I know exactly what you are talking about. Keep fighting!!! Faith and pills! It works.
Prayers & Blessings Jeanie 🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠. 18,s > On Apr 3, 2015, at 8:09 PM, David Bradley <[email protected]> wrote: > > Dear Joyce, > > Actually, God and I are in this for the duration and I (fortunately) don't > see that there are many alternatives to that. I only wish that when my > appetite goes bad, and I am feeling detached from the things that once might > have led me astray, that it would automatically create lots of face-time with > God. Instead I am checking my edema, taking my blood pressure, setting up > reminders to take my pills, worrying about my wife (a super care-taker who > also looks after an 88-year-old Mom), etc. Still, whenever I ask for God's > company, I usually get some sense of presence. It's not necessarily to fix > the problems: more to reset my compass. > > I have been very lucky with the care I've received, and I'm good for now. > I'm glad your husband has Dr. Talpaz (and you). I have learned to have a lot > of gratitude for these dedicated health care people (and my wife!). > > All the best to you and your husband, > David > > From: [email protected] > Subject: Re: [CMLHope] Dual Diagnosis: CLL/ CML > Date: Fri, 3 Apr 2015 12:37:14 -0500 > To: [email protected] > > David, > The Bible tells us that God will not give us more than we can handle, but I > think you are coming close. So sorry you have to deal with two blood > problems at the same time. I see you live in Northern Michigan. Have you > considered seeing Dr Talpaz in Ann Arbor at the University of Michigan Cancer > Center? My husband comes all the way from Southern Illinois to see him. He > is very knowledgable in CML and I am sure he treats other leukemia types as > well. He was instrumental in the formation of Gleevec and Sprycel and > several other TKIs. We recommend him highly. But I am sure you are getting > good care at Mayo. Please stay in touch and let us know how you are > progressing. You are in my prayers. God bless and keep you. > Joyce in IL > > > > On Apr 3, 2015, at 9:12 AM, גיורא wrote: > > Dear David > You are a special brave person and i wish you all the best and great success > on your dual fight. > You are the only person i have heard of that is on both Ibrutinib and > Imatinib at the same time > My best regards > Giora > > נשלח מה-iPhone שלי > > ב-3 באפר׳ 2015, בשעה 16:51, David Bradley <[email protected]> כתב/ה: > > Thanks Beth! > > Time for another update. Based on my PCR that was negative for CML in > December, and my looming CLL, I was taken off Gleevec, and started Imbruvica > for my CLL, with the hope that the CML would remain dormant. There have been > two slip-ups since then. The Imbruvica triggered a heart problem, an atrial > fibrillation in February. At the end of a week in hos[pital, I was given one > of those treatments with the electric paddles and fortunately immediately > went back into a good rhythm. Arriving home, I started a recovery process in > which I am still weaker than I was, but a bit better every day. > > Then it was time for a new PCR. My old nemesis, the Philadelphia chromosome, > was back (that was quick!). So now I am back on Gleevec. My Imbruvica has > to be on a 1/3 basis, since both drugs are Bruton's Tyrosine Kinase > inhibitors, and both use the CYP3A4 pathway. > > It has only been since December that I was off Gleevec, but my heartburn > reminds me of the main downside I had from it. Still, I have faith it can > keep the CML at bay. > > Anyway, as I said, I'm better every day, and besides, spring has finally come > to northern Michigan. > > David > > > > On Wednesday, December 17, 2014 at 12:35:08 PM UTC-5, Beth wrote: > Good luck to you David. It sounds so hard..glad you reconnected here....after > being diagnosed and doing well for 12 years....hope the meds support you well > with the CLL. happiest of holidays to you and yours. Beth. > > > > -----Original Message----- > From: Richard H <[email protected]> > To: cmlhope <[email protected]> > Cc: icandoallttc <[email protected]> > Sent: Sun, Dec 14, 2014 12:33 am > Subject: Re: [CMLHope] Dual Diagnosis: CLL/ CML > > I could not meet the requirements. I have too many other health issues that > would interfere with the results they were looking for. When I was first > diagnosed they ruled me out of a BMT for the same reasons. > > Richard H. > > On Saturday, December 13, 2014 2:07:12 PM UTC-6, Icandoallttc wrote: > Hi David > So good to hear from you. > Marty sent us a site not long ago about a study for going off Gleevec. There > are certain things you must meet to be in the study. > Glad you are negative. > Blessings > Jeanie > > Sent from my iPhone > > On Dec 13, 2014, at 12:00 PM, [email protected] wrote: > > Hi, > > Hello everyone. > > I have posted here long ago, when I was first diagnosed with CML, in 2003. > At the time, I started on Gleevec, and immediately had a Complete Remission, > via FISH. Unfortunately, I also showed signs of CLL, which was confirmed. > The CLL has been on "watchful waiting" until now. > > Recently my counts got very negative, due to the CLL, and I went to Mayo and > found I have a 17p deletion, which is quite negative. For the CLL, I will go > on Ibrutinib, a targeted therapy. Since Ibrutinib is a tyrosine kinase > inhibitor, I will need to stop Gleevec, at least for a while. > > I kind of wish my onc had been doing PCR's for a while, but at Mayo they did > one and found my CML was undetectable. > > Can anyone point me to any studies about stopping Gleevec after long periods > (in my case around 10 years) of Complete (or molecular) remission? > > The current plan is to check with regular PCR's for a reemergence of the > BCR-ABL. > > Best wishes to all... > > David > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to a topic in the Google > Groups "CMLHope" group. > To unsubscribe from this topic, visit > https://groups.google.com/d/topic/cmlhope/hz_PZAN5b-A/unsubscribe. > To unsubscribe from this group and all its topics, send an email to > [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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