I'm still a newbie was diagnosed 1/9 and started tasigna on the 23rd, oh yeah I'm lucky enough to have the ph chromosome to boot. I stopped tasigna in December because of horrible side effects, I got an awful rash and cysts. Switched to Gleevev and I feel much better, but did dr said at this level i will never see remission. I'm ok with that. Quality of like is much important to me than quantity. I'm 56 I have a 4 yr old grandson and 3 month old grandson. I'd much rather a little pep in my step than being in remission but to sick to anything! Just my thoughts. We all are fighting the same fight each in our way BEST TO ALL. -18's Kate
Sent from my iPhone > On May 30, 2016, at 8:55 PM, Marty Gartenberg <[email protected]> wrote: > > Yes Jeanie, > > we are still all kicking! Jeanie what happened in the past according to your > oncologist about you being to old should remain in the past and I will tell > you why. I also want you to think about something called BASHERT, which I > have already mentioned many times. It's meaning is it was meant to be. Sound > familiar? I believe that things that are meant to be are predestined. > > For instance this site, and everyone that reads it or posts on it are meant > to be because all of us are still kicking (as you said) and we all share this > disease called CML and let's not forget that. > > There are so many stories that surrounds us and every one of them are meant > to be. We all stand here and try help each other. Why? it's because it is > meant to be. We give of each other, and also to each other, and you know what > I am talking about. It is all about trying to live our lives the best way > that we can. > > Also, all of these new TKI's weren't they all predestined or if you like, > meant to be? That is how I look at things, how about you? And how about > everyone else here? > > Why do you think I always end any of my posts with those two numbers? 18's, > because it stands for life, and isn't that we have now. > > 18's, > > Marty > >> On Mon, May 30, 2016 at 5:41 PM, 'Jeanie' via CMLHope >> <[email protected]> wrote: >> Thank you so very much Marty. >> If I knew then what I knew today I think I would have >> Had the transplant. My onc at that time thought I >> Was too old. However I'm still alive and kicking >> After 4 tkis. I am sick; I can't seem to kick this flu. >> Just resting after my vacation. >> I sure had a good time with family. >> Thanks for all as usual. >> >> Sent from my iPhone >> >>> On May 30, 2016, at 4:57 PM, Marty Gartenberg <[email protected]> wrote: >>> >>> >>> Hi again Jeanie, >>> >>> I just spoke with my good friend Gloria today and I asked her if she >>> wouldn't mind for me to send you and the rest of the group three of her >>> pictures. One before her BMT, one during her BMT and one about one year >>> after her BMT. She thought it was a very good idea. She also mentioned that >>> she would like to try getting onto this CML site and introduce herself so >>> please be on the lookout for her. >>> >>> The main thing here is those pictures which proves that there is life after >>> a bone marrow transplant. Think about something else... What about those >>> 1,286 people, including myself which now makes it 1,287. >>> >>> 18's, >>> >>> Marty >>> >>> Scroll down please... >>>> >>>> >>> >>> >>> GLORIA >>> >>> Forward >>> Edit subject >>> Pop out reply >>> >>> >>> To >>> >>> [email protected] >>> >>> CcBcc >>> Cc >>> >>> Bcc >>> >>> >>> >>> Replies will be sent from [email protected] >>> Loading... >>> >>> >>> >>> >>> <image.png> >>> >>> >>> >>> Image: >>> Small|Best fit|Original size|Remove >>> >>> >>> >>> >>> >>> >>> Sans Serif >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
