Richard, now how did i know that? Been there played that "game" It sure beat those blood transfusions.
Then there is a good friend of mine that doesn't usually post but he sure checks several of the CML sites out, including this one. His name is Skip, lives in Canada and he happens to be the longest CML survivor that i know of. I think that his survival of 39 years give or take a few years and he never had a bone marrow transplant is his testament. I'm sure that everyone has heard of that cute pink furry bunny that keeps on going and going beating his drum along the way, Well that describes Skip. However he must have a couple of blood transfusions as well as platelet infusions a couple of times a week. Something that he must do but he is still going strong. And he has this life that he lives knowing that he is still alive and will keep on living for as long as he can, and he is doing it! People are amazing aren't they... 18's, Marty On Sun, Jan 29, 2017 at 11:58 PM, Richard H <[email protected]> wrote: > Yes these are the 2 main drugs. Since I get mine from the VA and it is > labeled Procrit/Epitien. That is better than having to try and keep up > with transfusions every 3 weeks and spend 6 hours plugged into the wall. > > We saw the SUN most of the day for the first time in about 2 weeks. This > new weather pattern we have is like living wintertime in Washington state. > > 18's > > Richard H. > > On Sunday, January 29, 2017 at 8:06:37 AM UTC-6, wa2yyx wrote: >> >> Good morning Richard, >> >> And your right, it is another morning and you and i are on the right side >> of the bed sheets. >> >> Sorry to hear about your problem concerning your . Boy do i know how you >> feel because when i had my dialysis my Hemoglobin was so low that at times >> i couldn't even get out of bed. >> >> I was given Procrit or Epogen and it brought my Hemoglobin up but it took >> several days. By any chance are on any of thees drugs? >> >> 18's, >> >> Marty >> >> On Sun, Jan 29, 2017 at 12:23 AM, Richard H <[email protected]> wrote: >> >>> My last blood test on Jan.17 came back stating my counts were so low >>> they couldn't be reported. I am still fighting low Hemoglobin counts but I >>> have been in much better control than I was 3 years ago. I am still >>> taking a CBC weekly because when my Hemoglobin decides to drop it plunges >>> down 1 to 2 points in that weekly period. So my preference is being >>> observed instead of ONC's request of bi-weekly testing. The longest period >>> without a shot is about 4 weeks and then it takes about 3 weeks to get it >>> back up. But that is life in my CML world so not complaining just >>> commenting. >>> >>> I awake in the morning thankful for another day. Then I prey all my >>> fellow CMLers are having good new day also. >>> >>> 18's >>> >>> Richard H. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group >>> /CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
