Thanks Marty? My creatinine is 1.1 So happy your counts are doing good now I am good. I have to go and have a ct scan the end of the month. I have some small nodules on lungs. I have no breathing problems so don't think anything is wrong. Thanks again. ❤️
My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Oct 7, 2015, at 9:28 PM, Marty Gartenberg <[email protected]> wrote: > > Can you believe my hemb was 15?? That's to high for women. > Can you give me your kidney counts? Mine are high and my PCD says I have > chronic kidney disease but my onc says don't worry about it. > Thanks so much > > Hi Jeanie, > > As you must already know that I have been through the mill with kidney > problems. At first when all of this first started my Hemoglobin was at > between the upper 10s and rarely approaching the lower 11s. And ever since I > had the kidney transplant My creatnine levels was starting to slowly creep up > from when I was normal. From 1.3 to 8 and I had already started in dialysis. > > Once I received my kidney transplant the creatnine level started to decrease > until it was .9 to being now 1.23. That was probably due to the powerful > antibiotics because of my murser infection. Now that I am finished with all > of the picc line putting in those antibiotics I will have to wait until I get > checked the hospital to see what they are now. > > As far as what my hemoglobin is now it is 13.6 which I haven't had after my > bone marrow transplant and my kidney transplant until a week ago, so it is > obliviously working. > > Anyway I am thrilled that you are mmr. Keep up this great work > > 18's, > > Marty > > As far as both of your doctors giving conflicting information who do you > believe? > > I think that I already know, and the key to this is hemoglobin. > And by the way your PCD says you have chronic kidney disease but my onc says > don't worry about it." and your hemoglobin is at 15 which is not that high in > some woman. And that is because as being a woman your body was "built" for > women having a cycle period every month, and Your onc tells you not to worry > about it. > > Now I want you to think about something and it may get complicated. > > When your kidneys begin to fail then your hemoglobin becomes less and less, > and they sometimes start you on a hormone that normally comes from your > kidneys, and it goes to your bone marrow called Procrit or Epogin. It helps > you from being so anemic which is what your hemoglobin does to help increase > it and it and being so that is why your your kidneys may not now be producing > that hormone and without that hormone your kidney function will most probably > start to increase. > > Now I am not a doctor but I have already been through all of this. I told > you that it was complicated. If it were me again I would tend to choose the > onc, but that is me. > > > So for so good?. Okay > >> On Wed, Oct 7, 2015 at 9:29 AM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> Hi Richard. >> Happy for good news. Can you believe my hemb was 15?? That's to high for >> women. >> Can you give me your kidney counts? Mine are high and my PCD says I have >> chronic kidney disease but my onc says don't worry about it. >> Thanks so much >> >> My Motto: Faith and Pills >> Jeanie 🐟🐟18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >>> On Oct 7, 2015, at 12:01 AM, Richard H <[email protected]> wrote: >>> >>> All is good at this house. Saw Kidney Dr. and my tests have improved the >>> last 3 times. Took my CBC and I am keeping my Hem. is holding at 10. I >>> hope it stays there until the end of Nov. when I visit my ONC. >>> >>> My wife is improving, and will see the Dr. Oct. 21st to see if she can >>> start putting weight on the right side. Shoulder seems to be healing >>> nicely. She has the healing knot on the shoulder and is feeding herself >>> with her right hand and is raising the upper arm to almost shoulder height >>> without pain. We are hoping she can come home in Nov. when she can get out >>> of the wheel chair and up and down without help. Due to heart surgery and >>> a pacemaker all I can due is call for help if she has a problem. >>> >>> 18's >>> >>> Richard H. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
