Hi Beth and so good to hear from you. My liver test all come back good. This is a mystery pain and they can't find out what it is. Would probably have to have surgery to find it and I haven't wanted to risk it. I just take it day by day. Did your bite get better? Hope you are good. Blessings
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 12, 2016, at 7:00 PM, bkbarney via CMLHope <[email protected]> > wrote: > > so sorry jeannie, my mistake. Under right rib..would that be liver pain???who > knows???? I feel for you, whatever it is...you have such a great disposition, > and sense of humor..hehe...that just makes me smile...so you take care and > have ag reat day. > > > Love, Beth. > > > -----Original Message----- > From: 'Jeanie' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Sun, Sep 11, 2016 4:04 pm > Subject: Re: [CMLHope] Just checking in > > Hi Beth and so sorry you got bitten. I was once bitten by a scorpion. That > really hurt. > Yes it's good to hear from everyone so keep posting. > My ct scan showed several things wrong but this old body is aging and I'm > taking a powerful chemo. Some times I wonder if I really want to know what's > inside my body. Hehe > Don't know what to do about my pancreas. I've read that diet is really the > only thing you can do so I'm on low fat diet and low sugar. I had my pain > before the pancreas showed up bad do unless my pancreas is under my right rib > I don't think that's the pain problem. > I have no in digestive problems. Strange. > Well day by day trusting in our Light. > Blessings. > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > > On Sep 10, 2016, at 12:37 PM, bkbarney via CMLHope <[email protected]> > wrote: > > Dear Norm, > > Long time know hear from you!!! It was wonderful to catch up and be reminded > of your history...I hope that you can retire well when the time comes. Good > news about your son...I remember you sharing about Mr. Hans....so sad....Mr > Buster sounds like a stitch..hopefully he both trainable and lovable. What > an amazing thing that you have been on Tasigna for 12 years...I know you have > had your ups and downs...but it is still inspiring to hear....so thanks... I > needed the inspiration today..and Marty...we are all here..cheering you > on!!!!! > > for everyone out there today who might read this...all the usual suspects, as > well as those who read but don't post...thanks for being here... > > my news is that I got bitten by a poisonous spider in the leg... blew > up...huge red swollen..then antibiotics for the infection which I had a bad > arthritic reaction to..I think personally it was an interaction with > sprycel...but anyway, I have so much pain the last three days in my knees and > legs.. I can hardly walk...so, off the antibiotic today..and hopefully the > infection will get better with time...or they will put me on a new one to > try...always something...but I still am blessed..and happy for my > sprycel..keeps me here...enjoying the sunsets..and the coming fall...and my > 17 year old pouch.. Gracie....just adore here to pieces... so understand > Norm, your comments about Hans. > > Love to all, 18's Beth > > > > > -----Original Message----- > From: Norm <[email protected]> > To: CMLHope <[email protected]> > Sent: Sat, Sep 10, 2016 9:14 am > Subject: [CMLHope] Just checking in > > Just wanted to check in with the group. > I miss Millie too. We both owned dachshunds. > We lost Mr. Hans to lymphoma earlier this year which was one of the hardest > things I have ever had to do. > It was the first time in my life that I had the responsibility for ending his > suffering. The vet was just awesome with his gentleness, understanding and > care. Mr. Hans was 12. > It was harder than making funeral arrangements for my mother, she was still > living at the time which makes it easier I suppose. > My mother had a great sense of humor. When we returned to her hospice care > room she woke up and remarked that we were not gone long. > She had a great laugh when I told her that all they wanted to know was paper > or plastic. > We got a new dachshund from a rescue organization. His name is Buster and he > seems to like reading. He has devoured about 5 books from our coffee table > and tears through the pages. I really liked some of those books and he > thought they were quite tasty. Bad Buster. > > For those that are new or do not know my history: > I was dropped on my head when I was a baby and cracked my skull. > When I was in the fourth grade, I rode my bicycle into an intersection and > was hit by a speeding car driven by a 14 year old girl that was being chased > by her brother. She hit me then a tree. The tree died. > I t was a teenager during the late 60s and early 70s. > I lost a kidney to cancer in 99. > Diagnosed with CML on April fools day 2003 with a WBC of 250,000. Started > Gleevec and chemo with apherisis. > Remission until the fall of 2004. > Entered a phase 1 clinical trial for AMN107 which became Tasigna in early > December. My blood counts bottomed out and the drug was withheld for about a > month. > January of 2005 I entered the blast phase and the drug company allowed the > doctors at MDACC to restart the drug. > Had to have blood and platelets infused a number of times before my counts > started coming back up. > While in the hospital I determined that one eye was not as bright as the > other and found out I had cataracts which turned out to not be the cause but > it was an issue with my retinas. > I saw 5 different eye specialist and the best they could come up with was a > leukemic cell intrusion into my eyes. I had radiation treatment on my eyes. > It turned out it was not a leukemic cells issue but wet macular degeneration. > Started Avastin shots in my right eye and by that time had lost my central > vision in my left eye due to the scarring from the leakage. > Vision is now fixed with contact lens correction of 20/400 left and 20/200 > right. I still work, but do not tell anyone I am still driving (much better > than those idiots on their cell phones texting I should add). I should > probably change my nickname from Bubba to Lucky. > > I played a lot of golf earlier this year, I know a blind golfer but I love > the game, until I got severe tendonitis in both arms. It was my own fault for > not warming up and stretching and thinking I am as young as I think and not > as old as I am. I can still break 90 and almost broke 80 on a day the putts > could not miss the hole. beats me. > > My son is home from the Marines after 4 years and achieving the rank of > Sargent. He is now in college part time to get his GPA up so he can transfer > his credits to a four year college. I am hoping U of H, go Cougars. > > I apologize for such a long post but I try to keep up with all of the groups > posts. I have been watching Jeanie's progress and pray for her and all the > group. We both enjoy cruising so we have more than CML in common. I wanted > to visit Millie when I was visiting my brother in law in Pittsburgh but the > time and distance did not work out for us. I would have loved to meet her in > person. She really enjoyed quilting and chatted about the big quilt > convention here in Houston as well as our dogs. > > I have been on Tasigna for almost 12 years now. My doctor says to thank God > and I do. It is great to have a doctor that understands and knows that > miracles do happen and he is a tool of God. > I feel blessed that circumstances occurred that had him take over my > treatment from one of the other doctors on his staff. > > I still do not understand why God has taken such good care of me and kept me > around. I suppose somewhere along the way, somehow, I will have made a > difference. > > Your posts are inspirational with all that each have been through. Having > never been undetectable, I still hope that one day it will be that way for > me. In the meantime, I am working on retiring and have set a date a couple of > years out so I can train a couple more people to do what i do. > > Y'all keep the faith. > Norm > > PS: Dang Marty, didn't your mother ever tell you if you don't stop doing that > you will break your neck. Get well soon > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
