Hi, Marcie.I was sick last year for 5 months, in hospital 3 times...with
anemia, low platelets, and finally broken ribs from passing out.I was having a
bird this year about my hair loss. Unreal! It started growing in again after
Christmas, after I had already bought a wig. I suspect that it was low iron and
lots of unusual drugs that made me lose my hair. It's fine now. Lupus also can
affect hair, but so far so good. When I gave my brother a kidney in 1979, in
the months following the transplant, my hair was coming out at an alarming
rate. I guess after all the drugs got out of my system it eventually all grew
back.It was terrifying for me to be losing my hair.That which does not kill us
only makes us stronger...Angie
From: 'Marcie Goodman' via CMLHope <[email protected]>
To: [email protected]
Sent: Saturday, March 26, 2016 1:26 PM
Subject: Re: [CMLHope] To Susan Zimmerman
Angie, what a time you have had! It must be a pleasure to be off the Gleevec.
My platelets and counts were good. The red cells and everything related to them
were off. Looks like I have perhaps developed severe iron deficient anemia.
I'll be having more labs and tests to try and figure it out. I'm thrilled to be
home and I'm from much better.
Seven years of Gleevec destroyed my hair. So wigs for me and I love it. Never
have a bad hair day and never have to spend a second on it!
Stay well. So good to hear from you.
Marcie
Sent from my iPhone
On Mar 24, 2016, at 8:37 PM, ANGELYN ESDERS <[email protected]> wrote:
Hi. Marcie.Did your platelets also bottom out with your red cells?A year ago
April I lost almost every single platelet, and also needed 6 blood transfusions
in a week. The specialists had blamed it on my lupus. I recovered and strangely
lost a LOT of hair....but I have been very well since then. My hair is growing
back.Have been in remission from CML since July 2001. I have been off Gleevec
for 10 months now. So far so good.With a tag-team like leukemia and lupus, one
never knows what to expect next.Anyway, Life is good. No complaints.Angie in
Canada
From: 'Marcie Goodman' via CMLHope <[email protected]>
To: [email protected]
Sent: Thursday, March 24, 2016 5:07 PM
Subject: Re: [CMLHope] To Susan Zimmerman
Susan, as always, I have you and Roy in my prayers. Please let us know how your
test turns out.
I just got out of hospital because my red cells bottomed out and I became very
sick. So some transfusions and several days later, just came home. I will be
undergoing more tests, might have gallbladder problem which arose after I was
discharged, naturally! Ultrasound tomorrow. Never dull but always interesting!
Marcie
Sent from my iPhone
On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope
<[email protected]> wrote:
Thanks for the encouragement. I may write him but not confident he would have
any different answers. Dr. Jessica Altman is completely on top of things for
me. I"ve been to two other specialists at Nwestern to dig into
causes....nothing unusual except cavernous malformations turns up. Have checked
everything at least three times over the yrs. So again off meds hopefully for a
long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best
answers are through prayer!!!Hope all is well with you!Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and
shall have wonderful peace." Ps.37:11
On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope
<[email protected]> wrote:
Susan:
Are you able to have an appointment with Dr. Druker in Portland, Oregon?
At least email him
Hugs,
Susan Rosenthal
Have a wonderful day
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