wrote: >> >> Good evening to all,Below is some info on Ponatinib. The common side >> effects are listed.The most common side effects reported in the clinical >> trial include hypertension, rash, abdominal pain, fatigue, headache, dry >> skin, constipation, fever, joint pain, and nausea.So far I have the rash, >> headache, abdominal pain, dry skin, and nausea. Some of these I have had >> before. The rash is quite bad, but they say don't put anything on >> it.Blessings Jeanie<3Ponatinib >> On December 14, 2012, the U. S. Food and Drug Administration granted >> accelerated approval to ponatinib (Iclusig tablets, ARIAD Pharmaceuticals, >> Inc.) for the treatment of adult patients with chronic phase, accelerated >> phase, or blast phase chronic myeloid leukemia (CML) that is resistant or >> intolerant to prior tyrosine kinase inhibitor therapy or Philadelphia >> chromosome positive acute lymphoblastic leukemia (Ph+ALL) that is resistant >> or intolerant to prior tyrosine kinase inhibitor therapy. The approval was >> based on the results of the PACE trial, a multicenter, international, >> single-arm clinical trial of 449 patients with disease that was resistant >> or intolerant to prior tyrosine kinase inhibitor therapy. The primary >> endpoints were Major Cytogenetic Response (MCyR) for patients with CP-CML >> and Major Hematologic Response (MaHR) for patients with AP-CML, BP-CML or >> Ph+ALL. FDA required that the sponsor commit to submit 24-month follow-up >> data for all patients as a condition for the accelerated approval. The >> efficacy results demonstrated a 54% MCyR rate in patients with CP-CML. >> Seventy percent of patients with CP-CML with T315I mutation achieved MCyR. >> The median duration of MCyR had not yet been reached at the time of >> analysis. For patients with AP-CML, BP-CML and Ph+ ALL, the MaHR rates were >> 52%, 31% and 41%, respectively. The median duration of MaHR in patients >> with AP-CML, BP-CML and Ph+ ALL was 9.5 months, 4.7 months and 3.2 months >> respectively. Iclusig is being approved with a Boxed Warning alerting >> patients and healthcare professionals that arterial thrombosis and liver >> toxicity have occurred in Iclusig-treated patients. The most common side >> effects reported in the clinical trial include hypertension, rash, >> abdominal pain, fatigue, headache, dry skin, constipation, fever, joint >> pain, and nausea. The recommended dose and schedule for ponatinib is 45 mg >> taken orally once daily with or without food. Full prescribing information >> is available at: >> http://www.accessdata.fda.gov/drugsatfda_docs/label/2012/203469lbl.pdf1 >> Healthcare >> professionals should report all serious adverse events suspected to be >> associated with the use of any medicine and device to FDAโs MedWatch >> Reporting System by completing a form online at >> http://www.fda.gov/medwatch/report.htm2, by faxing (1-800-FDA-0178) or >> mailing the postage-paid address form provided online, or by telephone >> (1-800-FDA-1088). >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> Icandoallttc <[email protected]>: Feb 21 03:37PM -0500 >> >> I get real sensitive to light and then the auras and pain start. >> >> Here's what the pamphlet says >> Effects on the eye: >> Serious eye problems that can lead to blindness or blurred vision may >> happen with Inclusig. Perceived flashes of light--light >> sensitive_floaters__dry itchy eyes-- >> >> Prayers & Blessings Jeanie [image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: ๐ ][image: >> ๐ ]. 18,s >> >> John Barrons <[email protected]>: Feb 21 04:23PM -0500 >> >> Hi My eyes are more sensitive to light and I have dry eyes. I put drops >> of Sustane Ultra in my eyes daily. My gp said to disregard the expiry date >> on the bottle and discard the bottle every three after opening it. It is no >> longer sterile. So don't buy a big bottle. John B >> >> Sent from my iPad >> >> Richard H <[email protected]>: Feb 21 08:50PM -0800 >> >> John, I'm also using Sustane Ultra for my eyes. I am supposed to be using >> Restasis but was allergic to it. I have secondary Sjorgrins Syndrome from >> a transfusion and Gleevec. The small samples or daily treatment are only >> recommended for three times use. I have my eyes checked every six months >> and am reminded not to touch my eye with the tip of the applicator. I use >> 1 drop 2 times in each eye every day and have had no problems for almost >> 7 >> years. So I guess its depends on the doctor or assistant that gives the >> instructions. >> >> Richard H. >> On Saturday, February 21, 2015 at 3:23:21 PM UTC-6, jb wrote: >> >> Back to top <#14bb142388125a7d_14bb0d02294a4d46_digest_top> >> Food that interacts with TKI's and other meds >> <http://groups.google.com/group/cmlhope/t/6c581c51d2fd1ef3?utm_source=digest&utm_medium=email> >> [email protected]: Feb 21 07:52AM -0800 >> >> HELLO!!! This is a very important topic and I believe that most of us >> don't >> consider it at all. I have known that there are juices and spices that >> can >> affect the way different medication interact with your body and even >> between themselves. Medscape is a useful tool for drug interactions. >> However, it is known tha grapefruit juice (which incidentaly I love) is a >> nono with almost all meds. It usually increases the effect of the meds. >> I know, for example, that garlic is a nono for Sprycel, as well as teas >> of >> any kind....CMLIQ site has some recent information. Also, CML society. >> >> We must keep a watchfull eye on this type of information because it can >> mean a lot in the performance of our medications and our lives!!!! >> >> >> BE HAPPY and DO NOT WORRY!!!! GOD is always with us!!! >> >> Maria >> Joyce Mesnarich <[email protected]>: Feb 21 12:21PM -0600 >> >> Thank you so much for sharing these information sources with us. We are >> all wanting to know as much as possible about this ever-changing disease. >> Joyce in IL >> >> >> Back to top <#14bb142388125a7d_14bb0d02294a4d46_digest_top> >> You received this digest because you're subscribed to updates for >> this group. You can change your settings on the group membership page >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/join> >> . >> To unsubscribe from this group and stop receiving emails from it send an >> email to [email protected]. >> > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
