I have never been able to quit tkis. My counts go sky high and I am in accelerated phase quickly. Good luck to those who can.
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Dec 15, 2016, at 12:18 AM, Richard H <[email protected]> wrote: > > I understand 50% isn't the best in the results, but when I had a choice of > problems with Gleevec or going without you might last only 2 years. I took > the break and stayed off Gleevec for 6 1/2 years. Everyone must look at > their situation and if ONC agrees to monitor your counts, you can be possibly > be a winner of those that helps make that # go higher. Just my personal > approach to try and increase the the winning side of this war with CML. My > relapse was caught early on and the regular 400 mg took right over and no big > Numbers have shown up since my diagnosis in 2002. > > 18's > > Richard H. > >> On Wednesday, December 14, 2016 at 2:14:01 PM UTC-6, Vivi wrote: >> I'm not quite satisfied with 50%...rather remain on Gleevec and be certain I >> don't relapse. >> >>> On Sun, Nov 6, 2016 at 5:12 AM, <[email protected]> wrote: >>> >>> [email protected] Google Groups >>> Topic digest >>> View all topics >>> This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!!!!! - >>> 1 Update >>> This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!!!!! >>> >>> Richard H <[email protected]>: Nov 05 09:42PM -0700 >>> >>> Ryan Romero >>> Today at 12:11 PM >>> >>> - >>> - >>> >>> Hi everyone!!! >>> >>> I hope you all are doing well and continuing the fight! >>> >>> I wanted to share with you all a fantastic front page article in CURE >>> Magazine and also ask you if anyone has tried or had success with the LAST >>> Trial. I know some of you have asked your oncologists about this in the >>> past but never say any updates. >>> >>> For those that don't know what this trial is; after 3-4 years of pcrU on >>> TKIs (your chemo- gleevec for me), they are pulling people off gradually. >>> Reports show 50% remain pcrU !!! >>> >>> Today is a bad day for me. I'm tried of the side effects of treatment and >>> overall just tired. Needing some inspiration I picked up my CURE Magaizine >>> and noticed that CML was on the front page. Here's a link below. >>> >>> http://www.curetoday.com/publications/cure/2016/hematology-2-2016/targeted-power-improving-prognoses-for-patients-with-chronic-myeloid-leukemia >>> . >>> >>> >>> Ryan "chemo-sabi" >>> dx-10.27.2009 >>> Interferon-10/09-12/09 >>> Gleevec-400mg 1xd-12/09-02-11 >>> BCR-ABL- undetectable 2/2011 >>> 02/2011-Today- 400mg gleevec >>> Back to top >>> You received this digest because you're subscribed to updates for this >>> group. You can change your settings on the group membership page. >>> To unsubscribe from this group and stop receiving emails from it send an >>> email to [email protected]. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
