Hi Suzie,

Back in June of this year, I need to get my Gleevec refilled. When I went
to pick it up I was told my total would be $ 18,987.00 for one month. I
take 600mg a day. I almost fell on the floor right there at the counter. It
just so happens, my husbands insurance decided they were changing companies
and they were no longer going to cover retirees. The company never sent out
anything telling him of the switch and I have to say that total was a
shock. The pharmacist was nice enough to hold the medication until we could
get it sorted out which took a week.

Come to find out the insurance company shut off the insurance to soon as my
husband's company hadn't had a chance to sent out the new information and
cards. I did find out that for one month of 400mg of Gleevec my current
refill price is $10,301.00 and the 100mg is $5,830.00, and that is as of
September. Of course I don't pay that, but that was what was listed on the
invoice to the insurance company. Thank goodness for the insurance.

Glad you got your insurance situation straighten out.

L'chaim

Sherri

On Fri, Oct 30, 2015 at 8:30 PM, Marty Gartenberg <[email protected]> wrote:

> Hi Suzie,
>
> Before I start let me run a few numbers by you. First 90.43 today's
> closing in the stock market for Novartis. Another number 91.9200 that's
> what it was worth in September. Finally another number 20. That is what is
> was when Novartis started manufacturing STI-571. Maybe you haven't heard of
> it then but that is now the drug called Gleevec. And there is a story
> behind it having to do with a lot of money.
>
> Now for some history:
>
> Some of you may remember my friend Zavie. Most of us "old timers" probably
> do. When Dr. Druker was having some trials and one of the people was Zavie
> Miller who lived up in Canada.
>
> What the problem was that Novartis was basically a company that would
> produce pharmaceuticals for veterinary needs. So when STI-571 was just
> about finished with STI-571/Gleevec  Novartis was urged to start production
> on it but the money needed was simply not there as it would probably be
> needed.
>
> There were probably a few CML sites scattered around so Zavie and I got
> the idea of getting in touch with a few "higher up's in Novartis which we
> finally did. We then spoke with them and we then asked for any monetary
> support. It was a long story but people did start buying it for $20 a
> share, which was more then what was expected, and that was more then
> expected. And that's exactly what happened.
>
> Now I would like to explain something:  When I first starting with my
> computer I decided to support the CML groups and started asking around for
> any one looking to buy any stock. Most of then did and so did I. In fact so
> did a lot of other people followed around and then the baby was born.
>
> So let's take a look at the stock market. Gleevec, sold for $20 a share
> and todays
>
> On Fri, Oct 30, 2015 at 7:16 PM, Suzieq <[email protected]> wrote:
>
>> *Hello my fellow Survivors:  *
>>
>> *Well, my hubby and I had a great big surprise when he went to refill his
>> prescription for blood pressure medicine a couple of weeks ago. He found
>> out that we had been dropped by our previous insurance as of September
>> 30th.  Wasn't that sweet......no notice what so ever! Thank goodness that I
>> have a few bottles of Gleevec on hand as it came time to reorder.  Anyhoo,
>>  he put us in for COBRA and got us started as of last Friday.  When we sold
>> our business last spring,  the new owners were to keep our insurance going
>> for at least one year after the sale,  but that did not happen.  You cannot
>> trust people today to do what they tell you they will do.  At least we
>> found out in the time period to get the other started.  Now,  we are
>> covered for the next 18 months.  *
>>
>> * Here is what I wanted to tell you that I learned.......my husband had
>> me call to order my Gleevec as there was a chance that I was still
>> covered.  The pharmacy tech told me that "no, I wasn't until Dec. 1st" (not
>> true now, have a new card)  anyway, I just asked her what the cost of
>> 100mgs. of Gleevec for one month would cost if one had to pay cash money.
>> She checked and came back on and said "$3000".  I was stunned.....I told
>> her that I sure thought that the price would have gone down,  instead it is
>> like it went up more since I first started taking it.  The last price I had
>> while I was still doing 400mgs. and that was around 4 and 1/2 years ago, it
>> was getting really close to that $6000 mark for 1 month.  The reason I knew
>> the cost,  the stupid pharmacy I ordered thru the mail from included a
>> receipt of the cost.  I always thought it odd for them to do that since I
>> paid a co-pay of 25$ back then,  but oh well, it was interesting to watch
>> the price rise each month.   I kept thinking that Novartis wouldn't have
>> dibs on the Patent any longer by now and the price would drop and Generic
>> brand would be in the works.  Guess that is what I get for thinking! :)*
>>
>> Let's all keep looking up!
>>
>> Suzieq
>>
>>
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