Hi Jeanie: my ponatinib was increased in the hospital to get the wbc count down. My oncologist did not think I had gone into Blast phase and he was right. He did not do a pcr test, but the counts came back down to my normal fairly quickly. Thanks for asking. JohN B
Sent from my iPad > On Feb 12, 2016, at 5:24 PM, 'Icandoallttc' via CMLHope > <[email protected]> wrote: > > I hope every thing will be good John. Did they treat your CML while you were > in the hospital? Did they increase your ponatinib to get the counts down? > Do they do PCR test on your blood? > I got a bill from Moffitt and it was over $2000. I found out it is the PCR > test that's so expensive. They never gave me the results from it. > My insurance paid most of the bill. > Blessings. > > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > >> On Feb 12, 2016, at 4:04 PM, Marty Gartenberg <[email protected]> wrote: >> >> Ok, let's see what happens at your next blood test. >> I just had one this morning and sorry to say my WBC was only 1.87 so that >> puts me having a problem with immunity but I know that it is coming from the >> CMV virus that I am having so I have to be very careful until the reduced >> medication starts to work again. In the mean time I have gotten some >> terrible mouth sores just like I got when I had the bone marrow transplant >> caused by all of the Chemo and radiation. Something that I will never >> forget. Believe it or not that was by far the worst part of it. However I >> just try not to complain about it. And do you know why? I'm still alive >> today. >> >> And now you know what 18's stands for... Life! >> >> So I bid you many more 18's. >> >> Marty >> >>> On Fri, Feb 12, 2016 at 5:49 AM, John Barrons <[email protected]> wrote: >>> Hi My wbc last Tuesday were 4.2, platelets 43 and hemo 103. I will next >>> have a cbc a week this Tuesday. John >>> >>> Sent from my iPad >>> >>>> On Feb 12, 2016, at 6:59 AM, Marty Gartenberg <[email protected]> wrote: >>>> >>>> Hi John, >>>> >>>> What are your WBC now? I know a man who lives in Canada a very long time >>>> ago actually more then 35 years ago and he never took any TKI's but he did >>>> take something and it did "burn out his Leukemia" but unfortunately he has >>>> to have blood transfusions I think every two weeks. He is the longest >>>> surviving person in this world. >>>> >>>> I probably am in there as well logging in going on 27 years after having a >>>> bone marrow transplant. >>>> >>>> Different people react to different things and sometimes some of them >>>> defies the logic of these things that are just meant to be. Hey you seem >>>> to be one of them👍 >>>> Good luck to you! >>>> >>>> Remember what 18's stands for. >>>> >>>> Marty >>>> >>>>> On Thu, Feb 11, 2016 at 8:01 AM, <[email protected]> wrote: >>>>> I am taking ponatinib like Jeanie in Tampa. I need to take only one pill >>>>> a week to keep the counts low. the counts do fluctuate from time to >>>>> time. There does not seem to an answer for the white blood cells to have >>>>> increased so suddenly. My oncologist did not think it was a change to >>>>> blast phase. So I go once a week or once every two weeks to check them. >>>>> John B. >>>>> >>>>> >>>>> On Wednesday, February 10, 2016 11:06 PM, Marty Gartenberg >>>>> <[email protected]> wrote: >>>>> >>>>> >>>>> Hi John, >>>>> >>>>> First let me say hello to your wife, and believe me I personally know >>>>> what she has been going through. >>>>> >>>>> Now what I can't understand why your white blood count went over 100,000. >>>>> And what pill have you been taking? Usually you need to be taking more >>>>> then 1 pill and that should be every day. So John I am really puzzled. >>>>> >>>>> I wish you as well as your wife the very best, because of mainly what you >>>>> wrote. Yes, life is good. >>>>> >>>>> If you have been reading any of my posts I always end them with 18's >>>>> which is a symbol for life. >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>> On Wed, Feb 10, 2016 at 4:45 PM, John Barrons <[email protected]> wrote: >>>>> Hi Jeanie and to all: Well, where do I start. Before last Christmas, I >>>>> was not feeling very well. My oncologist said if I felt worse go to >>>>> emergency, which I did on Dec 26. I had pneumonia and as I result my >>>>> heart was having trouble. In addition, my white blood count went over >>>>> 100,000. I was in hospital until Jan 16 when I was transferred to a rehab >>>>> centre to gain back some strength. I arrived back at home last Saturday, >>>>> so glad to be home I can't begin to say. All is well as far as the things >>>>> that were wrong. Mind you I have to gain a lot of weight back. The >>>>> leukemia is back to normal and I am on 1 pill per week. That was along >>>>> time to be away and I was difficult for my wife also. 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