Wow Angie! My platelets go high not low. So sorry to hear that. I did have transfusions on Tasigna as my platelets went under 8. I think he could have taken me off meds and they would have gone up. Every thing is good now.
My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 24, 2016, at 8:37 PM, ANGELYN ESDERS <[email protected]> wrote: > > Hi. Marcie. > Did your platelets also bottom out with your red cells? > A year ago April I lost almost every single platelet, and also needed 6 blood > transfusions in a week. The specialists had blamed it on my lupus. > I recovered and strangely lost a LOT of hair....but I have been very well > since then. My hair is growing back. > Have been in remission from CML since July 2001. I have been off Gleevec for > 10 months now. So far so good. > With a tag-team like leukemia and lupus, one never knows what to expect next. > Anyway, Life is good. No complaints. > Angie in Canada > > > From: 'Marcie Goodman' via CMLHope <[email protected]> > To: [email protected] > Sent: Thursday, March 24, 2016 5:07 PM > Subject: Re: [CMLHope] To Susan Zimmerman > > Susan, as always, I have you and Roy in my prayers. Please let us know how > your test turns out. > > I just got out of hospital because my red cells bottomed out and I became > very sick. So some transfusions and several days later, just came home. I > will be undergoing more tests, might have gallbladder problem which arose > after I was discharged, naturally! Ultrasound tomorrow. Never dull but > always interesting! > > Marcie > > > > Sent from my iPhone > >> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope >> <[email protected]> wrote: >> >> Thanks for the encouragement. I may write him but not confident he would >> have any different answers. Dr. Jessica Altman is completely on top of >> things for me. I"ve been to two other specialists at Nwestern to dig into >> causes....nothing unusual except cavernous malformations turns up. Have >> checked everything at least three times over the yrs. So again off meds >> hopefully for a long time unless #'s go high. >> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! >> Hope all is well with you! >> Susan F. Zimmerman >> "All who humble themselves before the Lord shall be given every blessing, >> and shall have wonderful peace." Ps.37:11 >> >> >> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope >> <[email protected]> wrote: >> >> Susan: >> >> Are you able to have an appointment with Dr. Druker in Portland, Oregon? >> >> At least email him >> >> Hugs, >> Susan Rosenthal >> >> Have a wonderful day >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
