Yes great news!!! The only thing I was doing different was donating blood and getting tooth X-rays and dental work. I did live by a farm that sprayed insecticides a lot. I had taken a plane trip on which I thought the coffee tasted terrible. We were very free with insecticides in the 50s. Who knows??? We were all exposed but only I got CML. What a great warrior you are Marty!!! Love ya!!!
> On May 21, 2016, at 9:37 PM, Marty Gartenberg <[email protected]> wrote: > > Hi Kathy, > > I actually have had 96 blood transfusions as well as dozens of platelet > infusions not mention about a dozen Gamagloblin infusions while I was having > my bone marrow transfusion. Let me explain why. I was born with type O+ > blood. Since my donor (my sister) was B+ and also a perfect HLA match but the > only problem was our different blood types. I had to become what is called a > Chimera. And unlike a solid organ transplant where the blood typing must be > the same between the donor and that have to be reciprocal of each other. > That is why I had to have so many blood transfusions. > > Now it is over twenty seven years later and I had to have a kidney transplant > and the donor was also a perfect HLA match and even our blood types matched. > Now one more piece of information. If my Kidney came from a living donor then > it would be okay to have a blood type of O+ but not from a deceased donor. > > They are making some progress in mis-matched organ transplants. > > So in my case I didn't acquire CML because I didn't have to have all of those > blood transfusions, I got CML before I got all of the transfusions. > > Kathy, I would love to put you into the zero Zavie's list but even though I > am number 1 on it I am unable to do it unfortunately Zavie is no longer with > us. > > However I am so glad to hear about your progress in getting rid of those > nasty cells is working so well. > > 18's, > > Marty > >> On Sat, May 21, 2016 at 1:43 PM, kathy walls <[email protected]> >> wrote: >> Marty >> Have you heard about one have had mega blood transfusions getting CML? Since >> 2005 I have over 25 transfusions due to sever blood loss during sugeries? >> Happy to say now I'm at 0.04!!!! Can I get a Zevia ### >> >> Sent from my iPhone >> >>> On May 21, 2016, at 12:04 PM, Marty Gartenberg <[email protected]> wrote: >>> >>> Jeanie, >>> >>> It all comes down to something that I wrote about the why's... >>> >>> Why me? or Why not me. >>> >>> You asked since no one in your family ever had Leukemia then why did you? >>> Also why me? Believe me I have tons of information that I have collected >>> for over 27 years and I have stumbled into some of them. >>> >>> Since I have been an Electrical Engineer for most of my life I had to work >>> on many projects concerning very high voltages that also included high >>> amounts of radio frequencies especially from some of the power stations >>> that feed radio and television transmitters. >>> >>> I had some friends that used to work for Con Edison in one of the power sub >>> stations which I had to be involved with from time to time. Whenever I >>> would enter the felicity the hair on my head and arms would stand on edge >>> even though some of those high voltage tunnels required everyone in those >>> high voltage areas had to wear something called a Faraday shield and some >>> of the power coming into that felicity from the main generating station was >>> around 500,000 volts. >>> >>> As it turned out there were six people working in the facility but not >>> every time in those high voltage tunnels, but I guess enough for everyone >>> to have acquired cancer of different kinds, mostly Leukemia AML but also >>> brain, lung and Myelodysplastic Syndrome which proved fatal to all of them >>> except for the one with Myelodysplastic Syndrome which had no cure. >>> >>> Amazingly he seemed to have beaten it without any explanation from the >>> doctor, and I actually recommended him to that doctor because I knew one of >>> the doctors at the time that I had my bone marrow transplant 26 years ago >>> that specialized in Myelodysplastic Syndrome so I asked him does >>> this ever happen? He told me that every once in a while it does happen. >>> >>> That man never returned to working with anything to do with high voltage >>> electricity. Eventually when I moved to Florida we lost contact with each >>> other. >>> >>> There was another article that I read about power lines that ran through >>> the back yards of peoples homes and it was found that a small percentage of >>> those people that lived near any power lines that had about 13,000 volts >>> did in fact have a higher chance of them getting cancer then those that did >>> not live near ant power lines. >>> >>> Also how about what is in the our water or air or the food that we eat and >>> drink? So let's say that if you are not the one that has the then it May not >>> happen to you. Who knows? Only time may tell? >>> >>> 18's, >>> >>> Marty >>> >>> >>>> On Sat, May 21, 2016 at 10:49 AM, 'Icandoallttc' via CMLHope >>>> <[email protected]> wrote: >>>> Yes Marty I've always wondered why I got leukemia. I am the youngest of >>>> 11 children and no cancer in family except lung cancer and 1 breast cancer >>>> in my older sister. >>>> I didn't even know much about leukemia when I was dx. >>>> Even with fighting cml for 12 years I have had a full rich life. >>>> I got to go to the mountains with my daughters and granddaughter. We >>>> stayed in a beautiful cabin high in the mountains. >>>> We toured the Great Smoky Mountains and they are beautiful. >>>> I am now spending a week with my daughters and we are enjoying our visit. >>>> Yes we are born and then we die but sickness teaches us to live each day >>>> as it comes love each other with the time God gives us. >>>> Blessings to all >>>> ❤️❤️ >>>> >>>> My Motto: Faith and Pills❤️ >>>> With 💗Jeanie 🐟🐟18,s Chi >>>> Dx 1/2004. CML Leukemia >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib January 2015 >>>> Dr Balducci Moffitt Cancer Center >>>> >>>>> On May 20, 2016, at 10:30 AM, Marty Gartenberg <[email protected]> wrote: >>>>> >>>>> I was thinking about most of us that have been through a mirage of >>>>> illnesses, myself included, and in thinking about it I have come to the >>>>> conclusion "why me" syndrome. However rather saying this, even though we >>>>> may be suffering in our own ways why not say "why not me"?. >>>>> In effect anyone that has had any health disturbance/s in their lives are >>>>> in fact a wounded solider, however, it has also become that wounds heal >>>>> and this makes us go on. >>>>> I remember two movies that put an impression on me. One was the Shawshank >>>>> Redemption. One of the characters, Morgan Freeman told an inmate that >>>>> "you either get to living or get to dying. >>>>> The other was Forrest Gump, played by Tom Hanks. He was sitting on a >>>>> bench at a bus stop and was talking to a woman who was a total stranger >>>>> to him. One of the remarks he made, and this was after his mother had >>>>> passed away. He said she once taught him a lesson about life, "life is >>>>> like a box of chocolates you never know what you will get" >>>>> >>>>> >>>>> When we think about it the one thing that we still have is life. We also >>>>> know that every person in this world will have already been borne and >>>>> eventually will have to die, it is just how we live our lives in between >>>>> those times that really matters, and makes us what we are. >>>>> Try to be kind to most people, be compassionate, say hello every one once >>>>> in a while. >>>>> Remember, that life is what you put in to it, and get out of it. >>>>> 18,s >>>>> Marty Gartenberg >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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