Hi Susan and so glad to hear from you. I had a ct scan the first of the year and they found nothing to indicate what was causing my side pain. They did find some nodes on my lungs and the onc was more concerned over these. I have had this pain in my side for years but nothing shows up on testing. I can only have scans done when my onc sets them up at Moffitt. So I am seeing him the first of Dec and will get it set up then.
I have been fighting this leukemia for 11 years now and you know how I fight it! I love that you say I am in His hands because that is just how I feel. We don't understand why we go through these trials but One knows and is watching over us. I remember when I was in the hospital getting my blood cleansed. I had this tube sticking out of my neck; the blood cleansing machine was taking my blood out, cleansing it and putting it back in. All I could think to do was to say psalms 23. I have repeated this psalm many times since. Keep up the good work and happy thought to you today. My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Nov 12, 2015, at 8:01 PM, 'Susan Zimmerman' via CMLHope > <[email protected]> wrote: > > Hi Jeanie, > I know you know that you are in the palm of His hand and He is watching over > you. A great response for brain fog foibles is this...."Yes, I am having a > smooth transition into senility." Might as well laugh cuz it makes others > laugh also. > > The side pain is I'm sure hard to ignore. Why wait til January for a pet > scan? Seems like it will cost you less if you get it this year due to > deductibles, etc. Remember you are your best advocate...no one knows your > body like you. > > Sounds like your numbers are tolerable. I had to increase my bosulif to 200 > mg and doing just fine so far. > > May we all be thankful in this season for the many blessings we all enjoy in > this USA. I know I am thankful I don't have to hold down a j.o.b. anymore, > but enjoy retirement. While my hubby still is working his bippy off! > > 18's and blessings, Susan Z. > > > > Sent from my Sprint phone > > ------ Original message------ > From: Marty Gartenberg > Date: Wed, Nov 11, 2015 12:02 PM > To: [email protected]; > Subject:Re: [CMLHope] Hi john 11th month on ponatinib > > Oh Jeanie, Jeanie what am I going to do with you? Everything that you must be > going through and I can say that I am familiar with most of this stuff. Been > there and done that, but I just know that your going to be alright. > > It's the same for me and mostly everyone that has to go through any type of > health problems, because they are usually frightened about what will happen. > > Now can I say that have I ever been frightened, and my answer is yes. However > I just have to do whatever I need to do to keep myself going and so far no > matter what I was put through I am still running around and still living, > well so far I am. > > It's the attitude of people that really matters. A lot of people may not > understand me or my attitude because of the way I keep my life in order. If I > were to wander around with everything that I have already been through then > How would my lief be? I don't think that it would be as good as I would like > it to be. Doesn't everyone understand why I always end any of my posts with > 18's? It's because of living my life > > Jeanie let me remind you, and by the way everyone else for that matter of a > poem that I have already sent. And please if you will notice the very last > word, > > 18's > > Marty > > EXPECT THE BEST, MINDOVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. > TO HAVE SUCCESS ATANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF > YOU EXPECT THE WORSETHEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) > IF YOU EXPECT THEBEST THEN THAT IS WHAT YOU WILL GET. > > WHAT WE HAVE TO LEARNTO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF > MIND. LEARN TO EXPECT ANDNOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING > INTO THE REALM OF POSSIBILITY.WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT > TO BE IMPOSSIBLE THEN MOVESINTO THE AREA OF POSSIBILITY. > > EVERY GREAT THINGEVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE > BEGINNING OF A DOUBTFULUNDERTAKING IS THE ONE THING THAT INSURES THE > SUCCESSFUL OUTCOME... > > FOCUS... > > > > >> On Wed, Nov 11, 2015 at 9:22 AM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> Hi John and all. Just checking in to see how you are doing. >> I am in my 11th month of ponatinib. >> I seem to be doing good. WBC have been a little high but onc didn't seem to >> care. >> Now he worries about some nodes on lungs. >> Might do pet scan first of year. Have you had one? >> Still have dry skin and bad pain under right ribs. Have brain fog also. >> I hope everyone is good. >> >> My Motto: Faith and Pills >> Jeanie 🐟🐟18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
