Kathy โ there is a facebook page specifically for those on Pontinab
https://www.facebook.com/groups/150038661787828/ You may find some suggestions and shared info of Pontinab Sue From: [email protected] [mailto:[email protected]] Sent: Monday, 18 January 2016 6:28 PM To: Digest recipients <[email protected]> Subject: [CMLHope] Digest for [email protected] - 1 update in 1 topic [email protected] <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> Google Groups <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> Topic digest View all topics * To Kathy - 1 Update <http://groups.google.com/group/cmlhope/t/f47c7bdc3f40c83?utm_source=digest&utm_medium=email> To Kathy Icandoallttc <[email protected] <mailto:[email protected]> >: Jan 17 07:42AM -0500 Hi Kathy This is my 12 th year fighting cml and yes it was worth it. I know what you are going through as I remember my first year in Gleevec. We have many more choices now so if it gets too bad talk to your dr about changing tkis. Make sure you are going to a specialty cml onc as I made the mistake in the beginning of going to an onc that didn't know what he was doing. Stay strong and stay connected. โค๏ธ๐๐๐ My Motto: Faith and Pillsโค๏ธ With ๐Jeanie ๐๐18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center Back to top You received this digest because you're subscribed to updates for this group. You can change your settings on the group membership page. To unsubscribe from this group and stop receiving emails from it send an email to [email protected] <mailto:[email protected]> . -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
