Hi Kathy, I actually have had 96 blood transfusions as well as dozens of platelet infusions not mention about a dozen Gamagloblin infusions while I was having my bone marrow transfusion. Let me explain why. I was born with type O+ blood. Since my donor (my sister) was B+ and also a perfect HLA match but the only problem was our different blood types. I had to become what is called a Chimera. And unlike a solid organ transplant where the blood typing must be the same between the donor and that have to be reciprocal of each other. That is why I had to have so many blood transfusions.
Now it is over twenty seven years later and I had to have a kidney transplant and the donor was also a perfect HLA match and even our blood types matched. Now one more piece of information. If my Kidney came from a living donor then it would be okay to have a blood type of O+ but not from a deceased donor. They are making some progress in mis-matched organ transplants. So in my case I didn't acquire CML because I didn't have to have all of those blood transfusions, I got CML before I got all of the transfusions. Kathy, I would love to put you into the zero Zavie's list but even though I am number 1 on it I am unable to do it unfortunately Zavie is no longer with us. However I am so glad to hear about your progress in getting rid of those nasty cells is working so well. 18's, Marty On Sat, May 21, 2016 at 1:43 PM, kathy walls <[email protected]> wrote: > Marty > Have you heard about one have had mega blood transfusions getting CML? > Since 2005 I have over 25 transfusions due to sever blood loss during > sugeries? Happy to say now I'm at 0.04!!!! Can I get a Zevia ### > > Sent from my iPhone > > On May 21, 2016, at 12:04 PM, Marty Gartenberg <[email protected]> wrote: > > Jeanie, > > It all comes down to something that I wrote about the why's... > > Why me? or Why not me. > > You asked since no one in your family ever had Leukemia then why did you? > Also why me? Believe me I have tons of information that I have collected > for over 27 years and I have stumbled into some of them. > > Since I have been an Electrical Engineer for most of my life I had to work > on many projects concerning very high voltages that also included high > amounts of radio frequencies especially from some of the power stations > that feed radio and television transmitters. > > I had some friends that used to work for Con Edison in one of the power > sub stations which I had to be involved with from time to time. Whenever I > would enter the felicity the hair on my head and arms would stand on edge > even though some of those high voltage tunnels required everyone in those > high voltage areas had to wear something called a Faraday shield and some > of the power coming into that felicity from the main generating station was > around 500,000 volts. > > As it turned out there were six people working in the facility but not > every time in those high voltage tunnels, but I guess enough for everyone > to have acquired cancer of different kinds, mostly Leukemia AML but also > brain, lung and Myelodysplastic Syndrome which proved fatal to all of them > except for the one with Myelodysplastic Syndrome which had no cure. > > Amazingly he seemed to have beaten it without any explanation from the > doctor, and I actually recommended him to that doctor because I knew one of > the doctors at the time that I had my bone marrow transplant 26 years ago > that specialized in Myelodysplastic Syndrome so I asked him does > this ever happen? He told me that every once in a while it does happen. > > That man never returned to working with anything to do with high voltage > electricity. Eventually when I moved to Florida we lost contact with each > other. > > There was another article that I read about power lines that ran through > the back yards of peoples homes and it was found that a small percentage of > those people that lived near any power lines that had about 13,000 volts > did in fact have a higher chance of them getting cancer then those that did > not live near ant power lines. > > Also how about what is in the our water or air or the food that we eat and > drink? So let's say that if you are not the one that has the then it May not > happen to you. Who knows? Only time may tell? > > 18's, > > Marty > > > On Sat, May 21, 2016 at 10:49 AM, 'Icandoallttc' via CMLHope < > [email protected]> wrote: > >> Yes Marty I've always wondered why I got leukemia. I am the youngest of >> 11 children and no cancer in family except lung cancer and 1 breast cancer >> in my older sister. >> I didn't even know much about leukemia when I was dx. >> Even with fighting cml for 12 years I have had a full rich life. >> I got to go to the mountains with my daughters and granddaughter. We >> stayed in a beautiful cabin high in the mountains. >> We toured the Great Smoky Mountains and they are beautiful. >> I am now spending a week with my daughters and we are enjoying our visit. >> Yes we are born and then we die but sickness teaches us to live each day >> as it comes love each other with the time God gives us. >> Blessings to all >> ❤️❤️ >> >> My Motto: Faith and Pills❤️ >> With 💗Jeanie 🐟🐟18,s Chi >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >> On May 20, 2016, at 10:30 AM, Marty Gartenberg <[email protected]> wrote: >> >> *I was thinking about most of us that have been through a mirage of >> illnesses, myself included, and in thinking about it I have come to the >> conclusion "why me" syndrome. However rather saying this, even though we >> may be suffering in our own ways why not say "why not me"?.* >> >> *In effect anyone that has had any health disturbance/s in their lives >> are in fact a wounded solider, however, it has also become that wounds heal >> and this makes us go on. * >> >> *I remember two movies that put an impression on me. One was the >> Shawshank Redemption. One of the characters, Morgan Freeman told an inmate >> that "you either get to living or get to dying.* >> >> *The other was Forrest Gump, played by Tom Hanks. He was sitting on a >> bench at a bus stop and was talking to a woman who was a total stranger to >> him. One of the remarks he made, and this was after his mother had passed >> away. He said she once taught him a lesson about life, "life is like a box >> of chocolates you never know what you will get" * >> >> >> >> >> >> *When we think about it the one thing that we still have is life. We also >> know that every person in this world will have already been borne and >> eventually will have to die, it is just how we live our lives in between >> those times that really matters, and makes us what we are.* >> >> *Try to be kind to most people, be compassionate, say hello every one >> once in a while.* >> *Remember, that life is what you put in to it, and get out of it. * >> *18,s* >> >> *Marty Gartenberg* >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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