Hi Kate, I was on Gleevec for 5 years and it can cause every kind of rash. I had bad painful rash and boils. I found you just have to treat the side effects as best you can. I was given hydrocortizone cream and used home treatments also. One side effect can end and then another will pop up. Just be patient and try to get relief when you can. God bless you.
My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Apr 5, 2016, at 11:14 PM, bkbarney via CMLHope <[email protected]> > wrote: > > Dear Kate, > > Sorry it has taken a a little while for me to write to you, but I want to > welcome you to our group....along with all the others here, it is a very > special place to give and receive support...so do stay close, and hopefully, > we can all continue to learn from one another...regarding your question..I > was diagnosed at 48, and several others here are younger than me, so I am not > sure if your skin conditions are related to age verses medication side > effects or/ and toxicity...I know that sometimes changing doses helped as > long as CML is managed well...also, sometimes, if it is in response to a new > medication uptake it can be an allergic response, or even an auto immune > response..which sometimes is helped with short term steroids..of course they > can cause their own side effects..as it is medication induced, the rashes, > raised bumps, even large red raised look like acne but are not...areas, are a > part of the side effect profiles of several of the cml meds...I would keep > working with your doc around this, don't hesitate to ask questions, like has > he or she ever seen this before with gleevec etc...??Has it been successfully > been treated on others???with what??? > > Take care, my best, 18 > s > > > Beth > > > -----Original Message----- > From: kathy walls <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, Mar 29, 2016 12:42 pm > Subject: Re: [CMLHope] To Susan Zimmerman > > Hi all, > I am real new to the CML world only 14 months out from diagnosis. I have > learned a lot from reading posts here. It's been helpful. My dr is a CML dr > and I've had very good results medicine wise but he has no answers for side > effects.... Specially bad acne break outs. All he says it's because I'm on > the young side to have developed CML. I'm almost 57. Been seeing a > dermatologist but results have been minimal. Anyone out there got any > suggestions? I'm taking 200mg daily of gleevec. Was on 400 of tasigna which > was hell on earth. Anything would be helpful. > 18's > Kate > > Sent from my iPhone > > On Mar 28, 2016, at 9:51 PM, 'Susan Zimmerman' via CMLHope > <[email protected]> wrote: > > Marcie, > So glad the gall bladder settled down. I give our God ALL the credit for > that! So sorry to hear about your husband's issues as well. Is he doing ok > now? Not sposed to take turns at the hospital. How will you ever get in a > vacation? Blessings at Passover time. > Love, > > Susan F. Zimmerman > "All who humble themselves before the Lord shall be given every blessing, and > shall have wonderful peace." Ps.37:11 > > > On Saturday, March 26, 2016 'Marcie Goodman' via CMLHope > <[email protected]> wrote: > > Thanks, Susan. I missed an appointment for blood labs because my husband was > in the hospital and having complications from his medical issues. No one to > blame but myself. > > The pain on side has gone so at least for now I'm not going to worry about > it. I'll be following up this week with my doctor for more labs and tests. > > So glad you are doing well. This is the season for miracles and I wish you > and Roy and the family a happy and very blessed Easter. > > Marcie > > Sent from my iPhone > > On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope > <[email protected]> wrote: > > So sorry to hear about a hospital stay. These are not places we want to hang > out....low red cells does not sound good, but I'm sure you have great docs. > Was that low a gradual thing or quick? Seems they should or could have caught > it before you bottomed out if it was gradual. > I sure hope it turns out the gallbladder is fine. He still heals today so > I'll pray! You could have gotten time off work in an easier way, I'm sure. > Hope you gets lots of extra tlc and consider this part of it!!! You are > special to me and many others on here! Keep us updated!!! > 18's and fight on, > Susan F. Zimmerman > "All who humble themselves before the Lord shall be given every blessing, and > shall have wonderful peace." Ps.37:11 > > > On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope > <[email protected]> wrote: > > Susan, as always, I have you and Roy in my prayers. Please let us know how > your test turns out. > > I just got out of hospital because my red cells bottomed out and I became > very sick. So some transfusions and several days later, just came home. I > will be undergoing more tests, might have gallbladder problem which arose > after I was discharged, naturally! Ultrasound tomorrow. Never dull but > always interesting! > > Marcie > > > > Sent from my iPhone > > On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope > <[email protected]> wrote: > > Thanks for the encouragement. I may write him but not confident he would have > any different answers. Dr. Jessica Altman is completely on top of things for > me. I"ve been to two other specialists at Nwestern to dig into > causes....nothing unusual except cavernous malformations turns up. Have > checked everything at least three times over the yrs. So again off meds > hopefully for a long time unless #'s go high. > Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! > Hope all is well with you! > Susan F. Zimmerman > "All who humble themselves before the Lord shall be given every blessing, and > shall have wonderful peace." Ps.37:11 > > > On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope > <[email protected]> wrote: > > Susan: > > Are you able to have an appointment with Dr. Druker in Portland, Oregon? > > At least email him > > Hugs, > Susan Rosenthal > > Have a wonderful day > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of 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