Thanks. I just referenced Skip in the next round of this battle I am wanting to try. My ONC is great about working with me in this CML war. In my war costume I play the Sargent but he is the General.
On Monday, January 30, 2017 at 10:21:17 AM UTC-6, wa2yyx wrote: > > Richard, now how did i know that? Been there played that "game" > It sure beat those blood transfusions. > > Then there is a good friend of mine that doesn't usually post but he sure > checks several of the CML sites out, including this one. His name is Skip, > lives in Canada and he happens to be the longest CML survivor that i know > of. I think that his survival of 39 years give or take a few years and he > never had a bone marrow transplant is his testament. I'm sure that everyone > has heard of that cute pink furry bunny that keeps on going and going > beating his drum along the way, Well that describes Skip. > > However he must have a couple of blood transfusions as well as platelet > infusions a couple of times a week. Something that he must do but he is > still going strong. And he has this life that he lives knowing that he is > still alive and will keep on living for as long as he can, and he is doing > it! > > People are amazing aren't they... > > 18's, > > Marty > > On Sun, Jan 29, 2017 at 11:58 PM, Richard H <[email protected] > <javascript:>> wrote: > >> Yes these are the 2 main drugs. Since I get mine from the VA and it is >> labeled Procrit/Epitien. That is better than having to try and keep up >> with transfusions every 3 weeks and spend 6 hours plugged into the wall. >> >> We saw the SUN most of the day for the first time in about 2 weeks. This >> new weather pattern we have is like living wintertime in Washington state. >> >> 18's >> >> Richard H. >> >> On Sunday, January 29, 2017 at 8:06:37 AM UTC-6, wa2yyx wrote: >>> >>> Good morning Richard, >>> >>> And your right, it is another morning and you and i are on the right >>> side of the bed sheets. >>> >>> Sorry to hear about your problem concerning your . Boy do i know how you >>> feel because when i had my dialysis my Hemoglobin was so low that at times >>> i couldn't even get out of bed. >>> >>> I was given Procrit or Epogen and it brought my Hemoglobin up but it >>> took several days. By any chance are on any of thees drugs? >>> >>> 18's, >>> >>> Marty >>> >>> On Sun, Jan 29, 2017 at 12:23 AM, Richard H <[email protected]> wrote: >>> >>>> My last blood test on Jan.17 came back stating my counts were so low >>>> they couldn't be reported. I am still fighting low Hemoglobin counts but >>>> I >>>> have been in much better control than I was 3 years ago. I am still >>>> taking a CBC weekly because when my Hemoglobin decides to drop it plunges >>>> down 1 to 2 points in that weekly period. So my preference is being >>>> observed instead of ONC's request of bi-weekly testing. The longest >>>> period >>>> without a shot is about 4 weeks and then it takes about 3 weeks to get it >>>> back up. But that is life in my CML world so not complaining just >>>> commenting. >>>> >>>> I awake in the morning thankful for another day. Then I prey all my >>>> fellow CMLers are having good new day also. >>>> >>>> 18's >>>> >>>> Richard H. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send >>>> an email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> >>> >>> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> <javascript:> >> To unsubscribe from this group, send email to >> [email protected] <javascript:> >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected] <javascript:>. >> For more options, visit https://groups.google.com/d/optout. >> > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
