well do not worry about Infusions of blood or platelets, I have had them twice weekly for about 9 years and not as often for the previous 30 years I must admit that when my blood goes low or below 100 down in the 70, 80,90 I get out of breath if I walk too much but bounce back after infusions.. Platelets I do not notice even when they were below 10 (0) I hope or pray for all of you to have the same type of journey as I have long and not much in the way of reactions skip Duffie
On Sun, Feb 5, 2017 at 12:06 PM, kathy walls <[email protected]> wrote: > I'm into my 3rd yr with cml/ph. I'm doing well. Took a few meds to find > one that did the job with side effects I can live with. But I've been > obsessed with the why/how this happened. From 2004 to about 2013 I've had > many surgeries that required dozens of blood transfusions. Anyone else been > thru something like that prior to the cml diagnosis? I'm also 15 yrs > younger than the average age for the onset. I know that is relative as > there have been people much younger than myself affected as well. It was > just something the dr thru out there. > Any insight would be helpful > Thanks, Kate > 18's > > Sent from my iPhone > > On Feb 4, 2017, at 11:28 PM, Marty Gartenberg <[email protected]> wrote: > > yes,YES,yes,YES,yes,YES > > 18,s, > > Marty > > On Sat, Feb 4, 2017 at 11:12 PM, 'Susan Zimmerman' via CMLHope < > [email protected]> wrote: > >> Yippie Kayay, whoohoo, whoohoo, and I remember Zavie. I've been fightin' >> this thing for 11 years myself. >> >> and another Yippie Kayay! >> >> 18's, >> Susan >> >> -----Original Message----- >> From: Marty Gartenberg <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Fri, Feb 3, 2017 8:32 pm >> Subject: Re: [CMLHope] 39 years with cml >> >> Susan, >> >> Sounds like you dialed 911 and that is what you got back .911%. I would >> like to remind you of what our friend Zavie used to say when something went >> right especially when that person got a good pcr/abl. >> He would shout out Yippi Yahooy and repeat it a zillion times. He was >> some type of guy and i really do miss him and his wife Ida... >> >> So Susan now it is your time... >> >> 18's, >> >> Marty >> >> On Fri, Feb 3, 2017 at 6:54 PM, 'Susan Zimmerman' via CMLHope < >> [email protected]> wrote: >> >>> Thanks, good to hear from you, Skip!!! Keep on keepin on... >>> >>> Great news everybody! Just got my numbers back from last bcr/abl. In >>> the third month of taking bosulif at 100 mg every OTHER day, it is down to >>> .911%. YAY, HAPPY DANCE, HOORAY, HALLELUHIAH, THANK GOD, WHOOPPEEEE, WHOOP >>> WHOOP!!! >>> >>> I am praying for all of you to be well and enjoy every day. smooches, >>> 18's, >>> Susan F. Zimmerman >>> >>> -----Original Message----- >>> From: skipd <[email protected]> >>> To: CMLHope <[email protected]> >>> Sent: Wed, Feb 1, 2017 7:04 pm >>> Subject: [CMLHope] 39 years with cml >>> >>> /just want to say hi to all you cml'ers and to let you know I am still >>> on the green side was talking to Marty he told me to get on >>> >>> >>> In case you do not know me here is a place you can see but its not >>> finished still have about 10 years still to enter >>> >>> http://easyskipcacom.coffeecup.com/index.html >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to CMLHope- >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group >>> /CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group >>> /CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope- >> [email protected] >> For more options, visit this group at http://groups.google.com/group >> /CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group >> /CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to a topic in the > Google Groups "CMLHope" group. > To unsubscribe from this topic, visit https://groups.google.com/d/ > topic/cmlhope/dDlZCUap7to/unsubscribe. > To unsubscribe from this group and all its topics, send an email to > [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com 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