Hi Beth and everyone First glad no dialysis. Been there and done all of that.
I have been in the hospital for two weeks due to a broken knee and a tibia finally in rehab now for the past three weeks with two weeks left. I am now in PA because we are trying to sell our house up here. I feel sorry for my wife Shelly because all of this in on her now. but she is a very strong woman. On Oct 21 we will be leaving the rehab felicity go back to our house and stay there for about a week and drive back to Florida with my wife and son who will share the driving. Our daughter Meredith will be flying back to Florida.just before we leave PA. Anyway i have been reading all of your posts so i basically know what is going on. Please say hello to everyone for me. 18's, Marty On Wed, Aug 9, 2017 at 11:48 PM, bkbarney via CMLHope < [email protected]> wrote: > Thanks Susan, > > No dialysis. Just navigating muscle deterioration at an accelerated rate > which makes it hard to move, let alone exercise...just a significant rough > patch, but trying to navigate it the best I can. I had little to give > anyone for a while, but feel better able to be a contributing part of our > community again. I know many do not write, but feel less alone just > reading..I just became one of those people for a time.. I will try to be > better about speaking up when I am struggling. > > Love to all, > > 18's Beth > > > > -----Original Message----- > From: 'Susan Zimmerman' via CMLHope <[email protected]> > To: rbhuffman1 <[email protected]>; cmlhope <[email protected]> > Sent: Wed, Aug 9, 2017 6:38 pm > Subject: Re: [CMLHope] Gleevec > > Beth, my heart goes out to you from all you've gone through since last > September. You have always been a great encourager to all of us. > I am sure I speak for all in saying we missed you tremendously and hope > you will have no more setbacks. Obviously those kidneys are so important to > function properly. I hope you've not had to go on dialysis? > Hoping and believing you continue to get better. You are so right about > Dr. Druker and glad you are going to see him. Hang in there, we really > really love you! > Richard, trying hard not to preach! Prayers, though! > 18's, xoxo > Susan Z. > ------------------------------ > On Tuesday, August 8, 2017 Richard H <[email protected]> wrote: > Thanks for the update. I hope all keeps going well. > > No preaching today, you are under control and I hope you continue to get > better. > > Richard H. > > On Tuesday, August 8, 2017 at 12:33:13 PM UTC-5, Beth wrote: > > Dear Susan, Jeanie, Marty, Richard, Greenie et all, > > So sorry I have not been communicative for a long while. I am coming up > after a really hard year physically and with many losses...sifting through > 6000 emails...I realize how much I have missed just our groups banter, and > love.... > > Hope each one of you is enjoying moments of sunshine...and holding on to > the love that is in our group. I rely so often on the stories of others to > inspire me, give me perspective...to hold hope for a better tomorrow and to > stand tall in the belief that "This too shall pass" as my dad used to > say...when things were really bad.. I had a rough year starting last > September with heart issues, then got worse in December...and stayed > struggling through the spring...starting to feel a bit stronger....still > vulnerable, but fighting spirit is back...and I am here...to see the > hummingbirds out my window...flox is in full bloom....75 degrees and sunny > today.....so life is good for now...later today seeing the cardiologist to > swap medicines...then oncologist Friday. CPK stil supper high so muscle > continues to waste..I hardly recognize myself and its affected my > kidneys..all the protein going through them...Will get blood work done in a > couple of weeks at U of C...last test in June had cancer showing...at low > levels...had to go off for a drug holiday because of toxicity...so only > back on for three weeks. We shall see how I am doing....I am seeing Dr. > Druker in October...he always makes me feel hopeful and calm....he has a > way about him that invites this...and for which I am always so grateful.. > > I know each of you has had your struggles....physically and > emotionally...I think of you often and pray for each of you every > night....Greenie, especially you and your wife,....this first year of > grieving Derek...your anniversary.....so hard to bare...I m holding 7 > clients who have lost adult children in my practice. I brought them > together in a group to so they could meet one another and share their > stories, introduce their children and share their grief. > > I thought of you and wondered if something like that might be helpful to > you..I know there are many supports in your area through local hospices and > I think Health Park...God willing I will be down by you in December as I > was supposed to be last year before everything erupted.. > Hope to one day give you a big hug. > > and to the rest of you..love, hugs and 18's....it feels good to write > something... > > > Beth > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
