Marty, Marty, Marty, I'm so happy your back. I sure am thinking all good thoughts for you. greenie In a message dated 9/10/2016 2:47:40 P.M. Eastern Daylight Time, [email protected] writes:
Hi Beth, sorry to hear about Mr.Hands. They are so precious and when pass on it feels like a knife cut your heart open. This took me almost one hour to write because as you probably know I fell and broke my neck and trying to get back to myself. 1'8s Marty On Sat, Sep 10, 2016 at 12:37 PM, bkbarney via CMLHope <[email protected]_ (mailto:[email protected]) > wrote: Dear Norm, \Long time know hear from you!!! It was wonderful to catch up and be reminded of your history...I hope that you can retire well when the time comes. Good news about your son...I remember you sharing about Mr. Hans....so sad....Mr Buster sounds like a stitch..hopefully he both trainable and lovable. What an amazing thing that you have been on Tasigna for 12 years...I know you have had your ups and downs...but it is still inspiring to hear....so thanks... I needed the inspiration today..and Marty...we are all here..cheering you on!!!!! for everyone out there today who might read this...all the usual suspects, as well as those who read but don't post...thanks for being here... my news is that I got bitten by a poisonous spider in the leg... blew up...huge red swollen..then antibiotics for the infection which I had a bad arthritic reaction to..I think personally it was an interaction with sprycel...but anyway, I have so much pain the last three days in my knees and legs.. I can hardly walk...so, off the antibiotic today..and hopefully the infection will get better with time...or they will put me on a new one to try...always something...but I still am blessed..and happy for my sprycel..keeps me here...enjoying the sunsets..and the coming fall...and my 17 year old pouch.. Gracie....just adore here to pieces... so understand Norm, your comments about Hans. Love to all, 18's Beth -----Original Message----- From: Norm <[email protected]_ (mailto:[email protected]) > To: CMLHope <[email protected]_ (mailto:[email protected]) > Sent: Sat, Sep 10, 2016 9:14 am Subject: [CMLHope] Just checking in Just wanted to check in with the group. I miss Millie too. We both owned dachshunds. We lost Mr. Hans to lymphoma earlier this year which was one of the hardest things I have ever had to do. It was the first time in my life that I had the responsibility for ending his suffering. The vet was just awesome with his gentleness, understanding and care. Mr. Hans was 12. It was harder than making funeral arrangements for my mother, she was still living at the time which makes it easier I suppose. My mother had a great sense of humor. When we returned to her hospice care room she woke up and remarked that we were not gone long. She had a great laugh when I told her that all they wanted to know was paper or plastic. We got a new dachshund from a rescue organization. His name is Buster and he seems to like reading. He has devoured about 5 books from our coffee table and tears through the pages. I really liked some of those books and he thought they were quite tasty. Bad Buster. For those that are new or do not know my history: I was dropped on my head when I was a baby and cracked my skull. When I was in the fourth grade, I rode my bicycle into an intersection and was hit by a speeding car driven by a 14 year old girl that was being chased by her brother. She hit me then a tree. The tree died. I t was a teenager during the late 60s and early 70s. I lost a kidney to cancer in 99. Diagnosed with CML on April fools day 2003 with a WBC of 250,000. Started Gleevec and chemo with apherisis. Remission until the fall of 2004. Entered a phase 1 clinical trial for AMN107 which became Tasigna in early December. My blood counts bottomed out and the drug was withheld for about a month. January of 2005 I entered the blast phase and the drug company allowed the doctors at MDACC to restart the drug. Had to have blood and platelets infused a number of times before my counts started coming back up. While in the hospital I determined that one eye was not as bright as the other and found out I had cataracts which turned out to not be the cause but it was an issue with my retinas. I saw 5 different eye specialist and the best they could come up with was a leukemic cell intrusion into my eyes. I had radiation treatment on my eyes. It turned out it was not a leukemic cells issue but wet macular degeneration. Started Avastin shots in my right eye and by that time had lost my central vision in my left eye due to the scarring from the leakage. Vision is now fixed with contact lens correction of 20/400 left and 20/200 right. I still work, but do not tell anyone I am still driving (much better than those idiots on their cell phones texting I should add). I should probably change my nickname from Bubba to Lucky. I played a lot of golf earlier this year, I know a blind golfer but I love the game, until I got severe tendonitis in both arms. It was my own fault for not warming up and stretching and thinking I am as young as I think and not as old as I am. I can still break 90 and almost broke 80 on a day the putts could not miss the hole. beats me. My son is home from the Marines after 4 years and achieving the rank of Sargent. He is now in college part time to get his GPA up so he can transfer his credits to a four year college. I am hoping U of H, go Cougars. I apologize for such a long post but I try to keep up with all of the groups posts. I have been watching Jeanie's progress and pray for her and all the group. We both enjoy cruising so we have more than CML in common. I wanted to visit Millie when I was visiting my brother in law in Pittsburgh but the time and distance did not work out for us. I would have loved to meet her in person. She really enjoyed quilting and chatted about the big quilt convention here in Houston as well as our dogs. I have been on Tasigna for almost 12 years now. My doctor says to thank God and I do. It is great to have a doctor that understands and knows that miracles do happen and he is a tool of God. I feel blessed that circumstances occurred that had him take over my treatment from one of the other doctors on his staff. I still do not understand why God has taken such good care of me and kept me around. I suppose somewhere along the way, somehow, I will have made a difference. Your posts are inspirational with all that each have been through. Having never been undetectable, I still hope that one day it will be that way for me. In the meantime, I am working on retiring and have set a date a couple of years out so I can train a couple more people to do what i do. Y'all keep the faith. Norm PS: Dang Marty, didn't your mother ever tell you if you don't stop doing that you will break your neck. Get well soon -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to CMLHope-_unsubscribe@unsubscribe@<WBR_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@cmlhope+unsubscr_ (mailto:[email protected]) . 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