Dear Jeanie,

That pain in your side sure is miserable. ERCP to take a look might be 
helpful...I do understand the stress of ore tests...and that "what if they find 
something" that looms...but better to know what you are dealing with if 
possible..because at least you have some clarity and then can decide how you 
want to proceed. Your heart beat down 40?? Do you know what that is about???


Jeanie you have been through so much...yet your spirit, your faith "and pills" 
:)  keep you going...let us know what happens with the ERCP. It doesn't 
hurt...twilight meds....that's it.


Take good care..


love you all,
18's  Beth



-----Original Message-----
From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Aug 9, 2017 10:01 am
Subject: Re: [CMLHope] Gleevec



Hi Beth
I have really missed your uplifts but knew you were going through some trials 
and tribulations.  My heartbeat is down to 40 and sometimes lower but not too 
concerned yet. 
I had a three day stay in hospital to see if they could find out the source of 
the pain in my side. No luck. No my onc wants to try mrcp where they take a 
closer look at pancreas and ect. 
Then if they find something you wonder if you want to do something else.  
Hang in there Beth.  Each day at a time. 
❤️



My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 8, 2017, at 11:30 PM, Richard H <rbhuffm...@gmail.com> wrote:



Thanks for the update.  I hope all keeps going well.


No preaching today, you are under control and I hope you continue to get better.


Richard H.

On Tuesday, August 8, 2017 at 12:33:13 PM UTC-5, Beth wrote:
Dear Susan, Jeanie, Marty, Richard, Greenie et all, 


So sorry I have not been communicative for a long while. I am coming up after a 
really hard year physically and with many losses...sifting through 6000 
emails...I realize how much I have missed just our groups banter, and love....


Hope each one of you is enjoying moments of sunshine...and holding on to the 
love that is in our group. I rely so often on the stories of others to inspire 
me, give me perspective...to hold hope for a better tomorrow and to stand tall 
in the belief that "This too shall pass" as my dad used to say...when things 
were really bad..  I had a rough year starting last September with heart 
issues, then got worse in December...and stayed struggling through the 
spring...starting to feel a bit stronger....still vulnerable, but fighting 
spirit is back...and I am here...to see the hummingbirds out my window...flox 
is in full bloom....75 degrees  and sunny today.....so life is good for 
now...later today seeing the cardiologist to swap medicines...then oncologist 
Friday. CPK stil supper high so muscle continues to waste..I hardly recognize 
myself and its affected my kidneys..all the protein going through them...Will 
get blood work done in a couple of weeks at U of C...last test in June had 
cancer showing...at low levels...had to go off for a drug holiday because of 
toxicity...so only back on for three weeks. We shall see how I am doing....I am 
seeing Dr. Druker in October...he always makes me feel hopeful and calm....he 
has a way about him that invites this...and for which I am always so grateful..


I know each of you has had your struggles....physically and emotionally...I 
think of you often and pray for each of you every night....Greenie, especially 
you and your wife,....this first year of grieving Derek...your 
anniversary.....so hard to bare...I m holding 7 clients who have lost adult 
children in my practice. I brought them together in a group to so they could 
meet one another and share their stories, introduce their children and share 
their grief.
 
I thought of you and wondered if something like that might be helpful to you..I 
know there are many supports in your area through local hospices and I think 
Health Park...God willing I will be down by you in December as I was supposed 
to be last year before everything erupted..
Hope to one day give you a big hug. 


and to the rest of you..love, hugs and 18's....it feels good to write 
something...




Beth






-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-------------------------------------------------
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.


-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-------------------------------------------------
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.


-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-------------------------------------------------

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

Reply via email to