Hi Jeanie, First of all in today's reams of dental radiation the amount or dental radiation it is so small that you have nothing to worry about it. However in my case the radiation was total body radiation coming out of a linear extracellular every dry and then a repeat performance every day. By the second round i would usually faint and they would bring me back to the bubble wrapped in several sterile sheets,but i didn't remember a thing because i had fainted all that i remembered was that pounding headache and after two dsys the severe radiation burns on the soles of my feet and then it progressed into the most severe pain that i ever had it effects the mucous membranes of my entire body from my lips to me anus nothing is spared. Then my eye began to develop cataract which had to be taken care of but only my right eye and so far the left has not progressed as of yet.
This went on for a couple of weeks. Jeannie don't worry about any radiation because it is so minute and the only thing i need to worry about is keeping sun blocker on of at least 30 and to keep my head covered because any large amounts of gamma rays will cause me problems because of three factors. 1 All of the high dose radiation will cause me skin cancer especially on the top of my head which i have totaling four that had to be removed bu Mohs surgery, Then finally the immune drugs that keeps my systen free of rejection. 18's Marty On Mon, Feb 6, 2017 at 8:03 AM, 'Jeanie' via CMLHope < [email protected]> wrote: > I was donating blood and having lots of tooth X-rays when I got it. Just > don't know. Was around a lot of pesticides in my generation. Always > spraying for mosquitos and such when I was a girl. Lived by a strawberries > farm and they sprayed every day. No sickness of any kind until CML. Go > figure > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > > On Feb 5, 2017, at 5:39 PM, Marty Gartenberg <[email protected]> wrote: > > Hi Kate, > > Just before i had my bone marrow transplant my blood typing was O+ and > since my donor who was my donor was B+. She was a perfect HLA match except > for her blood type. Since i was in blast crises and no other person was > even a match to me and since i was dying, my transplant doctor decided to > change my blood type from O to B. He told me that there were poor results > from changing but i had no other choice. > > I received 96 wholr blood transfusions along with dozens of platelet > infusions plus a lot of other human blood products like > gamma Globulin and a few others. So in essence i turned from O to B. > > There is a word for that. it is called Chimera which i am now after a > successful transplant more then 27 years ago. > > But it didn't stop there. Twenty years later my kidneys went bad and i had > to have dialysis for four years, and finally received a kidney transplant. > Guess what the donor was a young man 20 years old and he had a fatal > accident and his kidney matched me and even his blood type was B+.It is now > exactly two years later and i am still alive. > > Now one last thing. Skip and i have been good friends for many years now > and he will be going to another year with his blood transfusions so the way > i figure it I had only 96 transfusions and no more after them, while Skip > had probably thousands of blood transfusions, and more to come but my > friend is still alive and so i am hands down on Skip having all of them. > Skip holds the record. Have you ever seen that furry pink bunny on TV of > that critter marching around beating his drum and always has power. Well, > that is Skip for sure. > > 18's, (the symbol for life) > > Marty > > On Sun, Feb 5, 2017 at 12:06 PM, kathy walls <[email protected]> > wrote: > >> I'm into my 3rd yr with cml/ph. I'm doing well. Took a few meds to find >> one that did the job with side effects I can live with. But I've been >> obsessed with the why/how this happened. From 2004 to about 2013 I've had >> many surgeries that required dozens of blood transfusions. Anyone else been >> thru something like that prior to the cml diagnosis? I'm also 15 yrs >> younger than the average age for the onset. I know that is relative as >> there have been people much younger than myself affected as well. It was >> just something the dr thru out there. >> Any insight would be helpful >> Thanks, Kate >> 18's >> >> Sent from my iPhone >> >> On Feb 4, 2017, at 11:28 PM, Marty Gartenberg <[email protected]> wrote: >> >> yes,YES,yes,YES,yes,YES >> >> 18,s, >> >> Marty >> >> On Sat, Feb 4, 2017 at 11:12 PM, 'Susan Zimmerman' via CMLHope < >> [email protected]> wrote: >> >>> Yippie Kayay, whoohoo, whoohoo, and I remember Zavie. I've been >>> fightin' this thing for 11 years myself. >>> >>> and another Yippie Kayay! >>> >>> 18's, >>> Susan >>> >>> -----Original Message----- >>> From: Marty Gartenberg <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Fri, Feb 3, 2017 8:32 pm >>> Subject: Re: [CMLHope] 39 years with cml >>> >>> Susan, >>> >>> Sounds like you dialed 911 and that is what you got back .911%. I would >>> like to remind you of what our friend Zavie used to say when something went >>> right especially when that person got a good pcr/abl. >>> He would shout out Yippi Yahooy and repeat it a zillion times. He was >>> some type of guy and i really do miss him and his wife Ida... >>> >>> So Susan now it is your time... >>> >>> 18's, >>> >>> Marty >>> >>> On Fri, Feb 3, 2017 at 6:54 PM, 'Susan Zimmerman' via CMLHope < >>> [email protected]> wrote: >>> >>>> Thanks, good to hear from you, Skip!!! Keep on keepin on... >>>> >>>> Great news everybody! Just got my numbers back from last bcr/abl. In >>>> the third month of taking bosulif at 100 mg every OTHER day, it is down to >>>> .911%. YAY, HAPPY DANCE, HOORAY, HALLELUHIAH, THANK GOD, WHOOPPEEEE, WHOOP >>>> WHOOP!!! >>>> >>>> I am praying for all of you to be well and enjoy every day. smooches, >>>> 18's, >>>> Susan F. Zimmerman >>>> >>>> -----Original Message----- >>>> From: skipd <[email protected]> >>>> To: CMLHope <[email protected]> >>>> Sent: Wed, Feb 1, 2017 7:04 pm >>>> Subject: [CMLHope] 39 years with cml >>>> >>>> /just want to say hi to all you cml'ers and to let you know I am still >>>> on the green side was talking to Marty he told me to get on >>>> >>>> >>>> In case you do not know me here is a place you can see but its not >>>> finished still have about 10 years still to enter >>>> >>>> http://easyskipcacom.coffeecup.com/index.html >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to CMLHope- >>>> [email protected] >>>> For more options, visit this group at http://groups.google.com/group >>>> /CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send >>>> an email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at http://groups.google.com/group >>>> /CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send >>>> an email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to CMLHope- >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group >>> /CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group >>> /CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group >> /CMLHope >> --- >> You received this message because you 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