Hi Susan, Sorry to hear about your strokes. Are you on any blood thinners? I am and it seems to be helping me but i also have a pacemaker. Please make sure to ask your doctor if a modified amount of exercise can help you.
In fact that is what i started doing with my wife for the past two days. Just simply walking down my block passing three fire hydrants. Each hydrant is 500 feet away from each other and then back to our house just taking our time. 18's, Marty On Wed, Feb 1, 2017 at 4:12 PM, 'Susan Zimmerman' via CMLHope < [email protected]> wrote: > Hey Richard, > > Sorry to hear about your low counts. What a bummer!!! Glad your doc is > going along with you, like mine does. > > I haven't been keeping up well with my emails. Every 3 days I delete > about 500 if I don't go every day to computer, which I do not. > Guess we both enjoyed our years without any medicine as a wonderful time > in our lives. I am now back on bosulif only my doc is going along with me > taking one every other day. I am so prone to strokes with the tki's that I > felt I could stave off the build-up this way. I had another stroke in Dec. > 2015 so went off bosulif for 10 months. Now the first two months' tests > (bcr/abl) showed 8.88 and next month 3.06! > We were thrilled. > > Love and pray for all you guys, 18's, > Susan F. Zimmerman > > > > -----Original Message----- > From: Richard H <[email protected]> > To: CMLHope <[email protected]> > Sent: Sun, Jan 29, 2017 11:58 pm > Subject: Re: [CMLHope] My latest Blood test. > > Yes these are the 2 main drugs. Since I get mine from the VA and it is > labeled Procrit/Epitien. That is better than having to try and keep up > with transfusions every 3 weeks and spend 6 hours plugged into the wall. > > We saw the SUN most of the day for the first time in about 2 weeks. This > new weather pattern we have is like living wintertime in Washington state. > > 18's > > Richard H. > > On Sunday, January 29, 2017 at 8:06:37 AM UTC-6, wa2yyx wrote: >> >> Good morning Richard, >> >> And your right, it is another morning and you and i are on the right side >> of the bed sheets. >> >> Sorry to hear about your problem concerning your . Boy do i know how you >> feel because when i had my dialysis my Hemoglobin was so low that at times >> i couldn't even get out of bed. >> >> I was given Procrit or Epogen and it brought my Hemoglobin up but it took >> several days. By any chance are on any of thees drugs? >> >> 18's, >> >> Marty >> >> On Sun, Jan 29, 2017 at 12:23 AM, Richard H <[email protected]> wrote: >> >>> My last blood test on Jan.17 came back stating my counts were so low >>> they couldn't be reported. I am still fighting low Hemoglobin counts but I >>> have been in much better control than I was 3 years ago. I am still >>> taking a CBC weekly because when my Hemoglobin decides to drop it plunges >>> down 1 to 2 points in that weekly period. So my preference is being >>> observed instead of ONC's request of bi-weekly testing. The longest period >>> without a shot is about 4 weeks and then it takes about 3 weeks to get it >>> back up. But that is life in my CML world so not complaining just >>> commenting. >>> >>> I awake in the morning thankful for another day. Then I prey all my >>> fellow CMLers are having good new day also. >>> >>> 18's >>> >>> Richard H. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group >>> /CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
