Hi Susan, Glad to hear it. A most healthy and happy New Year to you and all of your loved ones.
18's, Marty On Tue, Dec 27, 2016 at 10:52 PM, 'Susan Rosenthal' via CMLHope < cmlhope@googlegroups.com> wrote: > I am one of those 50% people not on Gleevec. I was on Gleevec for almost > 13 years. I go out to Portland, Oregon, and see Dr. Druker all the way > from Miami. > > I've been off Gleevec now since October 2, 2015. I've remained > undetectable so far. > > Hugs, > Susan Rosenthal > > Have a wonderful day😊 > > On Dec 27, 2016, at 9:06 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Jeanie, > > Another year is about to come upon us. I'm sure that you will always > remember January 2004 that's just about fourteen years and you are still > here! If it wasn't for any of the TKI's then would have happened? > > Well I think that your catching up with me. You are 14 years out and I am > 27 years out. A difference of 13 years give or take. Now your catching up. > And I noticed that you are also using those two numbers as well. They are > called LIFE. > > 18's, > > Jeanie > > Marty > > On Tue, Dec 27, 2016 at 10:15 AM, 'Jeanie' via CMLHope < > cmlhope@googlegroups.com> wrote: > >> I have never been able to quit tkis. My counts go sky high and I am in >> accelerated phase quickly. Good luck to those who can. >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >> On Dec 15, 2016, at 12:18 AM, Richard H <rbhuffm...@gmail.com> wrote: >> >> I understand 50% isn't the best in the results, but when I had a choice >> of problems with Gleevec or going without you might last only 2 years. I >> took the break and stayed off Gleevec for 6 1/2 years. Everyone must look >> at their situation and if ONC agrees to monitor your counts, you can be >> possibly be a winner of those that helps make that # go higher. Just my >> personal approach to try and increase the the winning side of this war with >> CML. My relapse was caught early on and the regular 400 mg took right over >> and no big Numbers have shown up since my diagnosis in 2002. >> >> 18's >> >> Richard H. >> >> On Wednesday, December 14, 2016 at 2:14:01 PM UTC-6, Vivi wrote: >>> >>> I'm not quite satisfied with 50%...rather remain on Gleevec and be >>> certain I don't relapse. >>> >>> On Sun, Nov 6, 2016 at 5:12 AM, <cml...@googlegroups.com> wrote: >>> >>>> cmlhope@googlegroups.com >>>> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> >>>> Google >>>> Groups >>>> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> >>>> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> >>>> Topic digest >>>> View all topics >>>> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> >>>> >>>> - This was posted on our Yahoo site - WE ALL NEED TO READ THE >>>> ARTICLE!!!!! >>>> >>>> <#m_-4647447971261697116_m_3512663305719614869_CAEDTp2pMb37fD_qtv9Si4bFF1XeXx9qt7jbn3xVYuBYtNJFs_Q@mail.gmail.com_m_-3285202243326054360_group_thread_0> >>>> - 1 Update >>>> >>>> This was posted on our Yahoo site - WE ALL NEED TO READ THE >>>> ARTICLE!!!!! >>>> <http://groups.google.com/group/cmlhope/t/eee756b1ca2c3f7d?utm_source=digest&utm_medium=email> >>>> Richard H <rbhuf...@gmail.com>: Nov 05 09:42PM -0700 >>>> >>>> Ryan Romero >>>> Today at 12:11 PM >>>> >>>> - >>>> - >>>> >>>> Hi everyone!!! >>>> >>>> I hope you all are doing well and continuing the fight! >>>> >>>> I wanted to share with you all a fantastic front page article in CURE >>>> Magazine and also ask you if anyone has tried or had success with the >>>> LAST >>>> Trial. I know some of you have asked your oncologists about this in the >>>> past but never say any updates. >>>> >>>> For those that don't know what this trial is; after 3-4 years of pcrU >>>> on >>>> TKIs (your chemo- gleevec for me), they are pulling people off >>>> gradually. >>>> Reports show 50% remain pcrU !!! >>>> >>>> Today is a bad day for me. I'm tried of the side effects of treatment >>>> and >>>> overall just tired. Needing some inspiration I picked up my CURE >>>> Magaizine >>>> and noticed that CML was on the front page. Here's a link below. >>>> >>>> http://www.curetoday.com/publications/cure/2016/hematology-2 >>>> -2016/targeted-power-improving-prognoses-for-patients-with- >>>> chronic-myeloid-leukemia >>>> . >>>> >>>> >>>> Ryan "chemo-sabi" >>>> dx-10.27.2009 >>>> Interferon-10/09-12/09 >>>> Gleevec-400mg 1xd-12/09-02-11 >>>> BCR-ABL- undetectable 2/2011 >>>> 02/2011-Today- 400mg gleevec >>>> Back to top >>>> <#m_-4647447971261697116_m_3512663305719614869_CAEDTp2pMb37fD_qtv9Si4bFF1XeXx9qt7jbn3xVYuBYtNJFs_Q@mail.gmail.com_m_-3285202243326054360_digest_top> >>>> You received this digest because you're subscribed to updates for this >>>> group. You can change your settings on the group membership page >>>> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/join> >>>> . >>>> To unsubscribe from this group and stop receiving emails from it send >>>> an email to cmlhope+u...@googlegroups.com. >>>> >>> >>> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group >> /CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group >> /CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
