Re: [CMLHope] Hi john 11th month on ponatinib

Thu, 12 Nov 2015 17:02:26 -0800 





    Hi Jeanie, I know you know that you are in the palm of His hand and He is 
watching over you. A great response for brain fog foibles is this...."Yes, I am 
having a smooth transition into senility." Might as well laugh cuz it makes 
others laugh also.
The side pain is I'm sure hard to ignore. Why wait til January for a pet scan? 
Seems like it will cost you less if you get it this year due to deductibles, 
etc. Remember you are your best advocate...no one knows your body like you. 
Sounds like your numbers are tolerable. I had to increase my bosulif to 200 mg 
and doing just fine so far.
May we all be thankful in this season for the many blessings we all enjoy in 
this USA. I know I am thankful I don't have to hold down a j.o.b. anymore, but 
enjoy retirement. While my hubby still is working his bippy off! 
18's and blessings, Susan Z.


Sent from my Sprint phone



------ Original message------From: Marty GartenbergDate: Wed, Nov 11, 2015 
12:02 PMTo: [email protected];Subject:Re: [CMLHope] Hi john 11th month 
on ponatinib
Oh Jeanie, Jeanie what am I going to do with you? Everything that you must be 
going through and I can say that I am familiar with most of this stuff. Been 
there and done that, but I just know that your going to be alright. 
It's the same for me and mostly everyone that has to go through any type of 
health problems, because they are usually frightened about what will happen. 
Now can I say that have I ever been frightened, and my answer is yes. However I 
just have to do whatever I need to do to keep myself going and so far no matter 
what I was put through I am still running around and still living, well so far 
I am. 
It's the attitude of people that really matters. A lot of people may not 
understand me or my attitude because of the way I keep my life in order. If I 
were to wander around with everything that I have already been through then How 
would my lief be?  I don't think that it would be as good as I would like it to 
be. Doesn't everyone understand why I always end any of my posts with 18's? 
It's because of living my life
Jeanie let me remind you, and by the way everyone else for that matter of a 
poem that I have already sent. And please if you will notice the very last word,
18's
Marty
EXPECT THE BEST, MINDOVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO 
HAVE SUCCESS ATANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU 
EXPECT THE WORSETHEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF 
YOU EXPECT THEBEST THEN THAT IS WHAT YOU WILL GET.WHAT WE HAVE TO LEARNTO DO IS 
TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT ANDNOT TO 
DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY.WHEN 
YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVESINTO THE 
AREA OF POSSIBILITY.EVERY GREAT THINGEVENTUALLY BECOMES POSSIBLE FOR YOU. MY 
BELIEF AT THE BEGINNING OF A DOUBTFULUNDERTAKING IS THE ONE THING THAT INSURES 
THE SUCCESSFUL OUTCOME...FOCUS...


On Wed, Nov 11, 2015 at 9:22 AM, 'Icandoallttc' via CMLHope 
<[email protected]> wrote:
Hi John and all.  Just checking in to see how you are doing.
I am in my 11th month of ponatinib.
I seem to be doing good. WBC have been a little high but onc didn't seem to 
care.
Now he worries about some nodes on lungs.
Might do pet scan first of year.  Have you had one?
Still have dry skin and bad pain under right ribs.  Have brain fog also.
I hope everyone is good.

My Motto: Faith and Pills
Jeanie 🐟🐟18,s
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

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